Previous Thread
Next Thread
Print Thread
Joined: Dec 2013
Posts: 78
Supporting Member (50+ posts)
OP Offline
Supporting Member (50+ posts)

Joined: Dec 2013
Posts: 78
Here is my experience,

I like to write the state of the tumor growth and express my pain feelings here before I go for surgery. This is all for knowledge purpose.

Pain Status :
The day I was diagnosed with cancer by an oral surgeon and right ahead of surgery next week.
Only time I had pain was 3 days after biopsy due to stitches.
Never had trouble in chewing, swallowing or speaking equally using both jaws and sides.

Tumor and white patches on tongue surface:
White patches dramatically have reduced (disappear) since biopsy was performed. Tumor size has remain consistent and the same in diameter (about 1.5-2.00 cm) with no additional growth (at least from outside).

Thickness of tongue:
This has remain same between the day of biopsy and today. Meaning, I personally don't suspect that tumor has grown inside dramatically (similar to other victims who have written/reported that, they had an egg size tumor came out at the time of surgery, I don't see this possibility here in my case.) Tongue is slim equally on both side with no other unusual traits.

Thanks

Last edited by neversmoke; 01-01-2014 06:22 PM.

Special thanks to OCF and all respected members here for their support

Ankur, 37, T1N2M0
12/13: Biopsy and results
01/14: Partial Hemiglossectomy (1/3 tongue) and a Flap Reconstruction
Right neck dissection. 3/42 nodes positive and removed
Speech (80%) and swallow (100%) restored within 5 weeks after surgery(3/1/14)
03/14: 30 IMRT Appointments Started 3/17 (No CT)
04/14: Radiation treatments completed
07/14: PET - All Clear
Joined: Jan 2013
Posts: 1,293
Likes: 1
Patient Advocate (1000+ posts)
Offline
Patient Advocate (1000+ posts)

Joined: Jan 2013
Posts: 1,293
Likes: 1
Hi Ankur,
Seems like things are going well for you. Do you know your HPV status? Since you smoked for some time it seems like that might be the likely cause. Hang in there, the treatments will be starting soon. Good luck, Don


Don
Male, 57 - Great health except C
Dec '12
DX: BOT SCC T2N2bMx, Stage 4a, HPV+, multiple nodes
1 tooth out
Jan '13
2nd tooth out
Tumor Board -induction TPF (3 cycles), seq CRT
4-6/2013
CRT 70gr 2x35, weekly carbo150
ended 5/29,6/4
All the details, join at http://beatdown.cognacom.com
Joined: Dec 2013
Posts: 78
Supporting Member (50+ posts)
OP Offline
Supporting Member (50+ posts)

Joined: Dec 2013
Posts: 78
Don,

Thanks for response.
Yes, things are well so far.
Will keep you posted after surgery which is planned for next week.


Special thanks to OCF and all respected members here for their support

Ankur, 37, T1N2M0
12/13: Biopsy and results
01/14: Partial Hemiglossectomy (1/3 tongue) and a Flap Reconstruction
Right neck dissection. 3/42 nodes positive and removed
Speech (80%) and swallow (100%) restored within 5 weeks after surgery(3/1/14)
03/14: 30 IMRT Appointments Started 3/17 (No CT)
04/14: Radiation treatments completed
07/14: PET - All Clear

Moderated by  Brian Hill 

Link Copied to Clipboard
Top Posters
ChristineB 10,507
davidcpa 8,311
Cheryld 5,264
EzJim 5,260
Brian Hill 4,918
Newest Members
ela madona, Bits4Brains, Jojo12, Louisianaman, Stacy68
13,326 Registered Users
Forum Statistics
Forums23
Topics18,249
Posts197,141
Members13,326
Most Online1,788
Jan 23rd, 2025
OCF Awards

Great Nonprofit OCF 2023 Charity Navigator OCF Guidestar Charity OCF

Powered by UBB.threads™ PHP Forum Software 7.7.5