|
| Joined: Aug 2019 Posts: 21 Likes: 2 Member | OP Member Joined: Aug 2019 Posts: 21 Likes: 2 | I am getting very discouraged, scared and depressed. I still cannot eat solid food with the exception of a few things that taste horrible, but they can get down my throat. My saliva has not returned at all and I'm afraid I'm going to be one of the unfortunate victims of OC that never gets it back. My last radiation treatment was March 11, 2019 and my PEG tube was removed in July. I have been drinking 1750 calories of Ensure everyday since to maintain my weight. I'm concerned about all of the sugar I'm taking in because it is horrible on my teeth and not good for my body but it does provide me with some good nutrients too. Each 8 0z bottle is 350 calories so it's not that hard to only have to drink 5 bottles a day and I'm good. Especially when I do not have an appetite. My doctors have told me 6 months to a year to recover, and they said however you are in a year is pretty much how you're gonna be. Damn!! If I have only recovered this tiny bit in 6 months I seriously doubt I'll be enjoying a sandwich 6 months from now. Has anyone out there heard of an OC patient whose recovery sped up after 6 months? Also, do any of you eat sandwiches anymore and enjoy them? Are any of you able to eat pizza? Do any of you actually enjoy eating as much as you did before? Thanks for any input anyone out there can give me. I don't think I properly prepared myself for this eating challenge. Gosh, that sounds so petty knowing what so many of you are dealing with and have dealt with. I feel truly blessed right now and I pray it never comes back.
~ Thankful Girl | | | | Joined: Aug 2018 Posts: 345 Likes: 8 Platinum Member (300+ posts) | Platinum Member (300+ posts) Joined: Aug 2018 Posts: 345 Likes: 8 | my husband finished treatment 11 months ago. you would not know he had OC. He can eat anything he wants with no issue. there is hope.
Spouse of 58 yr old with BOT cancer Stage 4a HPV16 positive 3 chemo treatments cisplantin 35 radiation treatments 7000 cGy former smoker/chewed tobacco for 38 yrs. 1/2020 diagnosed with cancer near TMJ 4/2020 chemo 5 days every 2 weeks 6/2020 proton therapy 9/21/2020 cancer free
| | | | Joined: Jul 2012 Posts: 3,267 Likes: 1 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Jul 2012 Posts: 3,267 Likes: 1 | Thankful girl, I feel you pain! So many of us were on the same situation and wondered if we would ever eat again! To be honest, maybe a small percentage don’t, but I think the majority do like myself! I stayed watching food tv shoes, even directing people to cook. I watched food tv shows and had dozens of food magazines. I started to explore bu just putting food in my mouth, spitting it out just to get the taste. Slowly i added food I thought were easy to swallow. I did that and kept improving. It didn’t happen overnight of course, but I was eating away! I has several books like easy to swallow and chew or something like that. Today I posed a link on another members page with links to books on eating, chewing. There are many web pages if you look and sites for dysphagia, https://kelliesfoodtoglow.com/nutri...ew-and-easy-to-swallow-recipe-ideas/?ampGood luck!
10/09 T1N2bM0 Tonsil 11/09 Taxo Cisp 5-FU, 6 Months Hosp 01/11 35 IMRT 70Gy 7 Wks 06/11 30 HBO 08/11 RND PNI 06/12 SND PNI LVI 08/12 RND Pec Flap IORT 12 Gy 10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux 10/13 SND 10/13 TBO/Angiograph 10/13 RND Carotid Remove IORT 10Gy PNI 12/13 25 Protons 50Gy 6 Wks Carbo 11/14 All Teeth Extract 30 HBO 03/15 Sequestromy Buccal Flap ORN 09/16 Mandibulectomy Fib Flap Sternotomy 04/17 Regraft hypergranulation Donor Site 06/17 Heart Attack Stent 02/19 Finally Cancer Free Took 10 yrs
| | |
Forums23 Topics18,168 Posts196,925 Members13,103 | Most Online458 Jan 16th, 2020 | | | |
|