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Joined: Feb 2016
Posts: 1
nigela Offline OP
OP Offline

Joined: Feb 2016
Posts: 1
Hi I have hard node at left side of neck where my tonsil is enlarged at that side. Fell chocking feeling when going to sleep. also hurts to swallow. had lots of ear pains for past 3 years told its nothing! had lot of ear infections and small red spot and fluid remains. Small amount weight loss and night sweats and now enlarged group nodes top of leg with ultrasound. they feel tender too. Worried. Gp sjut said be nothing! My ear hurts if I press the node in neck which feels hard. Would it swell up a lot more if was serious?

Joined: Mar 2011
Posts: 1,024
"OCF Kiwi Down Under"
Patient Advocate (1000+ posts)
"OCF Kiwi Down Under"
Patient Advocate (1000+ posts)

Joined: Mar 2011
Posts: 1,024
If this was me or a Family member I would get to an ENT specialist. One that specialises in head and neck cancers, not just ears and grommets for kids.
This way you can get an appropriate check and hopefully reassurance.
Good luck. Tammy

Caregiver/advocate to Husband Kris age 59@ diagnosis
DX Dec '10 SCC BOT T4aN2bM0 HPV+ve.Cisplatin x3 35 IMRT.
PET 6/11 clear.
R) level 2-4 neck dissection 8/1/11 to remove residual node - necrotic with NED
Feb '12 Ca back.. 3/8/12 total glossectomy/laryngectomy/bilat neck dissection/partial pharyngectomy etc. clear margins. All nodes negative for disease. PEG in.
March 2017 - 5 years disease free. Woohoo!
Joined: Aug 2011
Posts: 596
"Above & Beyond" Member (500+ posts)
"Above & Beyond" Member (500+ posts)

Joined: Aug 2011
Posts: 596
My dear, I am shocked and saddened to hear that your GP has dismissed these findings and complaints that are big red flags. As Tammy suggested, get thyself to a head and neck oncologist ASAP.

You also need to have the enlarged nodes in your leg evaluated, as well!

It's hard exactly where to steer you as you have not filled in your signature, which can be done at the drop down menu at the top of this page and select "edit profile".

I wish you all the best in getting to a qualified professional swiftly.

Please come back to keep us posted and to get any help that you may need.

Best wishes!

37 y/o fem at Dx (23 wks preg @ dx on 3/16/11)
SCC L oral tongue (no risk factors)
L partial gloss/MND 3/28/11 @ 25 wks preg
T1-2N0M0; no rads/chemo
Tonsillectomy on 8/6/12 +SCC L tonsil T2-3N1M0 (HPV-)
Treated with 35 rads/7 carbo & taxol (Rx ended 10/31/12), but many hospitalizations d/t complications from rx.
Various scans since rx ended are NED!
Part of genetic study for rare cancers @ MGH.
44 years old now...I wasn't sure I would make it! Hoping for 40 more!

Moderated by  Brian Hill 

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