| | Joined: Mar 2011 Posts: 1,024 "OCF Kiwi Down Under" Patient Advocate (1000+ posts) |  "OCF Kiwi Down Under" Patient Advocate (1000+ posts)
Joined: Mar 2011 Posts: 1,024 | Brandon, you can do this. I know there are a lot of what ifs and maybes, but it
will all go well. Kris had an awake intubation for his first neck dissection. He doesn't really remembered it thanks to the drugs - Midazolam. This surgery too was post the radiation. Make sure you get onto the physiotherapy as soon as you can. This will really help those neck and shoulder muscles get back working again.
Thinking of you,
Tammy
Caregiver/advocate to Husband Kris age 59@ diagnosis
DX Dec '10 SCC BOT T4aN2bM0 HPV+ve.Cisplatin x3 35 IMRT.
PET 6/11 clear.
R) level 2-4 neck dissection 8/1/11 to remove residual node - necrotic with NED
Feb '12 Ca back.. 3/8/12 total glossectomy/laryngectomy/bilat neck dissection/partial pharyngectomy etc. clear margins. All nodes negative for disease. PEG in.
March 2017 - 5 years disease free. Woohoo!
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | The anesthesiologist has a few ways to put patients to sleep, even those with limited mouth openings. Im in that category and have had countless surgeries. In my case the doc uses a tiny tube to go up thru my nose to knock me out. Its a very simple procedure. Im sure this wont be a major obstacle for your surgery.
Wishing you all the best with your surgery.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | | | | Joined: Jul 2012 Posts: 3,267 Likes: 4 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jul 2012 Posts: 3,267 Likes: 4 | Good luck with your surgery! I'll be having mine tomorrow too. Twice the anesthesiologist had to intubate me through the nostrils due to trismus. I was also scheduled for a MRND my first dissection, and they had to do a radical due to everything being all twisted up from prior radiation. Even with that I was still able to lift my arms overhead, after healing, until later surgeries and additional radiation. Sometimes the stitches are kept in longer in the radiated tissue due to delayed healing, sometimes 2 weeks longer than the usual 7.
10/09 T1N2bM0 Tonsil
11/09 Taxo Cisp 5-FU, 6 Months Hosp
01/11 35 IMRT 70Gy 7 Wks
06/11 30 HBO
08/11 RND PNI
06/12 SND PNI LVI
08/12 RND Pec Flap IORT 12 Gy
10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux
10/13 SND
10/13 TBO/Angiograph
10/13 RND Carotid Remove IORT 10Gy PNI
12/13 25 Protons 50Gy 6 Wks Carbo
11/14 All Teeth Extract 30 HBO
03/15 Sequestromy Buccal Flap ORN
09/16 Mandibulectomy Fib Flap Sternotomy
04/17 Regraft hypergranulation Donor Site
06/17 Heart Attack Stent
02/19 Finally Cancer Free Took 10 yrs
| | | | | Joined: Jan 2015 Posts: 15 Member | | Member
Joined: Jan 2015 Posts: 15 | Thank you Paul I wish everything goes as planned with your surgery as well, and for it to be as smooth sailing as possible, my ENT said that he will keep staples and stitches in for 10 days due to the slower healing process this time around. May the lord clear us from this disease for once and for all! You're a soldier for having to deal with it 7x and keeping strong! I'm hoping I can due the overhead motions as well and that the Cancer didn't spread to the nerve of the shoulder.
Male, 23 year old�Dx 6/17/14 with SCC R Lateral tongue
CT scan clear lymph nodes 6/20/14
HPV-, form-smoker, casual drinker
Right Hemiglossectomy Surgery 6/24/14
(Not reccurrence but went to NCCC instead)
Right neck diss., trach, radial free flap, right tongue diss. surg 8/11/14
PT1N2B..3 positive lymph nodes out of 13
Extranodal extension present
9-15-14 IMRT (35x) and Cisplatin (2x) begun
10-21-14 peg in. 11-4-14 IMRT rx comp. 1-9-15 peg out
3-27-15 Recurrent tumor in lymph node, Left neck diss.
10-29-15 passed away
| | | | | Joined: Jan 2015 Posts: 15 Member | | Member
Joined: Jan 2015 Posts: 15 | Virgo my surgery will start at 7:30 a.m. Eastern Time Tomorrow morning and should take about 4 hours. Thank you for the candle lighting and prayers ahead of time, they are greatly appreciated!
And thank you for the self esteem boost, the thoughts and support that you all have given me. May you have success in all of your future endeavors. My sister will keep you updated on how the surgery goes.
Male, 23 year old�Dx 6/17/14 with SCC R Lateral tongue
CT scan clear lymph nodes 6/20/14
HPV-, form-smoker, casual drinker
Right Hemiglossectomy Surgery 6/24/14
(Not reccurrence but went to NCCC instead)
Right neck diss., trach, radial free flap, right tongue diss. surg 8/11/14
PT1N2B..3 positive lymph nodes out of 13
Extranodal extension present
9-15-14 IMRT (35x) and Cisplatin (2x) begun
10-21-14 peg in. 11-4-14 IMRT rx comp. 1-9-15 peg out
3-27-15 Recurrent tumor in lymph node, Left neck diss.
10-29-15 passed away
| | | | | Joined: Jan 2006 Posts: 756 Likes: 1 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jan 2006 Posts: 756 Likes: 1 | Brandon,
I've been reading your recent posts and had heard of your situation initially through your sister. Sorry I didn't comment sooner to welcome you to the forum, but I have been keeping you in my prayers since the beginning.
I'm really sorry you are facing more surgery. It sounds like you have a great group of doctors and an awesome family - both key to helping you get through this.
Wishing you the best tomorrow. I will be watching for an update from your sister.
Susan
SCC R-Lateral tongue, T1N0M0
Age 47 at Dx, non-smoker, casual drinker, HPV-
Surgery: June 2005
RT: Feb-Apr 2006
HBOT: 45 in 2008; 30 in 2013; 30 in 2022 -> Total 105!
Recurrence/Surgeries: Jan & Apr 2010
Biopsy 2/2011: Moderate dysplasia
Surgery 4/2011: Mild dysplasia
Dental issues: 2013-2022 (ORN)
| | | | | Joined: Mar 2014 Posts: 286 "OCF Down Under" Gold Member (200+ posts) | | "OCF Down Under" Gold Member (200+ posts)
Joined: Mar 2014 Posts: 286 | Aussie prayers for you Brandon. Stick with it mate.
Cheers, Dave (OzMojo) 19Feb2014 Diagnosed T2N2bM0 P16+ve SCC Tonsil. 31Mar2014 2 Cisplatin, 70gy over 7 weeks (completed 16May2014) 11August2014 PET/CT clear. 17July2019 5 years NED.
| | | | | Joined: Dec 2012 Posts: 17 Member | | Member
Joined: Dec 2012 Posts: 17 |
"I have always depended on the kindness of strangers."
Blanche, Tennessee Williams' "A Streetcar Named Desire"
| | | | | Joined: Dec 2010 Posts: 5,264 Likes: 4 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | | "OCF Canuck" Patient Advocate (old timer, 2000 posts)
Joined: Dec 2010 Posts: 5,264 Likes: 4 | Hope your surgery went well and you are on the mend. this cancer can be aggressive. Are they talking about doing radiation on that side of your neck. You might be a candidate because it sounds like they didn't do it the first time. (they rarely do it bilaterally if there is no indication it should be done) hugs and healing vibes coming your way.
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
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