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| | Joined: Jan 2014 Posts: 8 Member | OP  Member
Joined: Jan 2014 Posts: 8 | Anyone out there in Maryland know about a clinical trial to restore saliva function. I have read the phase 1 using a gene transfer to administer aquaporin to saliva gland using anadenovirus (cold virus) will likely not be commercially available due to being short lived. About half of participants experience success, but immune system will probably halt the virus. Phase 2 will use adeno associated virus & should be longer lasting. Would like to know status of trial if anyone knows anything. Thanks
58 yr old male, SCC left side of tongue 2/13, partial glossectomy, flap, 30 IMRT, 6 Chemo. Recurrence 10/13, lymph node removal, Brachy therapy 100, pec flap.
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Sounds interesting. Sorry but its hit or miss with the trials. Not everyone will talk about their experiences (even if they are allowed).
Please let us know if you get any other info. maybe your oncologists know something about it????
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | |
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