| Joined: Nov 2006 Posts: 2,671 Patient Advocate (old timer, 2000 posts) | OP Patient Advocate (old timer, 2000 posts) Joined: Nov 2006 Posts: 2,671 | Are there any plans for a Burgundy OCF Cap any time soon? I say only a blue cap that says Cancer Survivor in the OCF store. Maybe I'm missing something? Or I didn't get to the right place?
The idea came to me recently while at my granddaughter's High School football game. It was a combination Homecoming and an Awareness for Breast Cancer. The whole football team had pink jerseys, the cheerleaders, dancers, Color Guard all had pink T-shirts or costumes. The Color Guard waved pink flags. The Band wore pink, and there were tables near the entrance selling pink items. Attractive young girls passed among the packed audience in the stands selling pink stuff. People in the stands were wearing pink. It was lonely in that sea of pink. And the school color was Burgundy.
So, it would be so nice to have a Burgundy cap to wear next time I go to a football game. Or to see an Awareness coming to a football game where everybody wore Burgundy to give Oral Cancer a Voice.
Anne-Marie CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)
| | | | Joined: Mar 2002 Posts: 4,918 Likes: 64 OCF Founder Patient Advocate (old timer, 2000 posts) | OCF Founder Patient Advocate (old timer, 2000 posts) Joined: Mar 2002 Posts: 4,918 Likes: 64 | Yeah we have talked about doing these. The few that are still in the store are left overs from an oral cancer survivor get together many years ago, that Ingrid and i bought as gifts for those who came. We were not so brand oriented in those days, and that was really stupid, as our burgundy branding at all of our walks and everywhere else has had a huge impact in putting OCF on the map. We'll re visit the hat issue if there is enough interest.
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant. | | | | Joined: Nov 2006 Posts: 2,671 Patient Advocate (old timer, 2000 posts) | OP Patient Advocate (old timer, 2000 posts) Joined: Nov 2006 Posts: 2,671 | Thank you, Brian! That would be great!
Anne-Marie CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)
| | | | Joined: Jan 2011 Posts: 123 Senior Member (100+ posts) | Senior Member (100+ posts) Joined: Jan 2011 Posts: 123 | I want one too! Especially if on the day of your local walk it is raining....
Jill..CG to Ken, age 43,mom of 1yr old girl. DIAG:12/9/10 SCC BOT T4N0M0 HPV+ START:1/3/11 IMRT dailyX35 and 7 chemo END:2/23/11 PEG IN:1/15/11 Out:4/26/11 CT/MRI 4/25/11-marked improvement CT 6/11 new spots BX 6/23-cancer present Total Glossectomy sched 7/20/11 7/19/11 Ken's suffering ended
| | | | Joined: Mar 2002 Posts: 4,918 Likes: 64 OCF Founder Patient Advocate (old timer, 2000 posts) | OCF Founder Patient Advocate (old timer, 2000 posts) Joined: Mar 2002 Posts: 4,918 Likes: 64 | Jamie is looking into getting some burgundy hats made for our 2015 walk season, and for the OCF store. We are trying to get a link to work in Donor Drive's walk sign ups where when you pick your shirt size, you can opt in for some extra $ to have a hat there for you as well. We'll keep you opposed here. I still wear mine from the more than a decade old survivors meeting, of which there about 10 left in the store.
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant. | | | | Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Dec 2003 Posts: 2,606 Likes: 2 | I didn't get a burgandy cap back then, Brian. Mine is blue.
SCC Stage IV, BOT, T2N2bM0 Cisplatin/5FU x 3, 40 days radiation Diagnosis 07/21/03 tx completed 10/08/03 Post Radiation Lower Motor Neuron Syndrome 3/08. Cervical Spinal Stenosis 01/11 Cervical Myelitis 09/12 Thoracic Paraplegia 10/12 Dysautonomia 11/12 Hospice care 09/12-01/13. COPD 01/14 Intermittent CHF 6/15 Feeding tube NPO 03/16 VFI 12/2016 ORN 12/2017 Cardiac Event 06/2018 Bilateral VFI 01/2021 Thoracotomy Bilobectomy 01/2022 Bilateral VFI 05/2022 Total Laryngectomy 01/2023
| | | | Joined: Nov 2006 Posts: 2,671 Patient Advocate (old timer, 2000 posts) | OP Patient Advocate (old timer, 2000 posts) Joined: Nov 2006 Posts: 2,671 | Burgundy hats for the 2015 Walk season would be great! When it rains, it works really well with a rain poncho over it, so even if it rains you can still walk for Awareness. (or run) You can also wear it to the dentist office or to a high school football game when the school color is burgundy. Or when you have to get a boobiegram. Or when your hair-do just won't work and you want to tame it.
Anne-Marie CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)
| | | | Joined: Mar 2002 Posts: 4,918 Likes: 64 OCF Founder Patient Advocate (old timer, 2000 posts) | OCF Founder Patient Advocate (old timer, 2000 posts) Joined: Mar 2002 Posts: 4,918 Likes: 64 | Uptown, since those were just at the beginning of OCF, we hadn't really adopted to total burgundy branding of everything in those days� so mine from then is like yours, blue. But we area all about the burgundy branding of the OCF message these days, just take a look at any of our event photos, T's, booths, even table drapes�. burgundy.
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant. | | | | Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Dec 2003 Posts: 2,606 Likes: 2 | Thanks for reminding me. Mine was sitting on a shelf for years now. It's ready for action and ready for a burgandy partner!
SCC Stage IV, BOT, T2N2bM0 Cisplatin/5FU x 3, 40 days radiation Diagnosis 07/21/03 tx completed 10/08/03 Post Radiation Lower Motor Neuron Syndrome 3/08. Cervical Spinal Stenosis 01/11 Cervical Myelitis 09/12 Thoracic Paraplegia 10/12 Dysautonomia 11/12 Hospice care 09/12-01/13. COPD 01/14 Intermittent CHF 6/15 Feeding tube NPO 03/16 VFI 12/2016 ORN 12/2017 Cardiac Event 06/2018 Bilateral VFI 01/2021 Thoracotomy Bilobectomy 01/2022 Bilateral VFI 05/2022 Total Laryngectomy 01/2023
| | | | Joined: Mar 2014 Posts: 286 "OCF Down Under" Gold Member (200+ posts) | "OCF Down Under" Gold Member (200+ posts) Joined: Mar 2014 Posts: 286 | In the Australian state of Queensland, our main sporting game is Rugby League. Our team wears maroon, if you Google Queensland Maroons you'll see its pretty much the same as burgundy.
More than once I drew on that when I needed some extra courage, because they breed us tough in Queensland. Cheers, Dave (OzMojo) 19Feb2014 Diagnosed T2N2bM0 P16+ve SCC Tonsil. 31Mar2014 2 Cisplatin, 70gy over 7 weeks (completed 16May2014) 11August2014 PET/CT clear. 17July2019 5 years NED.
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