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#200399 09-09-2020 09:16 AM
Joined: Jun 2019
Posts: 244
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"OCF across the pond"
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"OCF across the pond"
Gold Member (200+ posts)

Joined: Jun 2019
Posts: 244
Likes: 2
One of my SLT contacted me. She that that another hospital have asked if I'll support a younger patient going through a glossectomy. The patient is very scared and going through what we all went through when diagnosed with this awful disease. I jumped at the chance as no-one should go through this alone, and anywhere I can support is OK by me.
I also told my SLT that my physiotherapist has suggested that I speak about my experiences at a conference - when they start up again. My SLT have agreed to it, as long as I'm happy to do so.
I feel pretty honoured that I'm being asked to mentor someone, and that another hospital that's not in my area have asked for me.


F 39 x-smoker no alcohol
05/20/19 T4aN1/N2bM0 SCC a whopper of a tumour at 8cm long & 4cm wide
Pembro pre & post surgery
RIG
Glossectomy ND RFFR 08/13/19
RT x33
2x cispltin
So far, no evidence of disease
Now an author of a recipe book for mouth cancer patients
Joined: Aug 2019
Posts: 57
Supporting Member (50+ posts)
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Supporting Member (50+ posts)

Joined: Aug 2019
Posts: 57
Not too surprising. Your participation on here comes off as very supportive and inspiring despite all you have been through. I think you could be very helpful for a younger person facing these daunting challenges. Great for you to step up to help others in this way.


Preliminary diagnosis of SqCC at base of tongue August 2, 2019.
Biopsy surgery on August 15
Confirmed sqcc from biopsy Aug 20 - hpv type 16
33 radiation treatments ended October 25, 2019.
3 (large dose) cisplatin treatments.
Joined: Oct 2012
Posts: 1,275
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Patient Advocate (1000+ posts)
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Patient Advocate (1000+ posts)

Joined: Oct 2012
Posts: 1,275
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Good for you, Dizzy. I agree totally with Barry that you are the right person for this kind of support. Good luck!


Gloria
She stood in the storm, and when the wind did not blow her way, she adjusted her sails... Elizabeth Edwards

Wife to John,dx 10/2012, BOT, HPV+, T3N2MO, RAD 70 gy,Cisplatinx2 , PEG in Dec 6, 2012, dx dvt in both legs after second chemo session, Apr 03/13 NED, July 2013 met to lungs, Phase 1 immunotherapy trial Jan 18/14 to July/14. Taxol/carboplatin July/14. Esophagus re-opened Oct 14. PEG out April 8, 2015. Phase 2 trial of Selinexor April to July 2015. At peace Jan 15, 2016.
gmcraft #200403 09-11-2020 09:32 AM
Joined: Aug 2018
Posts: 344
Likes: 8
Platinum Member (300+ posts)
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Platinum Member (300+ posts)

Joined: Aug 2018
Posts: 344
Likes: 8
go Dizzy go! you have been quite the cheerleader for many!


Spouse of 58 yr old with BOT cancer
Stage 4a HPV16 positive
3 chemo treatments cisplantin
35 radiation treatments 7000 cGy
former smoker/chewed tobacco for 38 yrs.
1/2020 diagnosed with cancer near TMJ
4/2020 chemo 5 days every 2 weeks
6/2020 proton therapy
9/21/2020 cancer free

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