#1971 02-14-2004 12:41 PM | Joined: Nov 2002 Posts: 3,552 Patient Advocate (old timer, 2000 posts) |  Patient Advocate (old timer, 2000 posts)
Joined: Nov 2002 Posts: 3,552 | Hi Rosie, I just wanted to take the time to thank you for your continuing participation in the forum especially knowing that it must be very painful at times. You have a gift of dealing with the really tough subjects that frankly leave some of us speechless and pondering our own futures. My church has been praying for you and Cati for some time now and we think of Heather, you and her often. Heather and Cati's picture was shown during a message in October at my church and Dave (the pastor) was so struck by putting a face on cancer and it's consequences, that he spoke of the anger he has from the world taking things away, like Heather in a message about the 8th commandment (thou shalt not steal). If you would like to hear it go to: http://www.crosswindschurch.org/text/services/msg_woc.htm select-10/15/03 "The Eight Commandments" God bless you (and Cati)
Gary Allsebrook
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Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2
Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy)
________________________________________________________
"You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
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#1972 02-18-2004 05:04 PM | Joined: Oct 2002 Posts: 546 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Oct 2002 Posts: 546 | Michelle, If it is possible for you to post, I have been wondering how Marcy is doing. And also, how are you holding up? Gary, I am not a particularly religious person, but I do appreciate all the prayers that have been said for Heather and our family. I did listen to Dave's message and I would like to thank you for the link to it. I was wondering if I could have permission to record a copy to CD? I would like to keep it with some of Heather's things that I will be giving to Cati when she is older. Rainbows & hugs,  Rosie
Was primary caregiver to my daughter Heather who had stage IV base of tongue SCC w/ primary recurrence. Original diagnosis August 21st, 2002. Primary recurrence March 18th, 2003. Died October 6th, 2003.
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#1973 02-20-2004 06:44 AM | Joined: Oct 2003 Posts: 52 Supporting Member (50+ posts) | | OP Supporting Member (50+ posts)
Joined: Oct 2003 Posts: 52 | Rosie,
Marcy is in alot of pain, the tumor on her cervical spine is giving her the greatest amount of pain. They are going to check with Interventional Pain management today to see if she can get some kind of a injection in her cervical nerve root. She is also getting a feeding tube today. She has to have a open procedure as the doctors told her that her stomach is too flat to do it by scope. She can't get general anesthesia because they can't get any tubes down her throat and they can't bend her neck. I pray that she can get enough pain meds for this procedure. The tumors on the outside of her neck and throat continue to get bigger, she said she feels like she is being strangled. I can't believe there is nothing they can do to stop them. She is getting very tired of the pain and we are heartsick watching. She is so strong and she doesn't want to give up she just wants to feel good so she can be with Breanna and do the things that she loved doing. She would love nothing more then to just go on a shopping trip with me. Who would have ever thought that cancer would stop her from doing those things.. She wants to beable to go home for a few days and feel good enough to do something normal.
If things go ok with putting the feeding tube in and in the next few days she can go home they are sending her home without antibiotics because they told her she will get another infection and then they won't have anything left to fight it with.
I am holding up some only because things aren't real to me, I don't feel like this is really happening. If something does happen to Marcy I don't know how I will beable to deal with it. She means the complete world to me.
I am taking the next two weeks off from work to be with her.
I will be in touch when able.
Thank you for caring,
Michelle
Michelle, sister to Marcy
Dx January 03, partial glossectomy/selective neck dissection T2N1MO/recurrence June 03, radiation and chemo/recurrence Dec. 03 mets to spine and base of skull//palliative care//lost her April 10th 2004 Age of 32
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#1974 02-20-2004 07:24 AM | Joined: Aug 2003 Posts: 1,627 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Aug 2003 Posts: 1,627 | I am speechless Michelle, I have no idea what to say to you right now. I couldn't imagine losing my sister.
I, too, wish that Marcy could just have some time to do normal things. Myself and my family will be praying for her. Be strong, you are so needed right now.
Minnie
SCC Left Mandible. Jaw replaced with bone from leg. Neck disection, 37 radiation treatments. Recurrence 8-28-07, stage 2, tongue. One third of tongue removed 10-4-07. 5-23-08 chemo started for tumor behind swallowing passage, Our good friend and much loved OCF member Minnie has been lost to the disease (RIP 10-29-08). We will all miss her greatly.
