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#181692 05-14-2014 07:53 AM
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It is with a heavy heart Im writing this post. The world has lost one of its great ones!

Our beloved EzJim passed away peacefully around 3am early this morning. Jim had a long hard battle with both oral cancer and all of the terrible after effects. He endured several surgeries, never losing his wonderful sense of humor. Jim was recently diagnosed with mets to the lungs. He fought right up until the end. Jim's last couple days were spent in hospice where he was kept comfortable and surrounded with what was most important to him, his large family.

Jim's daughter, Lori called me earlier this morning to give me the sad news. We talked for a while, reminiscing about how well loved her father was. During the last year, Jim struggled to use the computer so was not as active on the forum as he had been years ago.

Rest in peace, my friend. I will see you when I get there.


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
ChristineB #181694 05-14-2014 07:57 AM
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I'm so sad to hear of Jim's passing. I read a lot of his posts after I joined the forum and was aware that he was having a really hard time. I would like to extend my condolences to his daughter and to his family. Rest in peace, Jim.


Gloria
She stood in the storm, and when the wind did not blow her way, she adjusted her sails... Elizabeth Edwards

Wife to John,dx 10/2012, BOT, HPV+, T3N2MO, RAD 70 gy,Cisplatinx2 , PEG in Dec 6, 2012, dx dvt in both legs after second chemo session, Apr 03/13 NED, July 2013 met to lungs, Phase 1 immunotherapy trial Jan 18/14 to July/14. Taxol/carboplatin July/14. Esophagus re-opened Oct 14. PEG out April 8, 2015. Phase 2 trial of Selinexor April to July 2015. At peace Jan 15, 2016.
ChristineB #181695 05-14-2014 09:31 AM
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Posts: 319
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I too am very sad to red this, EzJim was always a beam of light in a dark place, and always had a way of cheering up those deep in that darkness.

A bright star and a rare talent gone. We shall miss you, EzJim, for a long time.

Rest in Peace, brother.


My intro: http://oralcancersupport.org/forums/ubbt...3644#Post163644

09/09 - Dx OC Stg IV
10/09 - Chemo/3 Cisplatin, 40 rad
11/09 - PET CLEAN
07/11 - Dx Stage IV C. (Liver)
06/12 - PET CLEAN
09/12 - PET Dist Met (Liver)
04/13 - PET CLEAN
06/13 - PET Dist Met (Liver + 1 lymph node)
10/13 - PET - Xeloda ineffective
11/13 - Liver packed w/ SIRI-Spheres
02/14 - PET - Siri-Spheres effective, 4cm tumor in lymph-node
03/15 - Begin 15 Rads
03/24 - Final Rad! Woot!
7/27/14 Bart passed away. RIP!
ChristineB #181696 05-14-2014 09:44 AM
Joined: Jan 2011
Posts: 123
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Posts: 123
So sad to read this! He always had such helpful comments. I am happy he is now pain free and at peace. He is a hero on my eyes for all he endured.


Jill..CG to Ken, age 43,mom of 1yr old girl.
DIAG:12/9/10 SCC BOT T4N0M0 HPV+
START:1/3/11 IMRT dailyX35 and 7 chemo
END:2/23/11 PEG IN:1/15/11 Out:4/26/11
CT/MRI 4/25/11-marked improvement CT 6/11 new spots
BX 6/23-cancer present
Total Glossectomy sched 7/20/11
7/19/11 Ken's suffering ended
ChristineB #181698 05-14-2014 11:13 AM
Joined: Dec 2003
Posts: 2,606
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A sad day, indeed, losing another.

Sail on, brother. You're free!


