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| Joined: Aug 2017 Posts: 2 Member | OP Member Joined: Aug 2017 Posts: 2 | This is my first post here, although I've been reading for months and find this forum most helpful I had a partial glosectomy (one third off) to remove tongue carcinoma and neck dissection on the left side on April this year Luckily no Rad nor chemo were needed But I have a constant electric feeling on the side of my tongue where surgery was done and for a month I am also dealing with several mucocele on that side too Would like to know if anyone had suffered those and wether surgery was needed or resolved on their own with time Also if the constan funny electrical taste (bearable) does eventually go away or I will need to get used to it Thank you so much for any experience sharing or advice Will be very much appreciated
Male 42 Scamous carcinoma left side tongue Stage 2 April 2017 partial glosectomy and neck dissection No rad or chemio Back to almost normal speech stil dealing with nerve damage in left arm
| | | | Joined: Sep 2016 Posts: 111 Senior Member (100+ posts) | Senior Member (100+ posts) Joined: Sep 2016 Posts: 111 | The "electric" feeling is probably nerve based. (Kind of like touching your tongue to both terminals of a 9 volt battery?) That would also be the reason behind the taste issues as well. Actually I'm a little surprised your not having similar issues with your neck from the dissection also. Like all nerve damage, it should resolve itself over time, but will annoy the heck out of you until then.
Double check with your surgeon just to be sure.
Good Luck
1997 SCC Tumor on tongue - Partial Gloss 1997 Met to Lymph Radical Neck Dissection / 2nd Partial Gloss 6 weeks chemo and radiation Brachytherapy 2011 Stroke 2014 Recurrence SCC at Base of Tongue / Hemi-gloss Free Flap reconstr from thigh PEG Tube Radiation Permanent Issues with speech and swallowing 2018 - Bleeding throat / mouth 2019 - Bleeding throat / mouth 2019 - 3rd diag Cancer SCC Base of mouth / jawbone 2019 - Aug remove portion of jaw / right pec det / free flap closure and tongue | | | | Joined: Aug 2017 Posts: 2 Member | OP Member Joined: Aug 2017 Posts: 2 | Thank you so much for taking your time to answer
The 9 volt battery is EXACTLY how I describe it (although I didn't know the correct translation to English) I told my doctor about it and kind of told me that it might be in my head.. I knew it wasn't and that is why I decided to write here in search of another patient who could validate the sensation as real So thank you for that!! (Doctors are great at their jobs but they have their tongues intact so they can't really relate)
As for the neck I do have restricted movement of the left arm as a result of the nerve damage, I've been told it can take up to a year or more.. in the meantime I’m going to physiotherapy rehabilitation trying not to loose more muscular mass.
3 months after surgery I started to have recurring mucoceles I don't know if this is typical after partial glosectomy but I sure hope they heal on their own - I'm not quite ready to have any kind of even minor surgery on my tongue any time soon
Male 42 Scamous carcinoma left side tongue Stage 2 April 2017 partial glosectomy and neck dissection No rad or chemio Back to almost normal speech stil dealing with nerve damage in left arm
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