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Therapeutic Neck and Shoulder stretches #194027
03-14-2017 01:33 AM
03-14-2017 01:33 AM
Joined: Feb 2007
Posts: 788
San Francisco,CA
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misskate Offline OP
"Above & Beyond" Member (500+ posts)
misskate  Offline OP
"Above & Beyond" Member (500+ posts)
M

Joined: Feb 2007
Posts: 788
San Francisco,CA
Hey everybody! So I am 10 years out and I still have a tenderness, pain and stiffness in my neck where I had the neck dissection.

I've been doing some massage with cranial sacral therapy and also have been making a big effort to stretch daily. It's made a big difference in my range of motion and relief of pain. The don't know why I haven't done it earlier! I have fallen off my weekly yoga because I am just really busy right now w work and my little boys but even dedicating 10 - 15 mins a day really targeting these specific areas is making a big difference for me 😌

Here are is a link to one I did tonight that felt amazing. All the ones with the yoga blocks feel sooo relaxing and good and really get deep into the muscles that are our trouble areas so I thought I would share them.

http://pin.it/MTkVW70
http://pin.it/jrPIU5T

I will be posting more on my Pinterest page as I come across them.

yoga for neck and shoulders-- http://pin.it/3atyMCh



Tongue Cancer T2 N0 M0 /
Total Glossectomy Due to Location of Tumor

Finished all treatments May 25 2007
Surviving!!!
Re: Therapeutic Neck and Shoulder stretches [Re: misskate] #194032
03-14-2017 07:26 AM
03-14-2017 07:26 AM
Joined: Sep 2016
Posts: 111
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bjmpittsburgh Offline
Senior Member (100+ posts)
bjmpittsburgh  Offline
Senior Member (100+ posts)
B

Joined: Sep 2016
Posts: 111
misskate -

Try stretching your neck while taking a hot shower. That seemed to work the best for me. (Also a great way to start the day!)


1997 SCC Tumor on tongue - Partial Glossectomy
1997 Met to Lymph
Radical Neck Dissection / 2nd Partial Glossectomy
6 weeks chemo and radiation
Brachytherapy
2011 Stroke
2014 Recurrence SCC at Base of Tongue / Hemi-glossectomy
Free Flap reconstruction from thigh
PEG Tube inserted
6 weeks radiation
Trisimus
Pump Feed
Permanent Issues with speech and swallowing
2018 - Bleeding from throat / mouth
2019 - Bleeding from throat / mouth
2019 - 3rd diagnosis Cancer SCC Base of mouth / jawbone
Re: Therapeutic Neck and Shoulder stretches [Re: misskate] #194033
03-14-2017 08:20 AM
03-14-2017 08:20 AM
Joined: Jun 2007
Posts: 10,409
PA
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ChristineB Offline
Administrator, Director of Patient Support Services
ChristineB  Offline
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)
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Joined: Jun 2007
Posts: 10,409
PA
Always great to see your posts, Kate smile Im so happy to hear you are doing so well with moving on since your battle 10 years ago. You are an inspiration to all of us who have gone thru treatments and learned to live with the after effects and late effects of OC and its brutal treatments. I hope you can make time to stop by more frequently.

Thank you for sharing your yoga poses with us smile


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
Re: Therapeutic Neck and Shoulder stretches [Re: misskate] #194187
04-19-2017 06:20 AM
04-19-2017 06:20 AM
Joined: Apr 2017
Posts: 1
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MtownCyclone Offline
Member
MtownCyclone  Offline
Member
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Joined: Apr 2017
Posts: 1
Thanks for this! I just joined to see if anyone else was having pain in their dissection area. I'm 7 months post treatment and about 1 year since last surgery. My neck has gotten progressively more sore around the dissection scar. I was starting to worry about recurrence. Should I be?

Re: Therapeutic Neck and Shoulder stretches [Re: MtownCyclone] #194188
04-19-2017 08:27 AM
04-19-2017 08:27 AM
Joined: Sep 2016
Posts: 111
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bjmpittsburgh Offline
Senior Member (100+ posts)
bjmpittsburgh  Offline
Senior Member (100+ posts)
B

Joined: Sep 2016
Posts: 111
MtownCyclone -

20 years out from neck dissection. The stiffness doesn't go away, you mostly just learn how to deal with it. I stretch everyday to loosen up the muscles. PT and acupuncture help somewhat also.

After completing my treatments in 97, my ENT said then that when cancer occurs in younger patients, (I was 31), oncologists were seeing a recurrence cycle between 15 and 20 years. He stressed to me the importance of monitoring my head and neck areas for any changes. [My recurrence was diagnosed17 years later.]

Just my history.......

You are your best advocate. You know what is right and when something is wrong. When its wrong, don't delay in getting yourself in front of the right ENT.

