| | Joined: Dec 2014 Posts: 13 Member | OP  Member
Joined: Dec 2014 Posts: 13 | Hi all-
My husband isn't using Jevity any more, and we have a full case - 1.5cal.
We're in Flower Mound, if anyone wants to come get it, it's all yours! Let me know - thanks!
Wife to patient with poorly differentiated, non-keratinized, squamous cell carcinoma in one tonsil. Stage 4. T2N2 with metastisation to three lymph nodes of the left neck.
Dx Nov '14
Tonsillectomy and neck dissection Nov '14
Chemo (cisplatin) & radiation started 12/10/14
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Thanks for being so generous! For the under or un-insured cases of formula can cost hundreds of dollars depending on the type of formula. With so many different kinds out there, if you dont find any takers, you can always contact the Oley Foundation. They run a patient exchange program to connect those in need with the people who have leftovers. The person who needs the item simply mails the sender a check or money order to cover the cost of shipping the item. Ive used them several times myself. Very easy and helps alot of people who really need a hand. The Oley Foundation Exchange Program
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | | | | Joined: Apr 2014 Posts: 236 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Apr 2014 Posts: 236 | I have two cases of 2Cal and one case of Jevity. Is there anyone in or around the New Orleans area who would want it. Or maybe a Cancer Organization who would take this donation. Would anyone know who I can call to offer this to. Heidi
Sweetpe
Caregiver
RE:My Mother
Age 70
Non Smoker
SCC 3/4/2014 Left rear jaw
Mandiblctmy 3/25/2014
35RAD Completed on 06/03/2014
MRI 9/3/2014
25mm lobulated recurrence left mandible/floor of mouth carcinoma
9/23/14 Salvage Surgery
MET(s)
9/23/14 Salvage Surgery Not Successful
Chemo Recommended
1st Round of Cisplatin Chemo Started 10/20/14
Cisplatin stopped 11/20/14. Side affects to bad.
Chemo started again 1/22/15 Carbo/Docetaxel
Passed Away April 22,2015
| | | | | Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | Personally, I donate everything I can to VNA, the Visiting Nurses Association, mostly because I had some friends working there when their corporate offices were in KC, but also because of the tremendous love and support they showed me during the end stages of my mother's life.
(504) 282-2007 is the New Orleans number.
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
| | | | | Joined: Jan 2015 Posts: 37 Contributing Member (25+ posts) | | Contributing Member (25+ posts)
Joined: Jan 2015 Posts: 37 | Heidi, that is so wonderful of you to do this after losing your mother. According to the SPOHNC site, they have a chapter in Baton Rouge. Perhaps someone there would be willing to come pick it up or pay the shipping charges. You could ask at [email protected]There is probably a branch of the American Cancer Society in New Orleans but in case you would prefer that it go to someone with oral cancer I suggested SPOHNC.
Andrew
4x survivor
1998 - SCC of larynx
...laryngectomy, tracheotomy, radiation, caries, HBO, teeth extr, TEP
2002 - lung cancer, wedge resection
2014 - SCC of BOT, pharynx, oropharynx, HPV-, stage IV, T2N0MX, invasive, poorly differentiated
...chemo (carboplatin, taxol), dc'd due to neuropathy
2015 - SCC of palate
...Feb-April IMRT (46 x 70 Gy)
...Jan 2015 - May 2016 cetuximab 500 mg q week x 55wks
2016 - metastases to mediastinum, lungs, spleen, pancreas
...Aug-? pembrolizumab q 3 wks
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | In my previous post, the Oley Foundation runs a patient exchange program. They match donors with those who are in need of feeding formulas and accessories. The Oley Foundation Exchange Program
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | |
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