| Joined: Apr 2016 Posts: 75 Likes: 2 Supporting Member (50+ posts) | OP Supporting Member (50+ posts) Joined: Apr 2016 Posts: 75 Likes: 2 | Hi all well I got good news from a local oncologist and no cancer for the third time, but when I complained about the doctor in boston they cancelled my six month appointment, so it looks like I have no doctor in Boston. Also, for the past two days I have had chills and my right side of back/lungs hurt, who do I call to see if this is aspiration, I don't know if I should go through my local doctor or oncologist, very frustrated but at least no cancer, thanks Michele
SCC 2005 floor of mouth and neck disection SCC 2009 partial rt tongue RAD PEG 2009 20 HBO treatments following surgery of three teeth and 10 more HBO to follow 2015 Diced food diet due to weak muscles long term effects of radiation 2018 Radiation Fibrosis of the jaw and neck, vocal cord dysfunction
| | | | Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Dec 2003 Posts: 2,606 Likes: 2 | You should schedule a swallow study through your main oncologist. If they can't, go to the cancer center that treated you.
SCC Stage IV, BOT, T2N2bM0 Cisplatin/5FU x 3, 40 days radiation Diagnosis 07/21/03 tx completed 10/08/03 Post Radiation Lower Motor Neuron Syndrome 3/08. Cervical Spinal Stenosis 01/11 Cervical Myelitis 09/12 Thoracic Paraplegia 10/12 Dysautonomia 11/12 Hospice care 09/12-01/13. COPD 01/14 Intermittent CHF 6/15 Feeding tube NPO 03/16 VFI 12/2016 ORN 12/2017 Cardiac Event 06/2018 Bilateral VFI 01/2021 Thoracotomy Bilobectomy 01/2022 Bilateral VFI 05/2022 Total Laryngectomy 01/2023
| | | | Joined: Apr 2016 Posts: 75 Likes: 2 Supporting Member (50+ posts) | OP Supporting Member (50+ posts) Joined: Apr 2016 Posts: 75 Likes: 2 |
SCC 2005 floor of mouth and neck disection SCC 2009 partial rt tongue RAD PEG 2009 20 HBO treatments following surgery of three teeth and 10 more HBO to follow 2015 Diced food diet due to weak muscles long term effects of radiation 2018 Radiation Fibrosis of the jaw and neck, vocal cord dysfunction
| | | | Joined: Dec 2010 Posts: 5,260 Likes: 3 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | "OCF Canuck" Patient Advocate (old timer, 2000 posts) Joined: Dec 2010 Posts: 5,260 Likes: 3 | Your family dr. might be the fastest person to see - sounds like you have maybe bronchitis or pneumonia or some kind of an infection. I would also get back on the horn to whoever cancelled your appointment and push for a referral to another dr. It's irresponsible to cancel an important check up without having another one in place. They should know that. they deal with people all the time. Certainly they know that not all patients and drs jive.
Hugs.
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | |
Forums23 Topics18,168 Posts196,927 Members13,104 | Most Online458 Jan 16th, 2020 | | | |