| | Joined: Jan 2013 Posts: 1,293 Likes: 1 Patient Advocate (1000+ posts) |  Patient Advocate (1000+ posts)
Joined: Jan 2013 Posts: 1,293 Likes: 1 | Right. It's like touch the frying pan - you get common sense. Touch the iron - you get common sense. Taste that lethal sauce - you feel like charcoal brickettes stuck to the tongue in the mouth and nothing is putting the fire out gets common sense.
It sits on the shelf in my office; so far zero temptation to see if I am still 99% taste recovered or that last 100%. Going to be a few months before I try again before I'' check the CSD again. LOL
Don Male, 57 - Great health except C Dec '12 DX: BOT SCC T2N2bMx, Stage 4a, HPV+, multiple nodes 1 tooth out Jan '13 2nd tooth out Tumor Board -induction TPF (3 cycles), seq CRT 4-6/2013 CRT 70gr 2x35, weekly carbo150 ended 5/29,6/4 All the details, join at http://beatdown.cognacom.com | | | | | Joined: Nov 2006 Posts: 2,671 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Nov 2006 Posts: 2,671 | Don - it was interesting to learn of your reaction to the hot stuff. It sure can affect individuals differently. My son (7 yrs out from end of Tx) has had the opposite reaction to the hot stuff. He does have about 90% of his taste back, but he always had to add extra of the hot stuff when he makes his famous hot wing sauce because for him it always tastes like it doesn't have enough. So he always checks with his family re the taste when making it for others and then modifies the ingredients to make it less "hot" for them.
Anne-Marie
CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)
| | | | | Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | During treatment I grew the hottest jalape�os I ever tasted in my life. My youngest just moved here and we decided to can them together since we had talked about it for years. A few weeks out I decided we would check them out. They were beyond hot! I went to eat lunch with him at school and found out he was selling them to Hispanics in a dare. He had a pocket full of quarters and a few new friends. I gave most away and just asked for the jars back.
I'm thinking if you eat a lot of hot stuff before treatment, it doesn't bother as much.
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | I became so spicy sensitive post Tx that I couldn't even add pepper to anything. It soon returned to "normal" but I was never a real fan of spicy to begin with.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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