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#193813 01-31-2017 01:18 AM
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Mandy Offline OP
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hello,im about to have my 3rd biopsy on my lower gum since last september,first result fungal infection,no cancer,2nd result granulated tissue,no cancer,now ent wants to biopsy the same area again,can biopsys get it wrong.i have no ear pain or discomfort but in saying that i am numb on that side since jaw removal 18 months ago.my gum is white patchs and doesnt look good,but wipes off and is just red and then white reappears again,any ideas


nov 2013 ssc of buccal mucosa stage 2
jan 2014 neck dissection because of cancer in lymphnodes
feb 2014 6 weeks of radiation
march 2015 tumour buccal mucossa stage 4
june 2015 lower jaw removed
nov 2015tumour in left node on neck
jan 2016 radiation and chemo to commence
Nov 2015 left deck dissesction,1 posative node
Mandy #193814 01-31-2017 05:04 AM
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Could it be thrush (Candida)?

Main OCF site -- Candida/thrush


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
Mandy #193828 02-02-2017 11:25 AM
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Can they do a culture test to rule out or confirm the type of infection for proper treatment, like thrush, as Christine mentioned, but the biopsy may confirm this?? I have numb lip, chin and jaw area from a segmental mandibularectomy done in September wheby the the jaw nerve was cut. I believe some biopsies can be wrong based on inadequate sampling, handling/human error, experience. I think that's why when I wanted a consult a top CCC they wanted my original biopsy slides, and another, do their own confirmation for treatment by direct biopsy.

Good luck


10/09 T1N2bM0 Tonsil
11/09 Taxo Cisp 5-FU, 6 Months Hosp
01/11 35 IMRT 70Gy 7 Wks
06/11 30 HBO
08/11 RND PNI
06/12 SND PNI LVI
08/12 RND Pec Flap IORT 12 Gy
10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux
10/13 SND
10/13 TBO/Angiograph
10/13 RND Carotid Remove IORT 10Gy PNI
12/13 25 Protons 50Gy 6 Wks Carbo
11/14 All Teeth Extract 30 HBO
03/15 Sequestromy Buccal Flap ORN
09/16 Mandibulectomy Fib Flap Sternotomy
04/17 Regraft hypergranulation Donor Site
06/17 Heart Attack Stent
02/19 Finally Cancer Free Took 10 yrs






PaulB #194296 04-28-2017 03:47 AM
Joined: Nov 2013
Posts: 34
Mandy Offline OP
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hello,about to have another biopsy on a ulcer under my tounge that hasnt healed.also pea size lump in my cheek where my tumour was,2 years since jaw removal and looks like its back again,so over this shitty disease,im not going to fall in a heap though,like you all say ,its not cancer until the biopsy says its cancer


nov 2013 ssc of buccal mucosa stage 2
jan 2014 neck dissection because of cancer in lymphnodes
feb 2014 6 weeks of radiation
march 2015 tumour buccal mucossa stage 4
june 2015 lower jaw removed
nov 2015tumour in left node on neck
jan 2016 radiation and chemo to commence
Nov 2015 left deck dissesction,1 posative node
Mandy #194300 04-28-2017 07:49 AM
Joined: Jun 2007
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Oh no, Mandy! Im so glad you are living by our mantra... "Its NOT cancer til the biopsy says its cancer". That will help make this a little easier to handle mentally.

Hopefully the lump where your jaw surgery was is just scar tissue and nothing serious. Wishing you all the very best with these 2 "spots". Please check back and tell us how you make out.

Best wishes!


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
Mandy #194307 04-29-2017 02:34 AM
Joined: Mar 2011
Posts: 1,024
"OCF Kiwi Down Under"
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"OCF Kiwi Down Under"
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Hi Mandy, oh I get how you are feeling, having been through a scare ourselves recently. You are absolutely right .

It is not cancer until a biopsy says it is.

Keep that mantra going in your head. Keep busy. Remember that this could be a number of different things .
Sending many positivel vibes and thoughts your way.
Tammy


Caregiver/advocate to Husband Kris age 59@ diagnosis
DX Dec '10 SCC BOT T4aN2bM0 HPV+ve.Cisplatin x3 35 IMRT.
PET 6/11 clear.
R) level 2-4 neck dissection 8/1/11 to remove residual node - necrotic with NED
Feb '12 Ca back.. 3/8/12 total glossectomy/laryngectomy/bilat neck dissection/partial pharyngectomy etc. clear margins. All nodes negative for disease. PEG in.
March 2017 - 5 years disease free. Woohoo!
Mandy #194621 06-10-2017 10:05 PM
Joined: Nov 2013
Posts: 34
Mandy Offline OP
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Posts: 34
hi all,results of biopsy came back negative for a reoccurence thank goodness,its frictional keratosis with ulceration,,,,how to fix it,have no idea,im already on nystatin,bicarb mix,salt and warm water,thrush lozengers,mouth wash,apple cider vinegar,,if any one has any ideas to help clear my mouth up would be greatly appreciated


nov 2013 ssc of buccal mucosa stage 2
jan 2014 neck dissection because of cancer in lymphnodes
feb 2014 6 weeks of radiation
march 2015 tumour buccal mucossa stage 4
june 2015 lower jaw removed
nov 2015tumour in left node on neck
jan 2016 radiation and chemo to commence
Nov 2015 left deck dissesction,1 posative node
Mandy #194622 06-11-2017 03:34 AM
Joined: Jun 2007
Posts: 10,507
Likes: 6
Administrator, Director of Patient Support Services
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Congrats on the great news! Im sure you must feel like the weight of the world is off your shoulders with the biopsy being negative for cancer.

What has your doc suggested to eliminate the frictional keratosis with ulceration?


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
Mandy #194624 06-11-2017 03:47 AM
Joined: Nov 2013
Posts: 34
Mandy Offline OP
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OP Offline
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Joined: Nov 2013
Posts: 34
just to keep doing what im doing,but nothing works,they told me to start taking nystatin permanently and just keep up good oral hygiene,but there is not much more i can do


nov 2013 ssc of buccal mucosa stage 2
jan 2014 neck dissection because of cancer in lymphnodes
feb 2014 6 weeks of radiation
march 2015 tumour buccal mucossa stage 4
june 2015 lower jaw removed
nov 2015tumour in left node on neck
jan 2016 radiation and chemo to commence
Nov 2015 left deck dissesction,1 posative node
Mandy #194625 06-11-2017 05:04 AM
Joined: Jun 2007
Posts: 10,507
Likes: 6
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)
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Posts: 10,507
Likes: 6
Do you use a waterpik? If not it would be a very good investment. I would use warm water with a few capfuls of non-alcohol mouthwash mixed in. Use the waterpik on its lowest setting to go between every one of your teeth. It definitely will help to keep your mouth nice and clean.


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile

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