| | Joined: Sep 2019 Posts: 120 Likes: 15 Senior Member (100+ posts) | OP  Senior Member (100+ posts)
Joined: Sep 2019 Posts: 120 Likes: 15 | I will have feeding tube put in at time of my surgery ,It would be helpful if you guys share your experience about any issues sleeping with it, thankyou | | | | | Joined: Jun 2019 Posts: 244 Likes: 2 "OCF across the pond" Gold Member (200+ posts) | | "OCF across the pond" Gold Member (200+ posts)
Joined: Jun 2019 Posts: 244 Likes: 2 |
You just can't sleep on your stomach. When mine was first fitted I could only sleep on my back as I was a little sore (which was to be expected). Now I can sleep on both sides as well as my back, but not on my my stomach.
F 39 x-smoker no alcohol
05/20/19 T4aN1/N2bM0 SCC a whopper of a tumour at 8cm long & 4cm wide
Pembro pre & post surgery
RIG
Glossectomy ND RFFR 08/13/19
RT x33
2x cispltin
So far, no evidence of disease
Now an author of a recipe book for mouth cancer patients
| | | | | Joined: Jun 2013 Posts: 346 Likes: 3 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Jun 2013 Posts: 346 Likes: 3 | Sleep elevated, if you can. It helps a LOT more than you realize. I still sleep elevated, actually, due to some reflux issues. But it really helps with the tube. (Not so great for my back, because I'm a side sleeper, and the two -- angled and side -- just don't agree with each other, but worth it anyway.)
Surgery 5/31/13
Tongue lesion, right side
SCC, HPV+, poorly differentiated
T1N0 based on biopsy and scan
Selective neck dissection 8/27/13, clear nodes
12/2/13 follow-up with concerns
12/3/13 biopsy, surgery, cancer returned
1/8/14 Port installed
PEG installed
Chemo and rads
2/14/14 halfway through carboplatin/taxotere and rads
March '14, Tx done, port out w/ complications, PEG out in June
2017: probable trigeminal neuralgia
Fall 2017: HBOT
Jan 18: oral surgery
| | | | | Joined: Sep 2019 Posts: 120 Likes: 15 Senior Member (100+ posts) | | OP Senior Member (100+ posts)
Joined: Sep 2019 Posts: 120 Likes: 15 | Thankyou dizz and kristen,I will work on elevating my bed before surgery | | | | | Joined: Jul 2016 Posts: 34 Contributing Member (25+ posts) | | Contributing Member (25+ posts)
Joined: Jul 2016 Posts: 34 | I have had a G-tube for about 6 weeks now, this is the second time for me. sleeping on my sides is not a problem (I can't sleep on my back). I do have a reflux problem but take pantaprazole for it and it does not bother me most of the time, I have found out that 3 8OZ cartons of feeding tube food is too much at one time though, I will have reflux then! I do not eat or do feeding tube 2 hours pryor to bed time and have not had to raise my bed. My speech therapist did recommend that if I did want raise my bed to put a couple 4 X 4 blocks under the front bed posts. (1) per side.
5/31/16 Partial Glossectomy
Right neck dissection
22 teeth extracted
Six weeks of radiation Ended 8/19/16
2/8/17 Biopsy of epiglottis-cancerous
35 radiation treatments to the throat, End 11/17/17
8/23/19 Tongue reconstruction, left radical neck dissection
| | | | | Joined: Aug 2019 Posts: 16 Likes: 1 Member | | Member
Joined: Aug 2019 Posts: 16 Likes: 1 | I'm into my fourth week with one (nasal) and agree with other posters that elevation is important. I try to get my last feed in at least a couple of hours before I sleep, otherwise the liquid seems to back up on me.
I sleep on my back and both sides, and haven't had any major problems with the tube, although have been awoken on occasion when it inadvertently gets pulled, so securing it is important. | | | | | Joined: Jul 2012 Posts: 3,267 Likes: 4 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jul 2012 Posts: 3,267 Likes: 4 | Paan,
I taped my gastrio feeding tube in a U shape on my stomach when not in use. I have an electric bed on an incline, so that help with fluids not going moving up to cause choking. There is a specific body pillow that is on the market where onle lays on their side with it. I always lay on my side, left, which is supposed to be the best position for various organs. Tru not to lay down an hour after eating.
I hope this helps, and may have mentioned ideas stated.
10/09 T1N2bM0 Tonsil
11/09 Taxo Cisp 5-FU, 6 Months Hosp
01/11 35 IMRT 70Gy 7 Wks
06/11 30 HBO
08/11 RND PNI
06/12 SND PNI LVI
08/12 RND Pec Flap IORT 12 Gy
10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux
10/13 SND
10/13 TBO/Angiograph
10/13 RND Carotid Remove IORT 10Gy PNI
12/13 25 Protons 50Gy 6 Wks Carbo
11/14 All Teeth Extract 30 HBO
03/15 Sequestromy Buccal Flap ORN
09/16 Mandibulectomy Fib Flap Sternotomy
04/17 Regraft hypergranulation Donor Site
06/17 Heart Attack Stent
02/19 Finally Cancer Free Took 10 yrs
| | | | | Joined: Oct 2017 Posts: 36 Likes: 2 Contributing Member (25+ posts) | | Contributing Member (25+ posts)
Joined: Oct 2017 Posts: 36 Likes: 2 | I sleep on my sides
The first PEG I had , got a clamp.
But the new ones does not, sometimes, the PEG adapter is easy to pop open, that means it will wet my bed,
T4aN2cM0 left tongue SCC 10/17
Moderately differentiated SCC
PEG, Trachy, glossectomy, en bloc neck dissection and reconstruction 11/17
Perineural invasion present
Radiation (IMRT) and Chemo ( 2xcispltn) completed 2/18
PET - NED 05/18
CT - NED 07/18, 10/18
CT - NED 02/19, 06/19
MRI H&N, X-ray chest - NED 10/19
MRI H&N NED 05/20
CT - NED 10/20
MRI - NED 04/21
CT - NED 10/21
CT - NED 4/22.10/22
CBCT - NED 10/22
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