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How uncomfortable are trachs and NG feeding tubes? #197557
11-09-2018 10:20 AM
11-09-2018 10:20 AM
Joined: Nov 2018
Posts: 5
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Michelle S Offline OP
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Michelle S  Offline OP
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Joined: Nov 2018
Posts: 5
Hi all,

My mom has Stage 2 oral cancer...it has not spread to her LN but they are going to remove them as a precaution during her upcoming surgery. We are told she’ll have a temporary trach & NG feeding tube for a few weeks.

How comfortable / uncomfortable are these and can
She shower or bathe with them?

Thank you!


Thanks and best regards,
Michelle S
Re: How uncomfortable are trachs and NG feeding tubes? [Re: Michelle S] #197558
11-09-2018 01:43 PM
11-09-2018 01:43 PM
Joined: Jun 2013
Posts: 286
alabama
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KristenS Offline
Gold Member (200+ posts)
KristenS  Offline
Gold Member (200+ posts)
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Joined: Jun 2013
Posts: 286
alabama
I haven't had either of those, but I had a stomach feeding tube. I was able to bathe, carefully. If I recall correctly, I could even shower if I was really careful and wrapped up the opening and tube very well. I would imagine that bathing would be okay for the trach and nose feeding tube, since they would be easier to keep out of the water. Mobility (pain, basically) would be your first issue. Sorry I can't answer to that one, but someone should be able to help with that ... just wanted to make sure you had some sort of answer to start off with.


Surgery 5/31/13
Tongue lesion, right side
SCC, HPV+, poorly differentiated
T1N0 based on biopsy and scan
Selective neck dissection 8/27/13, clear nodes
12/2/13 follow-up with concerns
12/3/13 biopsy, surgery, cancer returned
1/8/14 Port installed
PEG installed
Chemo and rads
2/14/14 halfway through carboplatin/taxotere and rads
March '14, Tx done, port out w/ complications, PEG out in June
2017: probable trigeminal neuralgia
Fall 2017: HBOT
Jan 18: oral surgery
Re: How uncomfortable are trachs and NG feeding tubes? [Re: Michelle S] #197561
11-09-2018 06:23 PM
11-09-2018 06:23 PM
Joined: Jun 2017
Posts: 29
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Magnum Offline
Contributing Member (25+ posts)
Magnum  Offline
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Joined: Jun 2017
Posts: 29
Hi Michelle,

I currently have a feeding tube (stomach) and an open trach (stoma) and I'm able to shower without any issues. I do need to keep the stoma covered to avoid water getting inside (which causes you to cough since it's going into your lungs) but that's not too difficult to do - especially if they give you the "visor" that is used to help keep water out. My G tube only needs to be dried very well or you end up with granulation - which you need silver nitrate to get rid of (owe!).

I hope this helps somewhat...

Susan


Susan
04.12.16 1st surgery; rt partial glossectomy; neck dissection; 2/38 lymph nodes positive
05.12.16 Resected T2, N2b, M0
05.24.16 Rad, Cisplatin
10.03.16 Clear PET
04.11.17 Clear PET
06.09.17 1st recur
06.21.17 2nd Surg: rt partial glossectomy; forearm free flap; rt thigh skin graft
11.09.17 2nd recur
11.30.17 Nivolumab
02.06-16.18 Brachytherapy
06.12.18 3rd recur
06.12.18 Lt axillary lymph node SCC
07.05.18 Pain pump placd
08.23.18 Pump removd
10.29.18 PET-CT responds to treatmnt


Re: How uncomfortable are trachs and NG feeding tubes? [Re: Michelle S] #197831
01-24-2019 02:47 PM
01-24-2019 02:47 PM
Joined: Apr 2017
Posts: 61
Valdosta,Ga.,USA
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WendyinGa Offline
Supporting Member (50+ posts)
WendyinGa  Offline
Supporting Member (50+ posts)
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Joined: Apr 2017
Posts: 61
Valdosta,Ga.,USA
I had the feeding tube and the trach for a short period of time. The feeding tube was uncomfortable getting removed and put back in, but it was a godsend not having to swallow bland food or ensure, etc. I wish I had one before i basically starved myself with drinking ensure and boost. As for the trach. Looks disturbing. Not as bad as you think....After I learned how to cough out all that gunk in my lungs and throat by taking the cap off, It really was a breeze. It made breathing so easy. Although was not pleasant getting removed and itched like crazy afterwards, it also took a while to fully close.


04/21/17 Biopsy at ENT
04/25/17 Biopsy result SCC on left side tongue
04/27/17 CT Scans--shows shallow tumor
05/02/17 Pre-op
05/03/17 Surgery to remove tumor
05/08/17 Cancer still present
05/10/17 2nd surgery-
06/05/17 PET on 6th, RADS start on 06/20/17
07/11/17 Halfway point!
08/01/17 Last treatment
11/1/17 Cancer is back
11/15/17 Emory University surgery. neck dissection, left lymph nodes removed, tongue free flap from left arm with skin graft.

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