Good Luck and I hope that your current worries are just nerves and not something more troubling



1997 SCC Tumor on tongue - Partial Glossectomy
1997 Met to Lymph
Radical Neck Dissection / 2nd Partial Glossectomy
6 weeks chemo and radiation
Brachytherapy
2011 Stroke
2014 Recurrence SCC at Base of Tongue / Hemi-glossectomy
Free Flap reconstruction from thigh
PEG Tube inserted
6 weeks radiation
Trisimus
Pump Feed
Permanent Issues with speech and swallowing
2018 - Bleeding from throat / mouth
2019 - Bleeding from throat / mouth
2019 - 3rd diagnosis Cancer SCC Base of mouth / jawbone
Re: Therapeutic Neck and Shoulder stretches [Re: misskate] #194189
04-19-2017 09:11 AM
04-19-2017 09:11 AM
Joined: Oct 2012
Posts: 1,155
Toronto, Canada
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gmcraft Offline
Assistant Admin
gmcraft  Offline
Assistant Admin
Patient Advocate (1000+ posts)
G

Joined: Oct 2012
Posts: 1,155
Toronto, Canada
Hi Motown Cyclone,

Welcome to the forum. If you could briefly introduce yourself under the thread "Introduce Yourself" you may get more response from the members. This is an older post and your question may be overlooked by others who have information to share.


Gloria
She stood in the storm, and when the wind did not blow her way, she adjusted her sails... Elizabeth Edwards

Wife to John,dx 10/2012, BOT, HPV+, T3N2MO, RAD 70 gy,Cisplatinx2 , PEG in Dec 6, 2012, dx dvt in both legs after second chemo session, Apr 03/13 NED, July 2013 met to lungs, Phase 1 immunotherapy trial Jan 18/14 to July/14. Taxol/carboplatin July/14. Esophagus re-opened Oct 14. PEG out April 8, 2015. Phase 2 trial of Selinexor April to July 2015. At peace Jan 15, 2016.
Re: Therapeutic Neck and Shoulder stretches [Re: misskate] #194698
06-21-2017 01:26 PM
06-21-2017 01:26 PM
Joined: Apr 2016
Posts: 71
Massachusetts
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msweet2995 Offline
Supporting Member (50+ posts)
msweet2995  Offline
Supporting Member (50+ posts)
M

Joined: Apr 2016
Posts: 71
Massachusetts
Hi my name is Michele and it has been since 2009 since Radiation and this month noticed and increased stiffness in my neck where the scar is, sometimes I feel like choking. I have called my oncologist and he cannot see me until July 12th and trying to get in touch with the radiation oncologist that did the radiation. Very happy I am alive but very sad about the new problems I am having with my neck. Thanks to this site I have found out many things that a doctor fails to mention.


SCC 2005 floor of mouth and neck disection
SCC 2009 partial rt tongue RAD
PEG 2009
20 HBO treatments following surgery of three teeth and 10 more HBO to follow
2015 Diced food diet due to weak muscles long term effects of radiation
2018 Radiation Fibrosis of the jaw and neck, vocal cord dysfunction
Re: Therapeutic Neck and Shoulder stretches [Re: misskate] #194703
06-21-2017 05:38 PM
06-21-2017 05:38 PM
Joined: Jul 2012
Posts: 3,253
NYC
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PaulB Offline
Patient Advocate (old timer, 2000 posts)
PaulB  Offline
Patient Advocate (old timer, 2000 posts)
P

Joined: Jul 2012
Posts: 3,253
NYC
You're doing the right thing seeing your doctors for any problems lasting longer than two weeks, but I often waited even less than that. Hopefully, it's something minor, that can be helped with physical therapy or specific stretching exercises. You mention stiffness where the scar is, so I assume you may have had surgery? If so, you may want to add a visit with your ENT too.

I'll be starting PT soon myself for a few ailments.

Good luck


10/09 T1N2bM0 Tonsil
11/09 Taxo Cisp 5-FU, 6 Months Hosp
01/11 35 IMRT 70Gy 7 Wks
06/11 30 HBO
08/11 RND PNI
06/12 SND PNI LVI
08/12 RND Pec Flap IORT 12 Gy
10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux
10/13 SND
10/13 TBO/Angiograph
10/13 RND Carotid Remove IORT 10Gy PNI
12/13 25 Protons 50Gy 6 Wks Carbo
11/14 All Teeth Extract 30 HBO
03/15 Sequestromy Buccal Flap ORN
09/16 Mandibulectomy Fib Flap Sternotomy
04/17 Regraft hypergranulation Donor Site
06/17 Heart Attack Stent
02/19 Finally Cancer Free Took 10 yrs







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