| | Joined: Aug 2013 Posts: 54 Supporting Member (50+ posts) | OP  Supporting Member (50+ posts)
Joined: Aug 2013 Posts: 54 | Ok.....I'm 2 months out from tongue cancer surgery and thought I was out of the woods. My tumor was not tested for HPV, but docs said it probably was an HPV cancer due to age and lack of other risk factors. NOW I have found a lump in the opening of my anus that I noticed over a week ago. I have been married to the same man for 27 years with no risky sexual behavior. Could this be cancer all over again in a new place? Anyone know of forum members that have had SCC in both places? I've made an appointment to have it checked, for December 12. Maybe it will go away by then.........
48 yo female, quit smoking 4yrs ago, light drinker, Stage 2 SCC, Bx3, Dx 8/22/13, surgery 9/11/13. Partial glossectomy, bilateral neck dissection levels 1-4. Tongue reconstruction with flap from forearm. 87 Lymph nodes CLEAR. Tongue margins good at 1 cm. No further treatment planned. Monthly monitoring planned for upcoming year then periodic monitoring for next 4
| | | | | Joined: Jul 2012 Posts: 3,267 Likes: 4 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jul 2012 Posts: 3,267 Likes: 4 | Most HPV-16 occurr in the oropharynx, not the oral mouth, tongue, not saying it can't happen, but even guidelines don't suggest HPV testing in these areas, but there are lots of unexplained cancer in the mouth in those with no history of drinking, smoking, and not HPV16 related. Like head and neck cancer, anything unusual that lasts more than 2-3 weeks, should be checked by your doctor, and glad you are doing that. I don't think being HPV16 positive in the head and neck protects you from another HPV16 related cancer in the anogenital area, although I heard you can't be infected twice with the same HPV, it would be rare, but it could be a different HPV strain or a simutaneous infection at the same time, which sounds rare also. They haven't proven a link with anogenital HPV cancer to Head and Nevk, but read women who have anogenital HPV are at higher risk for head and neck cancet, although there are over 150 strains, and only 15 are high risk for cancer, so I don't know what that means, maybe just effecting the immune system. We had a lengthy discussion about this under HPV, one which I may have posted under " HPV Related Questions" in the after treatment section. Hopefully it is nothing major, and again, it's not cancer until proven by biopsy, but feel your concern. Good luck.
10/09 T1N2bM0 Tonsil
11/09 Taxo Cisp 5-FU, 6 Months Hosp
01/11 35 IMRT 70Gy 7 Wks
06/11 30 HBO
08/11 RND PNI
06/12 SND PNI LVI
08/12 RND Pec Flap IORT 12 Gy
10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux
10/13 SND
10/13 TBO/Angiograph
10/13 RND Carotid Remove IORT 10Gy PNI
12/13 25 Protons 50Gy 6 Wks Carbo
11/14 All Teeth Extract 30 HBO
03/15 Sequestromy Buccal Flap ORN
09/16 Mandibulectomy Fib Flap Sternotomy
04/17 Regraft hypergranulation Donor Site
06/17 Heart Attack Stent
02/19 Finally Cancer Free Took 10 yrs
| | | | | Joined: Mar 2011 Posts: 1,024 "OCF Kiwi Down Under" Patient Advocate (1000+ posts) | | "OCF Kiwi Down Under" Patient Advocate (1000+ posts)
Joined: Mar 2011 Posts: 1,024 | Hi, Are you sure that this is not a simple haemorrhoid? I'm glad you are getting this looked at, if only to give you piece of mind. Yes, HPV does cause anal cancers. I have come across 1 male who did have a recurrence of his head and neck cancer in the anal area. Though he had extensive invasion of his cancer with multiple recurrences. I don't think this is common. Please try not to let your mind get ahead of facts. As I said, a simple haemorrhoid comes to mind first. Any chance of getting this checked out earlier than the 12 December? Otherwise it's a long time to worry, probably for nothing. Take care. Tammy
Caregiver/advocate to Husband Kris age 59@ diagnosis
DX Dec '10 SCC BOT T4aN2bM0 HPV+ve.Cisplatin x3 35 IMRT.
PET 6/11 clear.
R) level 2-4 neck dissection 8/1/11 to remove residual node - necrotic with NED
Feb '12 Ca back.. 3/8/12 total glossectomy/laryngectomy/bilat neck dissection/partial pharyngectomy etc. clear margins. All nodes negative for disease. PEG in.
March 2017 - 5 years disease free. Woohoo!
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | HPV is known to cause cervical, anal, penile and oral cancers as well as genital warts. I would suggest getting checked out by your doc to ease your mind. Hope its not cancer!!!!
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | | | | Joined: Aug 2013 Posts: 54 Supporting Member (50+ posts) | | OP Supporting Member (50+ posts)
Joined: Aug 2013 Posts: 54 | Thanks everyone for advice and comments. I guess I better get used to thinking every new bump and lump is cancer before anything else. Hopefully with time....I won't think this way...... It's probably just a hemmaroid. But going to have it checked (if it hasn't resolved itself by the 12th).
48 yo female, quit smoking 4yrs ago, light drinker, Stage 2 SCC, Bx3, Dx 8/22/13, surgery 9/11/13. Partial glossectomy, bilateral neck dissection levels 1-4. Tongue reconstruction with flap from forearm. 87 Lymph nodes CLEAR. Tongue margins good at 1 cm. No further treatment planned. Monthly monitoring planned for upcoming year then periodic monitoring for next 4
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