| Joined: Apr 2008 Posts: 117 Likes: 1 Senior Member (100+ posts) | OP Senior Member (100+ posts) Joined: Apr 2008 Posts: 117 Likes: 1 | In dealing with some issues in my mouth related to post-radiation, but ENT told me to suck on candy to increase saliva flow, because the low output of he glands means they get flushed much less and are more prone to infection and stones. So I got some xylitol candy (Ice Chips and Dr. Johns candy tablets) because it doesn't change to acid the mouth and cause tooth decay. It really helps saliva flow, although sometimes it takes awhile because my mouth is so dry to begin with.
Anyway, I'm wondering now. For those of us who can still get some flow, wouldn't this increased flow also protect our teeth. And so wouldn't this real saliva work as well using enzyme mouth rinse.
BTW, xylitol can have bad side effects. But I use only about 10 grams over the span of a day.
Squamous cell carcinoma base of tongue. Lymph involvement unclear; staging placed at "2 or 3." Biopsy 4/18/2008. Treatment: IMRT every day for 7 weeks. Cisplaten once a week to sensitize cancer to radiation. Treatment ended 7/16/08. PET/CT shows no more cancer.
| | | | Joined: Jan 2013 Posts: 1,293 Likes: 1 Patient Advocate (1000+ posts) | Patient Advocate (1000+ posts) Joined: Jan 2013 Posts: 1,293 Likes: 1 | Anything to promote saliva production is a good thing as it is very helpful in keeping cavities away. With dry mouth, the lack of saliva encourages more cavities.
Always keep up with flossing, waterpik, brushing etc. to keep your mouth and teeth free of food particles.
Don Male, 57 - Great health except C Dec '12 DX: BOT SCC T2N2bMx, Stage 4a, HPV+, multiple nodes 1 tooth out Jan '13 2nd tooth out Tumor Board -induction TPF (3 cycles), seq CRT 4-6/2013 CRT 70gr 2x35, weekly carbo150 ended 5/29,6/4 All the details, join at http://beatdown.cognacom.com | | | | Joined: Oct 2013 Posts: 559 Likes: 1 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Oct 2013 Posts: 559 Likes: 1 | How much xylitol would you get from chewing Trident gum?
Anybody heard anything bad about Trident?
Tony, 69, non-smoker, aerobatics pilot, bridge player/teacher, avid dancer (ballroom, latin, swing, country)
09/13 SCC, HPV 16, tonsillectomy, T2N0. 11/13 start rads, no chemo 12/13 taste gone, dry mouth, 02/14 hair slowly returning 05/14 taste the same, dry sinuses, irrigation helps. 01/15 food taste about 60% returned, dry sinuses are worse in winter. 12/20 no more sinus problems, taste pretty good
| | | | Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Dec 2003 Posts: 2,606 Likes: 2 | Andrew111, the general rule with xylitol is "Thrive for Five". Five contacts a day to keep things in balance. Xylitol will also protect the teeth as it is carie-static, but not from remineralization. Xylitol destroys the bacteria that causes tooth decay.
Try some of the lemon Dr John's candy, as lemon also is can stimulate saliva flow for some. I have tried many xylitol candy and found Dr John's works the best for me and after several months, my saliva returned significantly. However, I also used PerioSciences ProVantage hydrating oral gel along with the candy. I can walk outside in extreme heat for an hour without a water bottle for the first time in a decade or so.
Keep the xylitol away from dogs, too. Although studies have shown it takes quite a bit to have an effect, I wouldn't want to test it on my little dog.