SCC Stage IV
BOT primary
T2N2bM0
Cisplatin/5FU x 3
40 days radiation at 4 sites
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
PLS 02/13
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/
Osteoporosis 01/2018
Heart attack 06_2018

Living life LARGE with no quit in this guy!
kenswife #181699 05-14-2014 11:22 AM
Joined: Jun 2009
Posts: 875
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How sad. Christine, thank you for letting us know. I had read on Facebook that he was having problems, but didn't hear about his passing until I just checked in and read your post. Please tell his family how much we all loved him and his humor and helpful tips to us when we posted. As you remember, I corresponded with him via email on several occasions telling him about my problems, and he always replied to me with ideas I could try. I remember when I told him about not being able to swallow very well, he gave me his recipe for making a big pot of bean soup that he could eat since he had far worse problems than I with swallowing. May he rest in peace and know that we will always remember him.
julieann


Julieann
Nov 2007 SCC on right tonsil following tonsillectomy. Was smoker, QUIT. (Stage IV T2 N2b) 7 weeks radiation one day/wk chemo (carboplatin and 5-FU). Allergic to Taxol; PEG in, lost 30 lbs. TX completed January 2008. PEG out mid- 2008. PET/CT 1/17/2011;2/3/12 NEGATIVE for cancer smile
ChristineB #181701 05-14-2014 11:42 AM
Joined: Sep 2006
Posts: 1,340
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Well said Christine. Hugs to all who knew and loved him.

Donna


Donna,68, SCC L Tongue T2N1MO Stg IV 4/04 w/partial gloss;32 radtx; T2N2M0 Stg IV; R tongue-2nd partial gloss w/graft 10/07; 30 radtx/2 cispl 2/08. 3rd Oral Cancer surgery 1/22 - Stage 1. 2022 surgery eliminated swallowing mechanisms so am now a “for life” tube feeder. I am working hard to get used to that while fulfilling my dreams. Surviving isn't easy,but grateful for EVERY day.Proudly Canadian - YES, UNIVERSAL HEALTH CARE IS WONDERFUL! (Not perfect but definitely WONDERFUL)
ChristineB #181703 05-14-2014 04:24 PM
Joined: Aug 2011
Posts: 269
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Very sad to hear about the passing away of EzJim. I pray his family knows what a help he has been to others and that he will be remembered mostly lovingly.


Nancy (53 at dx)
Metastatic SCC. Stage III. HPV positive with occult primary. N1, no ecs
7/1/11 - L-Selective neck dissection. Tonsillectomy. All clean. No rad, no chemo.
5/29/13 - Found primary
7/3/13 - TORS
7/8/13 - Emergency Surgery/Blood vessel burst in throat
8/9/13 - Peg in
9/3/13 - Radiation starts 30 IMRT, 60gy BOT, 56gy both sides of neck
10/14/13 - Radiation ended!
11/12/13 - PEG out!
ChristineB #181704 05-14-2014 04:45 PM
Joined: Jun 2007
Posts: 10,507
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Administrator, Director of Patient Support Services
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Posts: 10,507
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Jims family knows how well loved he was. Years ago I had talked with his daughter after one of her fathers many surgeries. Back then we had talked about how far reaching his presence was. This morning I told her again that Jim has touched hundreds of lives all over the world. His posts will live on for years to come. Jim will be missed by so many, he was truly one of a kind.


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
ChristineB #181707 05-14-2014 05:23 PM
Joined: Sep 2009
Posts: 700
Likes: 1
"Above & Beyond" Member (500+ posts)
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What a sad say this is. Jim was a great guy who appreciated the little things in life. I loved when he would write about working in his yard and the meals he made for himself. He was so funny, too. His typos were hilarious! He offered me much support when the days were dark. Rest in Peace, Buddy.


Anita (67)
CG to husband, Clark, 78,
DX SCC 11/07, T4N0Mx, PEG 1/08, RAD, post rad infection 3/08,
HBOT 40 dives, ORN, Surg 11/09 mandibulectomy w/fibular graft.
Plastic Surg 4/10, 12/10, 3/11, 10/11, 4/12, 10/12. All PETS clear,
PEG out 1/11. 6/11 non union jaw fracture
Fractured jaw w/surgery 7/14
Aspiration pneumonia, PEG 7/21 still recovering
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