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Re: The Hellion Passed Away [Re: OzMojo] #192155
04-02-2016 07:32 AM
04-02-2016 07:32 AM
Joined: Oct 2006
Posts: 383
Hamilton, Ohio
S
Steve F. Offline
Platinum Member (300+ posts)
Steve F.  Offline
Platinum Member (300+ posts)
S

Joined: Oct 2006
Posts: 383
Hamilton, Ohio
So sorry to hear this news. Prayers and condolences to Family and Friends.


SCC right side BOT/FOM; DX 1-25-06; Neck dissection/25% of tongue removed 2-17-06. Stage 2 Recurrence 7-06: IMRTX35 & 3X Cisplatin ended 10-18-06. Tumor found 03/18/13; Partial Glossectomy 03/28/13 left lateral tongue. Nov. 2014; headaches,lump on left side of throat. Radical Neck Dissection 12-17-14; Tumor into nerves/jugular; Surgery successful, IMRTX30 & 7X Erbotux. Scan 06-03-15; NED! 06-02-16; Mets to left Humerus bone and lesion on lungs-here We go again! Never, Ever Give Up!

**** PASSED AWAY 10/8/16 ****

Re: The Hellion Passed Away [Re: OzMojo] #192248
04-13-2016 08:57 PM
04-13-2016 08:57 PM
Joined: Jan 2013
Posts: 1,291
CA - SF Bay Area
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donfoo Offline
Patient Advocate (1000+ posts)
donfoo  Offline
Patient Advocate (1000+ posts)
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Joined: Jan 2013
Posts: 1,291
CA - SF Bay Area
My heart skipped when the message topic flashed by while onto another topic. Instant click back here and so very sad to hear he lost the war. He fought each battle with courage, an example to us all how to fight and never give in. I pray for the peace and serenity I know he now enjoys.


Don
Male, 57 - Great health except C
Dec '12
DX: BOT SCC T2N2bMx, Stage 4a, HPV+, multiple nodes
1 tooth out
Jan '13
2nd tooth out
Tumor Board -induction TPF (3 cycles), seq CRT
4-6/2013
CRT 70gr 2x35, weekly carbo150
ended 5/29,6/4
All the details, join at http://beatdown.cognacom.com
Re: The Hellion Passed Away [Re: OzMojo] #192280
04-18-2016 08:57 PM
04-18-2016 08:57 PM
Joined: Aug 2011
Posts: 596
MA
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Kerri Offline
"Above & Beyond" Member (500+ posts)
Kerri  Offline
"Above & Beyond" Member (500+ posts)
K

Joined: Aug 2011
Posts: 596
MA
Dearest OCF Friends,

I am heartbroken to hear of The Hellion's passing, as we all feel the same.

His spirit and determination to go on with life and enjoy the important things like holidays, family, and friends was admirable, especially in the face of what this horrible disease was doing to his body.

I followed his posts all along and he was so gracious to keep us posted (so eloquently, I might add!). It was as though I could hear his British gentleman's voice in his writings. Hellion was brave in the face of his situation.

It seemed as though things were going so well for a while. I was shocked and fearful for him when I learned of all of the mets that he had developed seemingly out of nowhere. Cancer can be relentless, it's maddening! I was so hopeful for one of our trailblazers who was bravely undergoing new and promising treatments. Those like The Hellion will that the medical oncology community, research scientists, and pharmaceutical companies could glean from his participation in clinical trials.

I offer my deepest condolences to his friends here on the OCF Forums and to his family, wife, and children.

Another beautiful person taken too soon by this disease. May we honor his memory and all of those who passed before him by continuing OCF's Mission and Vision!

Love in OCF,
Kerri



37 y/o fem at Dx (23 wks preg @ dx on 3/16/11)
SCC L oral tongue (no risk factors)
L partial gloss/MND 3/28/11 @ 25 wks preg
T1-2N0M0; no rads/chemo
Tonsillectomy on 8/6/12 +SCC L tonsil T2-3N1M0 (HPV-)
Treated with 35 rads/7 carbo & taxol (Rx ended 10/31/12), but many hospitalizations d/t complications from rx.
Various scans since rx ended are NED!
Part of genetic study for rare cancers @ MGH.
44 years old now...I wasn't sure I would make it! Hoping for 40 more!
Re: The Hellion Passed Away [Re: OzMojo] #192321
05-01-2016 06:25 AM
05-01-2016 06:25 AM
Joined: Mar 2014
Posts: 286
Brisbane, Australia
O
OzMojo Offline OP
"OCF Down Under"
OzMojo  Offline OP
"OCF Down Under"
Gold Member (200+ posts)
O

Joined: Mar 2014
Posts: 286
Brisbane, Australia
Hellion(Thom)'s wife Mary wrote to me earlier today, thought I'd share it with you. Mary has been amazing through the whole journey. We do hope to meet her one day, we will shower her with hugs.

Yesterday, April 30, we had a celebration of Thom's life. I brought plenty of liquor and had a caterer make a lot of foods Thom would have liked. So many people came to share a story of him. It was so nice to see. It felt like a good way to say goodbye. I'm sitting here watching English Premier League soccer (Thom's team is West Ham United) and I'm thinking about all the good he brought to the world. There were so many people who were touched by him, who cared about him and will genuinely miss him. It was a good day. I wish you guys were here with us, you would have enjoyed it.


Cheers, Dave (OzMojo)
19Feb2014 Diagnosed T2N2bM0 P16+ve SCC Tonsil.
31Mar2014 2 Cisplatin, 70gy over 7 weeks (completed 16May2014)
11August2014 PET/CT clear.
17July2019 5 years NED.
Re: The Hellion Passed Away [Re: OzMojo] #192322
05-01-2016 07:43 AM
05-01-2016 07:43 AM
Joined: Jun 2007
Posts: 10,500
PA
C
ChristineB Offline
Administrator, Director of Patient Support Services
ChristineB  Offline
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)
C

Joined: Jun 2007
Posts: 10,500
PA
Thank you for sharing this Dave!!! Thom is truly missed here on the forum. We lost part of our online family, which is never easy.


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
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