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#200386 09-06-2020 10:52 AM
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Ariel Offline OP
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I had a partial glossectomy on July 21st. My tongue was numb for a few weeks and now I have a lot of nerve pain. If you had the same thing please tell me how long it lasted.

Last edited by Ariel; 09-06-2020 10:53 AM.
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Hi Ariel,

Unfortunately we can't answer " how long it lasted" if someone pain as everyone is different. Nerve pain is awful so please get yourself an appointment to sort out some decent pain relief and an investigation to find out what's causing the pain.


F 39 x-smoker no alcohol
05/20/19 T4aN1/N2bM0 SCC a whopper of a tumour at 8cm long & 4cm wide
Pembro pre & post surgery
RIG
Glossectomy ND RFFR 08/13/19
RT x33
2x cispltin
So far, no evidence of disease
Now an author of a recipe book for mouth cancer patients
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Ariel Offline OP
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Did you experience that sensation after your surgery?

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Most of the nerve pain I have had since surgery (hemiglossectomy & neck dissection) last December has been on my neck along the scar. It is improving. Hang in there. The pain should get better as you heal.


The number of people involved in my care (@ a CCC) is humbling. Doctors, nurses, therapists, support staff, & of course, family. With everyone fighting for me to beat cancer the least I can do is fight back and win!
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Ariel Offline OP
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Thank you

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I didn't get any nerve pain. I was put on pregablin (part of the gabapantin group, so great for nerve pain) for a month before my surgery. I stayed on it for 4 months after surgery (a month after i finished rads). I was also encouraged to massage my scars as soon as the stitches were removed. I guess it all helped


F 39 x-smoker no alcohol
05/20/19 T4aN1/N2bM0 SCC a whopper of a tumour at 8cm long & 4cm wide
Pembro pre & post surgery
RIG
Glossectomy ND RFFR 08/13/19
RT x33
2x cispltin
So far, no evidence of disease
Now an author of a recipe book for mouth cancer patients
Joined: May 2020
Posts: 5
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I had a partial glossectomy in April. My nerve pain was AWFUL! The doc started me on gabapentin and it has been a godsend. Finding the "magic" spot took about a month, but now I dont go a day without my meds. She told me it could take up to 18 months for regenration, but no guarentees of total regeneration.


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