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| | Joined: Sep 2019 Posts: 23 Member | OP  Member
Joined: Sep 2019 Posts: 23 | does anyone here have (of had) any issues with how dairy tastes post-treatment? My husband
is trying foods in effort to get off feeding tube eventually and it appears stuff with dairy tastes awful. I was thinking of trying a plant based substitute in a thin milkshake fir him. Suggestions?
Spouse of patient 7 weeks post radiation as of 9/30/19
| | | | | Joined: Jul 2012 Posts: 3,267 Likes: 1 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jul 2012 Posts: 3,267 Likes: 1 | ArdenDD,
I’ve had lots of problems with foods during and after treatment. I couldn’t eat solid foods for awhile and relied on the feeding tube. After slowly introducing foods such as scrambled eggs, farina, and egg drop soup I slowly added other foods, but I still had a problem with milk, ice cream and such burning my mouth. It took awhile before I could eat this and other foods, but keep trying! You’ll slowly win this war!
Have you tried coconut milk?
Good luck!
10/09 T1N2bM0 Tonsil
11/09 Taxo Cisp 5-FU, 6 Months Hosp
01/11 35 IMRT 70Gy 7 Wks
06/11 30 HBO
08/11 RND PNI
06/12 SND PNI LVI
08/12 RND Pec Flap IORT 12 Gy
10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux
10/13 SND
10/13 TBO/Angiograph
10/13 RND Carotid Remove IORT 10Gy PNI
12/13 25 Protons 50Gy 6 Wks Carbo
11/14 All Teeth Extract 30 HBO
03/15 Sequestromy Buccal Flap ORN
09/16 Mandibulectomy Fib Flap Sternotomy
04/17 Regraft hypergranulation Donor Site
06/17 Heart Attack Stent
02/19 Finally Cancer Free Took 10 yrs
| | | | | Joined: Jun 2019 Posts: 244 Likes: 2 "OCF across the pond" Gold Member (200+ posts) | | "OCF across the pond" Gold Member (200+ posts)
Joined: Jun 2019 Posts: 244 Likes: 2 | I've not had a problem with dairy (especially chocolate milk) but have found dairy alternatives (chocolate versions) have had no taste whatsoever.
F 39 x-smoker no alcohol
05/20/19 T4aN1/N2bM0 SCC a whopper of a tumour at 8cm long & 4cm wide
Pembro pre & post surgery
RIG
Glossectomy ND RFFR 08/13/19
RT x33
2x cispltin
So far, no evidence of disease
Now an author of a recipe book for mouth cancer patients
| | | | | Joined: Sep 2019 Posts: 23 Member | | OP Member
Joined: Sep 2019 Posts: 23 | I tried coconut milk in a smoothie for him very early on and he said he could taste the coconut which he hates. Today I bought some vanilla almond milk and will try making a smoothie with that, frozen bananas and some blueberries and see how that goes for him.
Thanks for sharing!
Spouse of patient 7 weeks post radiation as of 9/30/19
| | | | | Joined: Jul 2012 Posts: 3,267 Likes: 1 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jul 2012 Posts: 3,267 Likes: 1 | It’s funny that I didn’t eat coconut my whole life until I tasted coconut water, milk and jelly (inside) on vacation, and found that I could eat that. It’s the dried stuff they put on cakes and in candy I dislike. Keep trying different foods, and you’ll find ones that one can eat and enjoy. My diet it different than it was years ago, but there’s so much food out there one can find. Keep trying!
10/09 T1N2bM0 Tonsil
11/09 Taxo Cisp 5-FU, 6 Months Hosp
01/11 35 IMRT 70Gy 7 Wks
06/11 30 HBO
08/11 RND PNI
06/12 SND PNI LVI
08/12 RND Pec Flap IORT 12 Gy
10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux
10/13 SND
10/13 TBO/Angiograph
10/13 RND Carotid Remove IORT 10Gy PNI
12/13 25 Protons 50Gy 6 Wks Carbo
11/14 All Teeth Extract 30 HBO
03/15 Sequestromy Buccal Flap ORN
09/16 Mandibulectomy Fib Flap Sternotomy
04/17 Regraft hypergranulation Donor Site
06/17 Heart Attack Stent
02/19 Finally Cancer Free Took 10 yrs
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