| | Joined: Sep 2018 Posts: 4 Member | OP  Member
Joined: Sep 2018 Posts: 4 | So the doctors prescribed Jevity 1.5 for my Mom's feeding tube feedings. Very very sadly, my Mom lost her battle with cancer just after we received a new shipment of food. Any ideas of what I can do with it? I hate to just throw it out but I've called the supplier, nursing homes, veteran's groups and hospice and no one can take it.
Ideas?
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Im very sorry for your loss.
Theres so many different formulas patients could be put on. We've had many similar posts over the years without any takers. Best thing to do is get in touch with the Oley Foundations Patient Exchange group. They match needy patients with donors. The person who wants the item covers the S&H costs (used to be about $16) and the item gets shipped to them. Its a very rare occurrence to have anyone local take the feeding tube extras. Hopefully thru the Oley Foundation you will find someone who needs your moms items.
PS... You called all the places I usually suggest. Unfortunately most of those places do not accept items anymore. The only other thing I could suggest would be to call local food banks, sometimes they take the formulas.
Last edited by ChristineB; 11-15-2018 02:22 PM.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | | | | Joined: Sep 2018 Posts: 4 Member | | OP Member
Joined: Sep 2018 Posts: 4 | Thank you, Christine. I'll try that route. And thank you for your condolences. It is a massive loss. | | | | | Joined: Oct 2012 Posts: 1,275 Likes: 7 Assistant Admin Patient Advocate (1000+ posts) | | Assistant Admin Patient Advocate (1000+ posts)
Joined: Oct 2012 Posts: 1,275 Likes: 7 | Sorry for your loss, Snowflake. I gave the formula to a local hospice. They were happy to take it.
Gloria
She stood in the storm, and when the wind did not blow her way, she adjusted her sails... Elizabeth Edwards
Wife to John,dx 10/2012, BOT, HPV+, T3N2MO, RAD 70 gy,Cisplatinx2 , PEG in Dec 6, 2012, dx dvt in both legs after second chemo session, Apr 03/13 NED, July 2013 met to lungs, Phase 1 immunotherapy trial Jan 18/14 to July/14. Taxol/carboplatin July/14. Esophagus re-opened Oct 14. PEG out April 8, 2015. Phase 2 trial of Selinexor April to July 2015. At peace Jan 15, 2016.
| | | | | Joined: Jun 2015 Posts: 29 Contributing Member (25+ posts) | | Contributing Member (25+ posts)
Joined: Jun 2015 Posts: 29 | I'm really very sorry about your mom's passing. It sounds like she did everything she could, and so did you. I'm wishing you and your family peace.
Mom (beautiful soul) 12/4/14 SCC L tongue (neg. biopsy 10/14);
1/8/15 hemiglossectomy/neck dissection: T3N1, extracapsular extnsn, PNI, pseudoglandular/spindle cell, margins not clr;
2/2/15 RT/carbo/taxol;
4/15/15 CT clr;
5/15 neuropathic/trigeminal pain/headaches;
6/15 recurrence flap margins/BOT; cancer encroaching skin
7/23/15 hemiglossectomy; clr margins & nodes
10/22/15 CT: nasopharyngeal tumor, jaw, and necrotic nodes; tumor under chin/corner of mouth
11/5/15 left cancer behind
| | | | | Joined: Jun 2017 Posts: 30 Contributing Member (25+ posts) | | Contributing Member (25+ posts)
Joined: Jun 2017 Posts: 30 | Snowflake,
I'm so sorry for you loss.
May these words help to sustain you, encourage your spirit and see you through this difficult time,
Susan
Susan
04.12.16 1st surgery; rt partial glossectomy; neck dissection; 2/38 lymph nodes positive
05.12.16 Resected T2, N2b, M0
05.24.16 Rad, Cisplatin
10.03.16 Clear PET
04.11.17 Clear PET
06.09.17 1st recur
06.21.17 2nd Surg: rt partial glossectomy; forearm free flap; rt thigh skin graft
11.09.17 2nd recur
11.30.17 Nivolumab
02.06-16.18 Brachytherapy
06.12.18 3rd recur
06.12.18 Lt axillary lymph node SCC
07.05.18 Pain pump placd
08.23.18 Pump removd
10.29.18 PET-CT responds to treatmnt
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