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#1975 02-20-2004 07:53 AM | Joined: Jan 2004 Posts: 1,116 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jan 2004 Posts: 1,116 | Dearest Michelle, I too am speechless to hear of Marcy's pain and not be able to help in some way. All I can possibly suggest is look to the Lord, HE will never let you or Marcy down even during this time. I am so very sorry she is going through so much. I will be praying for her, you and your family.
Carol
Diagnosed May 2002 with Stage IV tongue cancer, two lymph nodes positive. Surgery to remove 1/2 tongue, neck dissection, 35 radiation treatments. 11/2007, diagnosed with cancer of soft palate, surgery 12/14/07, jaw split. 3/24/10, cancer on tongue behind flap, need petscan, surgery scheduled 4/16/10
---update passed away 8-27-11---
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#1976 02-20-2004 09:12 AM | Joined: Jul 2003 Posts: 1,163 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jul 2003 Posts: 1,163 | Dear Michelle,
There are no words I can say that can relieve your pain. Please know there are many members who are praying Marcy's suffering will lessen. She is lucky to have such a loving sister. I continue to pray for both of you.Please express my feeling's to Marcy and your family.
Your Friend, Dan
Daniel Bogan DX 7/16/03 Right tonsil,SCC T4NOMO. right side neck disection, IMRT Radiation x 33.
Recurrance in June 05 in right tonsil area. Now receiving palliative chemo (Erbitux) starting 3/9/06
Our good friend and loved member of the forum has passed away RIP Dannyboy 7-16-2006
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#1977 02-20-2004 11:11 AM | Joined: Oct 2016 Posts: 284 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Oct 2016 Posts: 284 | Michelle,
Not a day goes by that I have not said a prayer for you, Marcy and your family. My heart truly goes out to you all. If I can do anything at all for you please let me know. I cannot even begin to imagine what you are going through right now but please know that there are many people here for you if you need somebody to listen.
Danielle
Originally joined OCF on 12/12/03 as DaniO or Danijams
Dani-Mom SCC BOT & floor of mouth surgery-recur then surgery/rads & chemo completed 3/04
surgery 11/06 to remove dead bone & replace jaw w/ leg bone & titanium plate
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#1978 02-20-2004 11:51 AM | Joined: Jan 2004 Posts: 1,116 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jan 2004 Posts: 1,116 | Debbie, (Columbia, MD.) your husband's situation sounds very similar to mine. I was told I didn't fit the profile either, I was 44 when diagnosed with tongue cancer, non-smoker. I live in Bel Air, MD. when you mentioned the tumor board at U of MD, I just wanted to share that my surgeon and oncologist are both at Univ of Md and they have all taken excellent care of me. I am truly grateful to God and them, if you would like to email me sometime, here's the address: [email protected] Thanks, Carol I would enjoy chatting with you
Diagnosed May 2002 with Stage IV tongue cancer, two lymph nodes positive. Surgery to remove 1/2 tongue, neck dissection, 35 radiation treatments. 11/2007, diagnosed with cancer of soft palate, surgery 12/14/07, jaw split. 3/24/10, cancer on tongue behind flap, need petscan, surgery scheduled 4/16/10
---update passed away 8-27-11---
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#1979 02-20-2004 04:13 PM | Joined: Sep 2003 Posts: 139 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Sep 2003 Posts: 139 | Dear Michelle,
Know that you and Marcy remain in my prayers and that I wish only Love and Peace for you both.
God Bless
Judy U
Judy U
Stage I SCC floor of mouth, left radical neck dissection 8/03
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#1980 02-20-2004 04:52 PM | Joined: Oct 2002 Posts: 546 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Oct 2002 Posts: 546 | Dear Michelle, I am so sorry to hear that Marcy is in such pain. I was truly hoping her course would not parallel Heather's. If there is anything I can help you with, any questions I might be able to answer, please don't hesitate to ask. You can e-mail me privately if you wish. Just click on the 2nd icon at the top of this message. For now, I'm sending a big cyber-hug to you and Marcy. I think of you both every day. Rainbows & hugs, Rosie
Was primary caregiver to my daughter Heather who had stage IV base of tongue SCC w/ primary recurrence. Original diagnosis August 21st, 2002. Primary recurrence March 18th, 2003. Died October 6th, 2003.
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