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#182743 06-23-2014 02:00 PM
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helen.c Offline OP
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Tomorrow I am having a biopsy on the floor of my mouth, I have been telling the Docs for months about the pain in my mouth and the difficulty eating, they did a previous biopsy but on the edge of my graft which does appear white but has been like that since my original surgery.

Now the Doc says yes there is a fissure, but they wanted to do the biopsy under a general anaesthetic but due to my previous medical history they have said they will try to do it with a local anaesthetic, I feel like a guinea pig.

Positive vibes needed, thank you.


SCC Base of tongue, (TISN0M0) laser surgery, 10/01 and 05/03 no clear margins. Radial free flap graft to tonsil pillar, partial glossectomy, left neck dissection 08/04
helen.c #182744 06-23-2014 02:10 PM
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Good luck Helen, and a positive outcome!


10/09 T1N2bM0 Tonsil
11/09 Taxo Cisp 5-FU, 6 Months Hosp
01/11 35 IMRT 70Gy 7 Wks
06/11 30 HBO
08/11 RND PNI
06/12 SND PNI LVI
08/12 RND Pec Flap IORT 12 Gy
10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux
10/13 SND
10/13 TBO/Angiograph
10/13 RND Carotid Remove IORT 10Gy PNI
12/13 25 Protons 50Gy 6 Wks Carbo
11/14 All Teeth Extract 30 HBO
03/15 Sequestromy Buccal Flap ORN
09/16 Mandibulectomy Fib Flap Sternotomy
04/17 Regraft hypergranulation Donor Site
06/17 Heart Attack Stent
02/19 Finally Cancer Free Took 10 yrs






helen.c #182745 06-23-2014 02:37 PM
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Sending them your way, my dear. I hope you had a great time of relaxation. Big hugs to you!


SCC Stage IV
BOT primary
T2N2bM0
Cisplatin/5FU x 3
40 days radiation at 4 sites
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
PLS 02/13
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/
Osteoporosis 01/2018
Heart attack 06_2018

Living life LARGE with no quit in this guy!
helen.c #182747 06-23-2014 05:04 PM
Joined: Mar 2011
Posts: 1,024
"OCF Kiwi Down Under"
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Hi Helen. I just want to add my good wishes and to send you heaps of positive vibes and thoughts.
Tammy


Caregiver/advocate to Husband Kris age 59@ diagnosis
DX Dec '10 SCC BOT T4aN2bM0 HPV+ve.Cisplatin x3 35 IMRT.
PET 6/11 clear.
R) level 2-4 neck dissection 8/1/11 to remove residual node - necrotic with NED
Feb '12 Ca back.. 3/8/12 total glossectomy/laryngectomy/bilat neck dissection/partial pharyngectomy etc. clear margins. All nodes negative for disease. PEG in.
March 2017 - 5 years disease free. Woohoo!
helen.c #182749 06-23-2014 05:33 PM
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Posts: 1,301
"OCF Down Under"
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Best wishes and positive vibes for clear results on your biopsy.
Gabriele


History Leukoplakia bx 8/2006 SCC floor mouth T3N0M0- Verrucous Carcinoma.
14 hour 0p SCC-Right ND/excision/marginal mandibulectomy 9/2006, 4 teeth removed, flap from wrist, trach-ng 6 days- no chemo/rad.
6 ops and debulking (flap/tongue join) + bx's 2006-2012.
bx Jan 2012 Hyperkeratosis-Epithelial Dysplasia
24cm GIST tumour removed 8/2013. Indefinite Oral Chemo.

1/31/16 passed away peacefully surrounded by family

helen.c #182751 06-23-2014 05:43 PM
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All the positive vibes I can muster crossing the pond to you.


Gloria
She stood in the storm, and when the wind did not blow her way, she adjusted her sails... Elizabeth Edwards

Wife to John,dx 10/2012, BOT, HPV+, T3N2MO, RAD 70 gy,Cisplatinx2 , PEG in Dec 6, 2012, dx dvt in both legs after second chemo session, Apr 03/13 NED, July 2013 met to lungs, Phase 1 immunotherapy trial Jan 18/14 to July/14. Taxol/carboplatin July/14. Esophagus re-opened Oct 14. PEG out April 8, 2015. Phase 2 trial of Selinexor April to July 2015. At peace Jan 15, 2016.
helen.c #182777 06-24-2014 09:33 AM
Joined: Apr 2013
Posts: 319
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I too am sending all the positive vibes I and find, and generating some as I write! All the best to you, Helen,

Bart









My intro: http://oralcancersupport.org/forums/ubbt...3644#Post163644

09/09 - Dx OC Stg IV
10/09 - Chemo/3 Cisplatin, 40 rad
11/09 - PET CLEAN
07/11 - Dx Stage IV C. (Liver)
06/12 - PET CLEAN
09/12 - PET Dist Met (Liver)
04/13 - PET CLEAN
06/13 - PET Dist Met (Liver + 1 lymph node)
10/13 - PET - Xeloda ineffective
11/13 - Liver packed w/ SIRI-Spheres
02/14 - PET - Siri-Spheres effective, 4cm tumor in lymph-node
03/15 - Begin 15 Rads
03/24 - Final Rad! Woot!
7/27/14 Bart passed away. RIP!
Bart #182778 06-24-2014 09:50 AM
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Posts: 1,244
helen.c Offline OP
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Thanks everyone, the procedure went ok, this Doc is a good surgeon, but he couldn't stitch it so I have a large hole in the floor of my mouth which as you all know will have to get worse before it starts to heal. Still I have mouthwash and lignocaine gel to ensure I can eat!

I have to wait until the 21st of July to get the results going to be a long 3 and a half weeks.


SCC Base of tongue, (TISN0M0) laser surgery, 10/01 and 05/03 no clear margins. Radial free flap graft to tonsil pillar, partial glossectomy, left neck dissection 08/04
helen.c #182808 06-24-2014 09:28 PM
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Posts: 5,260
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Fingers crossed its nothing


Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
helen.c #183579 07-21-2014 12:02 PM
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Posts: 1,244
helen.c Offline OP
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Biopsy results today.

Low grade dysplasia, normally they would just monitor but because the floor of my mouth won't heal they want to operate.

Before that can happen they need to liaise with the anaesthetist, the original tracie damaged my trachea and I needed a tracheal resection so I need to be sure of all risk factors' so back on the 18th of August for a review with the Docs.

Thanks all for the positive vibes.


SCC Base of tongue, (TISN0M0) laser surgery, 10/01 and 05/03 no clear margins. Radial free flap graft to tonsil pillar, partial glossectomy, left neck dissection 08/04
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