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Joined: Jan 2014
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Joined: Jan 2014
Posts: 8
Anyone out there in Maryland know about a clinical trial to restore saliva function. I have read the phase 1 using a gene transfer to administer aquaporin to saliva gland using anadenovirus (cold virus) will likely not be commercially available due to being short lived. About half of participants experience success, but immune system will probably halt the virus. Phase 2 will use adeno associated virus & should be longer lasting. Would like to know status of trial if anyone knows anything. Thanks


58 yr old male, SCC left side of tongue 2/13, partial glossectomy, flap, 30 IMRT, 6 Chemo. Recurrence 10/13, lymph node removal, Brachy therapy 100, pec flap.
Joined: Jun 2007
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Sounds interesting. Sorry but its hit or miss with the trials. Not everyone will talk about their experiences (even if they are allowed).

Please let us know if you get any other info. maybe your oncologists know something about it????


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile

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