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| | Joined: Sep 2018 Posts: 9 Member | OP  Member
Joined: Sep 2018 Posts: 9 | My husband's biopsy last week revealed reoccurrence of oral cancer. His first cancer was 12 years ago. This reoccurrence is on the opposite side of his lateral tongue and seems to be much more aggressive than the first bout 12 years ago. Following treatment over a decade ago, the pet scan showed no cancer. We have an appointment with doctors Oct 8. Here we go again. | | | | | Joined: Mar 2011 Posts: 1,024 "OCF Kiwi Down Under" Patient Advocate (1000+ posts) | | "OCF Kiwi Down Under" Patient Advocate (1000+ posts)
Joined: Mar 2011 Posts: 1,024 | Hello, I'm just so sorry to read this. I guess treatments will be very similar to what he went through 12 years ago. Surgery, followed by radiation? Where is he being treated as this matters for outcomes. The big Comprehensive Cancer Centers - CCCs who treat hundreds of head&neck patients get the best outcomes. Maybe also consider getting a 2nd opinion before accepting a treatment plan. You have both done this before and you can do this again. I wish you both the best outcome.
Tammy
Caregiver/advocate to Husband Kris age 59@ diagnosis
DX Dec '10 SCC BOT T4aN2bM0 HPV+ve.Cisplatin x3 35 IMRT.
PET 6/11 clear.
R) level 2-4 neck dissection 8/1/11 to remove residual node - necrotic with NED
Feb '12 Ca back.. 3/8/12 total glossectomy/laryngectomy/bilat neck dissection/partial pharyngectomy etc. clear margins. All nodes negative for disease. PEG in.
March 2017 - 5 years disease free. Woohoo!
| | | | | Joined: Aug 2018 Posts: 345 Likes: 8 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Aug 2018 Posts: 345 Likes: 8 | Just wanted to comment and say hugs to you. Thinking of you and your husband and wishing the best.
Spouse of 58 yr old with BOT cancer
Stage 4a HPV16 positive
3 chemo treatments cisplantin
35 radiation treatments 7000 cGy
former smoker/chewed tobacco for 38 yrs.
1/2020 diagnosed with cancer near TMJ
4/2020 chemo 5 days every 2 weeks
6/2020 proton therapy
9/21/2020 cancer free
| | | | | Joined: Jan 2018 Posts: 15 Member | | Member
Joined: Jan 2018 Posts: 15 | So sorry to hear this. My wife and I will be praying for you guys. Stay tough... you can do this. Blessings, Bryan.
15 year survivor of tonsil cancer. In 2002 I was diagnosed with Stage III squamous cell carcinoma. I had a left neck dissection, teeth removed, and 38 radiation treatments. In 2015 I received a feeding tube and in 2016 a trach, both due to radiation side effects. But I'm happy to say that life has been good to me!!
| | | | | Joined: Oct 2018 Posts: 2 Member | | Member
Joined: Oct 2018 Posts: 2 | Just want to say hello and I am sorry you are going thru this. My husband was just diagnosed after 11 years (almost to the day) cancer free. He had stage 4 SSC at base of tongue. Had partial glossectomy, radical neck dissection chemo and rads. I know what you are going through. We are in week two of chemo and rads. At least the first time you didn't know what to be scared of. This time I know. I will be thinking of you and your husband. Take care.
Caregiver to husband cancer free for 11 years and now 9/2018 reoccurrance of base of tongue cancer.
| | | | | Joined: Sep 2018 Posts: 71 Likes: 1 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Sep 2018 Posts: 71 Likes: 1 | Sorry to hear of your husband's diagnosis. My tongue cancer was also quite aggressive so please make sure while calling for appointments you express this to them. (((Hugs)))
Laura Age 40
Tongue lesion on left side grew and was hurting in mid-August
Dx as squamous cell carcinoma on 9.18.18
Left Neck Dissection and tongue surgery, lost a fourth of my tongue on 10.1.18, tumor had grown to a T3
Margins were clear except front section of tongue margin had three stray cancer cells that were not in the tumor
Additional surgery 10.18.18 to remove another cm near where the stray cells were found
33 radiation treatments from Nov 2018 through Jan 2019
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