| | Joined: Oct 2012 Posts: 1,275 Likes: 7 Assistant Admin Patient Advocate (1000+ posts) |  Assistant Admin Patient Advocate (1000+ posts)
Joined: Oct 2012 Posts: 1,275 Likes: 7 | Damien, I am so sorry to hear about Katie. Please accept my deepest condolences. Please give the kiddies a hug from me.
Gloria
She stood in the storm, and when the wind did not blow her way, she adjusted her sails... Elizabeth Edwards
Wife to John,dx 10/2012, BOT, HPV+, T3N2MO, RAD 70 gy,Cisplatinx2 , PEG in Dec 6, 2012, dx dvt in both legs after second chemo session, Apr 03/13 NED, July 2013 met to lungs, Phase 1 immunotherapy trial Jan 18/14 to July/14. Taxol/carboplatin July/14. Esophagus re-opened Oct 14. PEG out April 8, 2015. Phase 2 trial of Selinexor April to July 2015. At peace Jan 15, 2016.
| | | | | Joined: Aug 2013 Posts: 9 Member | | Member
Joined: Aug 2013 Posts: 9 | Damien, I am so very sorry for your deep loss. Your wife sounded like a wonderful lady who fought the good fight as much as she could. This is a terrible disease that takes away so many lives senselessly. I am glad you have so many wonderful pictures of your wife with your children and the video of her that you continue to share with them both. It must be so incredibly hard. Sincerely, Hilary
Daughter of oc patient. Diagnosed 2/10/13 SCC stage IV-3 lymph nodes-one lymph node extra capsular extension.Oral/maxillary,surgery 3/25/13 neck dissect- 1/3 of mouth removed, Chemo/Rad. for 7 weeks finished 6/10/13. Recurrence found 8/20/13 skin metastasis, tumor inside cheek,tumor in lymph node
| | | | | Joined: Aug 2011 Posts: 269 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Aug 2011 Posts: 269 | Damien,
I just listened to your katie signing "smile" so absolutely beautiful. My heart grieves with yours and your family. No words can take away the pain, but I hope all the love you receive is able to comfort you during this extremely painful time.
Nancy (53 at dx)
Metastatic SCC. Stage III. HPV positive with occult primary. N1, no ecs
7/1/11 - L-Selective neck dissection. Tonsillectomy. All clean. No rad, no chemo.
5/29/13 - Found primary
7/3/13 - TORS
7/8/13 - Emergency Surgery/Blood vessel burst in throat
8/9/13 - Peg in
9/3/13 - Radiation starts 30 IMRT, 60gy BOT, 56gy both sides of neck
10/14/13 - Radiation ended!
11/12/13 - PEG out!
| | | | | Joined: Sep 2006 Posts: 1,357 Likes: 5 "OCF Canuck" Patient Advocate (1000+ posts) | | "OCF Canuck" Patient Advocate (1000+ posts)
Joined: Sep 2006 Posts: 1,357 Likes: 5 | I am so very sorry for this devastating loss. My heart goes out to you, your children and all family and friends who were fortunate enough to know her. Hugs.
Donna
Last edited by Pandora99; 03-04-2014 12:14 PM.
Donna,69, SCC L Tongue T2N1MO Stg IV 4/04 w/partial gloss;32 radtx; T2N2M0 Stg IV; R tongue-2nd partial gloss w/graft 10/07; 30 radtx/2 cispl 2/08. 3rd Oral Cancer surgery 1/22 - Stage 1. 2022 surgery eliminated swallowing and bottom left jaw. Now a “Tubie for Life”.no food envy - Thank God! Surviving isn't easy!!!! .Proudly Canadian - YES, UNIVERSAL HEALTH CARE IS WONDERFUL! (Not perfect but definitely WONDERFUL)
| | | | | Joined: Jun 2007 Posts: 595 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jun 2007 Posts: 595 | You and your family are in our prayers, sorry for your loss!! Semper-Fi Bob
Bob age 57, non smoker,non drinker, ended treatment on 11 Nov 2007 and started back to work on 29 Nov 2007. Veterans Day 2012 the Battle was lowered, folded, Taps was played and the Flag buried as I am know a 5 year survivor. Semper-FI !!!
| | | | | Joined: Mar 2014 Posts: 1 Member | | Member
Joined: Mar 2014 Posts: 1 | Damien oh Damien...
It's Scott R.
I don't know if you remember me. Katie and I were at LaGuardia H.S. together and such good buddies. I was lucky enough to meet you a couple of times over the years, but it has been years, and Katie and I had lost touch, though she had reached out to me- just like Katie, right?
As devastated and heartbroken and truly messed up as I am right now with this news, I cannot begin to imagine what you are going through. I'm not sure if you're even still checking these posts. I've reached out to Marilyn as well.
I've started writing a little story to Maggie and Casey, about their mom when she was a teenager. I'd love to send it to you when it's done to take a look at and see if you'd like to share it with them. At the very least, I'd love for you to read it.
I'd also love to see you, meet the kids, and be a general pain in the ass guest for a few hours!
Damien, it sounds so petty to offer, but if there is anything I can do, be it a joke or a song, or helping with groceries or cooking, or singing to the kids, or anything at all, I am here for you and family. I will be donating to Maggie and Casey's college fund. I wish I had more money(!)... but count on me as a friend and supporter for life. For Katie and for you and Maggie and Casey, the honor and pleasure are entirely mine.
Can you send me an email if/when you have a chance?
I am sending you and the kids a ridiculous amount of love and strength.
Always,
Scott
Last edited by ChristineB; 03-21-2014 01:45 PM. Reason: removed personal info.... sent to Damien thru a PM
| | |
| Forums23 Topics18,170 Posts196,933 Members13,105 | | Most Online458
Jan 16th, 2020 | | |
|