SCC Stage IV, BOT, T2N2bM0 Cisplatin/5FU x 3, 40 days radiation Diagnosis 07/21/03 tx completed 10/08/03 Post Radiation Lower Motor Neuron Syndrome 3/08. Cervical Spinal Stenosis 01/11 Cervical Myelitis 09/12 Thoracic Paraplegia 10/12 Dysautonomia 11/12 Hospice care 09/12-01/13. COPD 01/14 Intermittent CHF 6/15 Feeding tube NPO 03/16 VFI 12/2016 ORN 12/2017 Cardiac Event 06/2018 Bilateral VFI 01/2021 Thoracotomy Bilobectomy 01/2022 Bilateral VFI 05/2022 Total Laryngectomy 01/2023
| | | | Joined: Apr 2008 Posts: 117 Likes: 1 Senior Member (100+ posts) | OP Senior Member (100+ posts) Joined: Apr 2008 Posts: 117 Likes: 1 | Thanks. Considering that I can no longer find an enzyme toothpaste that is gentle enough, what I could do is encourage saliva flow right after brushing. That way I would have the fluoride and my own natural enzymes protecting my teeth.
Squamous cell carcinoma base of tongue. Lymph involvement unclear; staging placed at "2 or 3." Biopsy 4/18/2008. Treatment: IMRT every day for 7 weeks. Cisplaten once a week to sensitize cancer to radiation. Treatment ended 7/16/08. PET/CT shows no more cancer.
| | | | Joined: Aug 2014 Posts: 6 Member | Member Joined: Aug 2014 Posts: 6 | Hi, i am almost 8 years post DX and treatment, i recently had some dental surgery and had to have HBO treatment after i was done with it all i noticed i have saliva, its not enough to eat without water yet but i no longer have to carry water around with me as my mouth is always wet (yeah),I loose most of my teeth and then get my saliva back (so typical of me)but still its amazing to have a wet mouth again...it just shows though anything can happen i had given up on getting mine back ...keep the faith
Dx SCC stage 4,on 10/9/2007 9/24/2007 started 7 weeks radiation 3 rounds of cisplatin given at week 1 week 4 week 7 Pet scans show cancer free no saliva no taste 11/11/11 started having BP issues, no diagnosis yet suspect Baroreflex Failure 2/10/2014 12 teeth removed HBO x60 healed well except for 2 sides April 2014 started to get saliva back 8/30/2014 DX osteoradionecrosis of the jaw waiting on surgery
| | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | Senior Patient Advocate Patient Advocate (old timer, 2000 posts) Joined: Sep 2006 Posts: 8,311 |
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | Joined: Nov 2002 Posts: 3,552 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Nov 2002 Posts: 3,552 | If you breathe through your mouth while sleeping or put any salt in your diet, that will have a big impact on saliva production.
Gary Allsebrook *********************************** Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2 Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy) ________________________________________________________ "You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
| | | | Joined: Aug 2011 Posts: 269 Gold Member (200+ posts) | Gold Member (200+ posts) Joined: Aug 2011 Posts: 269 | Many thanks for all the great info Uptown. Just had to have my two front teeth bonded as they just started crumbling very quickly. Nice to read the other posts too, glad to see there can be some improvement.
Nancy (53 at dx) Metastatic SCC. Stage III. HPV positive with occult primary. N1, no ecs 7/1/11 - L-Selective neck dissection. Tonsillectomy. All clean. No rad, no chemo. 5/29/13 - Found primary 7/3/13 - TORS 7/8/13 - Emergency Surgery/Blood vessel burst in throat 8/9/13 - Peg in 9/3/13 - Radiation starts 30 IMRT, 60gy BOT, 56gy both sides of neck 10/14/13 - Radiation ended! 11/12/13 - PEG out!
| | | | Joined: Oct 2014 Posts: 5 Member | Member Joined: Oct 2014 Posts: 5 | My radiation Oncologist and my dentist told me to use a fluoride gel, preferably in trays (like football players use to protect their teeth) for 10-15 minutes EVERY DAY.
Reading these posts, I'm not going to skip many days.
Although, it seems that the fluoride coats the inside of my mouth and makes my dry mouth worse for several hours afterwards; so, I try to do this just before bed, as I breath through my mouth at nite. | | |
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