| Joined: Mar 2019 Posts: 28 Contributing Member (25+ posts) | OP Contributing Member (25+ posts) Joined: Mar 2019 Posts: 28 | Can anyone tell me if they received a drug called AMIFOSTINE? Been researching it and it is FDA APPROVED for head and neck cancer tx. Studies have shown very significant reduction in Mucositis if given 30 min before radiation and it protects kidneys if given before chemo. It does not affect the effects of radiation on the tumors. I’m just amazed that I have not seen it mentioned before. Side effects are drop in BP and nausea but effects only last during the 15 min infusion. Anyone else heard or been given this Med?
Wife and cheerleader. Right sided BOT dx 2/25, surgery 3/7 for tumor removal (clean margins) 2 lymph nodes 1 pos for ECE (ugh), pT2N1M0 HPV POSITIVE (one small blessing in this nightmare), Stage changed to Stage 1 due to diffuse and large HPV status. tx plan 33 radiation, 5 cisplatin chemo to begin 4/12.
| | | | Joined: Jul 2012 Posts: 3,267 Likes: 1 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Jul 2012 Posts: 3,267 Likes: 1 | Hi Judy!
There are about 3 pages worth of questions and answers in regards to Amifostine dating back a decade or so if you go to the Search feature here at the top of the page. I looked into amifostine, has another name too, about 10 years ago, and deemed for myself it wasn’t for me, as it has many side effects. It’s given intravenously or orally. I forget which was better over the other. My cancer center had did studies with it, but I think it was stopped, before my time.
You can still ask about and research it as the dosage could have changed it.
Good luck
10/09 T1N2bM0 Tonsil 11/09 Taxo Cisp 5-FU, 6 Months Hosp 01/11 35 IMRT 70Gy 7 Wks 06/11 30 HBO 08/11 RND PNI 06/12 SND PNI LVI 08/12 RND Pec Flap IORT 12 Gy 10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux 10/13 SND 10/13 TBO/Angiograph 10/13 RND Carotid Remove IORT 10Gy PNI 12/13 25 Protons 50Gy 6 Wks Carbo 11/14 All Teeth Extract 30 HBO 03/15 Sequestromy Buccal Flap ORN 09/16 Mandibulectomy Fib Flap Sternotomy 04/17 Regraft hypergranulation Donor Site 06/17 Heart Attack Stent 02/19 Finally Cancer Free Took 10 yrs
| | | | Joined: Mar 2019 Posts: 28 Contributing Member (25+ posts) | OP Contributing Member (25+ posts) Joined: Mar 2019 Posts: 28 | After the feedback from doctors and everyone here went back and read those posts and YUCK! And seems no one clearly had any better outcomes than those who don’t get it. Moving on with mouth washes, diligent brushing and biotene.
Wife and cheerleader. Right sided BOT dx 2/25, surgery 3/7 for tumor removal (clean margins) 2 lymph nodes 1 pos for ECE (ugh), pT2N1M0 HPV POSITIVE (one small blessing in this nightmare), Stage changed to Stage 1 due to diffuse and large HPV status. tx plan 33 radiation, 5 cisplatin chemo to begin 4/12.
| | | | Joined: Jun 2007 Posts: 10,507 Likes: 6 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 6 | Heres some reading about the "new" Biotene we see on todays store shelves. Before you spend money on overpriced mouth rinses, read these posts!!! ....... OCF forum, Biotene ProductsOCF forum, Return of BiotenePS.... These links show what OCF's founder Brian Hill does behind the scenes every single day to helping thousands of OC patients and caregivers. ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | |
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