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#19074 11-26-2005 06:59 PM | Joined: Mar 2003 Posts: 1,384 Likes: 1 Patient Advocate (1000+ posts) | OP  Patient Advocate (1000+ posts)
Joined: Mar 2003 Posts: 1,384 Likes: 1 | reiki2
Member
Member # 2543
posted November 25, 2005 02:45 PM
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Hello, I am new to this forum and have lot's of questions. Hope everyone had a nice holiday!
My dear uncle just had surgery 2 weeks ago for his stage 4 mouth cancer. They ended up removing his jaw, lymph nodes of the neck and more than 1/2 his tongue. He said he will be on a feeding tube the rest of his life. The doctors said he wouldn't be able to talk and he can. Is there a chance that he may be able to eat? He will be going through radiation in a few weeks, I know this is going to be hell. I will be spending a few weeks with him (I'm from out of town) any words of advice on how to help him through this? Thank you in advance for your time.
Kim
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Posts: 1 | From: NH | Registered: Nov 2005 | IP: Logged
Mark, 21 Year survivor, SCC right tonsil, 3 nodes positive, one with extra-capsular spread. I never asked what stage (would have scared me anyway) Right side tonsillectomy, radical neck dissection right side, maximum radiation to both sides, no chemo, no PEG, age 40 when diagnosed.
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#19075 11-28-2005 12:58 PM | Joined: Dec 2003 Posts: 528 "OCF Down Under" "Above & Beyond" Member (500+ posts) | | "OCF Down Under" "Above & Beyond" Member (500+ posts)
Joined: Dec 2003 Posts: 528 | Hello Kim
Welcome to the site. You will find so much help and support here in your role as caregiver for your uncle. I can't help with tongue or jaw surgery questions but others can.
As far as radiation goes, patients seem to have various experiences. My radiation was drama-free. I focused all my positive energy on each days treatment, used visualisation during the treatment, rested, slept and generally obeyed doctors recommendations. I couldn't and didn't want to talk much.
Please let us know how your uncle progresses, love from Helen
RHTonsil SCC Stage IV tx completed May 03
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