| | Joined: Apr 2015 Posts: 5 Member | OP  Member
Joined: Apr 2015 Posts: 5 | Hi everyone! I am new to this forum. Don't know why it took me a year to join but here I am. Recently passed the 1-year anniversary of the beginning of the journey, and my how my perspective has changed. Finished treatment in mid-July. Battled fatigue for quite some time. Feeling more energized now. First scans in Oct '14 came back "NED". Next set of scans in two weeks. I've learned to roll with the punches! Happy to be here.
Patrick (49 yrs young)
SCC of Right Tonsil, T2N2M0, Stage IVa
3/4/14 Partial Neck Dissection
3/11/14 Transoral Robotic Surgery(TORS) - radical tonsillectomy, partial pharyngectomy
Proton radiation - 6 weeks ending 7/10/14
Marine Corps Veteran
Active sports and fitness enthusiast
| | | | | Joined: Mar 2011 Posts: 1,024 "OCF Kiwi Down Under" Patient Advocate (1000+ posts) | | "OCF Kiwi Down Under" Patient Advocate (1000+ posts)
Joined: Mar 2011 Posts: 1,024 | Hello Patrick. Welcome to this very supportive and informative group.
It sounds like you are doing well. Thinking positively for you next scan,
Tammy
Caregiver/advocate to Husband Kris age 59@ diagnosis
DX Dec '10 SCC BOT T4aN2bM0 HPV+ve.Cisplatin x3 35 IMRT.
PET 6/11 clear.
R) level 2-4 neck dissection 8/1/11 to remove residual node - necrotic with NED
Feb '12 Ca back.. 3/8/12 total glossectomy/laryngectomy/bilat neck dissection/partial pharyngectomy etc. clear margins. All nodes negative for disease. PEG in.
March 2017 - 5 years disease free. Woohoo!
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 6 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 6 | Welcome to OCF! Glad you found our group to help you with info and support. Great work on your signature! Thanks!!!
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | | | | Joined: Mar 2015 Posts: 55 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Mar 2015 Posts: 55 | Hi Patrick. I've only been a member for eight days, and have already found a lot of support here. My diagnosis is pretty similar to yours, as is the treatment plan. But I'm a year behind you so will be really interested in your experiences. Welcome to the group.
Peter, age 62 at Dx
3/27/15 Dx T2N2aM0 Tonsilar P16+ G3 SCC
4/6/15 Full PET clear except for above
4/24/15 TOLM tonsillectomy/clear margins. Neck dissection 20 nodes (1 w/cancer & extracapsular extension)
5/28/15 PEG in
5/27 - 7/10/15 Daily Radiation to 66 units cumulative; Cisplatin weekly X 7
8/24/15 PEG out
9/24/15 Full body PET - N.E.D.
12/22/15 CT and physical exam. Continued clear.
3/11/16 Physical exam. Continued clear.
7/12/16 One year post-treatment! CT clear.
7/7/17 2 years post - still clear
| | | | | Joined: Jun 2007 Posts: 595 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jun 2007 Posts: 595 | Hi, You will find lots of support here just watch your 6 and keep in the recon mode to keep this in check. Keep up the good fight!! Semper-Fi Bob
Bob age 57, non smoker,non drinker, ended treatment on 11 Nov 2007 and started back to work on 29 Nov 2007. Veterans Day 2012 the Battle was lowered, folded, Taps was played and the Flag buried as I am know a 5 year survivor. Semper-FI !!!
| | | | | Joined: May 2013 Posts: 134 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: May 2013 Posts: 134 | Semper Fi!
Warrior in every sense of the word
Dx March 2011 via FNA (49 yrs old)
SCC BoT
HPV+ exact strain unknown
Stage IVa T3N2cM0
Cisplatin x 3, IMRT x 40 (7267 cGy)
One node removed post-treatment (rad dmg)
Clean PET 10/28/11
Swallow therapy
| | | | | Joined: Apr 2015 Posts: 5 Member | | OP Member
Joined: Apr 2015 Posts: 5 | PJE -
I am happy to discuss my treatment in detail if you have any questions. I will say that reading patient forums early on scared the hell out of me early on. Treatment options have really changed quite a bit over the past 5-10 years so do your homework. Compared to many others, my treatment was easy. I had robotic tonsillectomy and 6 weeks of proton rads. There are still side effects with protons but, generally, not as severe as IMRT. Hit me up if I can help.
Patrick (49 yrs young)
SCC of Right Tonsil, T2N2M0, Stage IVa
3/4/14 Partial Neck Dissection
3/11/14 Transoral Robotic Surgery(TORS) - radical tonsillectomy, partial pharyngectomy
Proton radiation - 6 weeks ending 7/10/14
Marine Corps Veteran
Active sports and fitness enthusiast
| | | | | Joined: Apr 2015 Posts: 5 Member | | OP Member
Joined: Apr 2015 Posts: 5 | Thanks to all for your welcome messages! I'm happy to be living the new "normal".
Semper Fidelis!
Patrick (49 yrs young)
SCC of Right Tonsil, T2N2M0, Stage IVa
3/4/14 Partial Neck Dissection
3/11/14 Transoral Robotic Surgery(TORS) - radical tonsillectomy, partial pharyngectomy
Proton radiation - 6 weeks ending 7/10/14
Marine Corps Veteran
Active sports and fitness enthusiast
| | | | | Joined: Jan 2013 Posts: 1,291 Likes: 1 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jan 2013 Posts: 1,291 Likes: 1 | Welcome Patrick!
This is a unique and wonderful place to receive and share support and experiences. It only exists with active members so each one is valued.
Glad you joined and welcome to this special club. Don
Don Male, 57 - Great health except C Dec '12 DX: BOT SCC T2N2bMx, Stage 4a, HPV+, multiple nodes 1 tooth out Jan '13 2nd tooth out Tumor Board -induction TPF (3 cycles), seq CRT 4-6/2013 CRT 70gr 2x35, weekly carbo150 ended 5/29,6/4 All the details, join at http://beatdown.cognacom.com | | | | | Joined: Sep 2013 Posts: 105 "OCF Canuck" Senior Member (100+ posts) | | "OCF Canuck" Senior Member (100+ posts)
Joined: Sep 2013 Posts: 105 | Hi Patrick! Its a great group, there is always someone here to answer or listen compassionatly.
husband 61@diagnosis painter
6/9/13 Exophylic invasive SCC IV(ext.gingivobuccal) 3cm+ mandibular/lytic/erosion, jugular/node9mmshort-axis
17/9/13 Dx(moderately aggressive)
24/10/13 left madiblectomy, mod radical neck disct, leg flap, NGtube
2/01/14 (30 tx)rads 60gy
N2b (2nodes under jaw) (rem. in tiny nerves) (rem. 30 nodes)
Clear margin, close 2mm inner cheek
15/05/14 cellulitis
3/12/14 Chest CT Clear
27/02/15 cellulitis
8/6/15 cellulitis
10/6/15 Osteomyelitis
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