| Joined: Nov 2006 Posts: 7 Member | OP Member Joined: Nov 2006 Posts: 7 | Hello all,
I am a three-time survivor of SCC: 2005, 2006, 2011. Needless to say, I've been on this roller coaster, like many of you, for quite some time.
I've had a lesion on the floor of my mouth for almost five weeks now (if not longer) that has become a bit ulcerated. My dental oncologist at MDAnderson took a biopsy this past Tuesday morning. Diagnosis: mild hyperkeratotic dysplasia.
I am on an anti-biotic and anti-fungal for two weeks in the hope that this lesion will go away. What is your advice at this point? I'm in so much pain that I'm considering resigning from my high school teaching/coaching job. Do I just stay on pain meds and pray for the best?
Thanks for your help, Angela
primary left lat SCC in tongue 7/05 age 27 at Dx, non-smoker, casual drinker, HPV negative partial glossectomy and radical neck dissection 30 lymph nodes 8/05 SCC in lymph node with extracapsular invasion 1/06 partial glossectomy and neck resection, 30x rad, 3x cisplatin 2/06-4/06 recurrent SCC in tongue at primary site 6/11 partial glossectomy 7/11
| | | | Joined: Mar 2013 Posts: 421 Likes: 1 Platinum Member (300+ posts) | Platinum Member (300+ posts) Joined: Mar 2013 Posts: 421 Likes: 1 | What I see is: It's NOT cancer!
It comes back to one of the OC mantra; "It's not cancer until they say it is".
What you ask is totally a personal choice. Resigning, applying for benefits and such is a decision that would yield results depending on your personal situation. We all have had life changing decisions in our journey and it's truly an intimate and personal choice.
It comes down to how you feel. If your "passion" for your work has faded or you're just tired and need a break. Meditate on the circumstances of your situation and make the appropriate decision.
Good Luck, positive thoughts and prayers on whatever decision you make.
"T"
Last edited by fishmanpa; 10-13-2013 12:40 PM.
57 Cardiac bypass 11/07 Cardiac stents 10/2012 Dx'd 11/30/2012 Tx N2b MO Stage IV HPV+ Palatine Tonsillectomy/Biopsies 12-21-12 Selective Neck Dissection/Lingual Tonsillectomy/biopsies TORS 2/7/13 Emergency Surgery/Bleeding 2/18/13 3/13/2013 30rads/6chemo Finished Tx 4/24/13 NED Since
| | | | Joined: Nov 2006 Posts: 7 Member | OP Member Joined: Nov 2006 Posts: 7 | Thank you for your encouraging words. You are totally right--this is completely up to me. I needed to hear someone say that.
primary left lat SCC in tongue 7/05 age 27 at Dx, non-smoker, casual drinker, HPV negative partial glossectomy and radical neck dissection 30 lymph nodes 8/05 SCC in lymph node with extracapsular invasion 1/06 partial glossectomy and neck resection, 30x rad, 3x cisplatin 2/06-4/06 recurrent SCC in tongue at primary site 6/11 partial glossectomy 7/11
| | | | Joined: Mar 2013 Posts: 421 Likes: 1 Platinum Member (300+ posts) | Platinum Member (300+ posts) Joined: Mar 2013 Posts: 421 Likes: 1 | I think about this too. If I could "retire" so to speak at this point, I would, heal and enjoy the things that bring my heart joy  Unfortunately, I cannot. However, I do play the lottery  "T"
57 Cardiac bypass 11/07 Cardiac stents 10/2012 Dx'd 11/30/2012 Tx N2b MO Stage IV HPV+ Palatine Tonsillectomy/Biopsies 12-21-12 Selective Neck Dissection/Lingual Tonsillectomy/biopsies TORS 2/7/13 Emergency Surgery/Bleeding 2/18/13 3/13/2013 30rads/6chemo Finished Tx 4/24/13 NED Since
| | | | Joined: Jul 2012 Posts: 3,267 Likes: 4 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Jul 2012 Posts: 3,267 Likes: 4 | Congratulations on being a 3x cancer fighter! I never say survivor, and I'm a 8x cancer fighter myself, and proud to say that. I feel your pain, your uncertainty, fears, even if it was a small bump. It doesn't get any easier each time, and each is like the first, having to go through the same testing, worry, wait, and is probably even worst than the first time knowing what you went through, can go through, and what limited treatments may be left. I'm glad this was not found cancerous, but probably will need to be monitored, and you are at the best place to do so, MD Anderson. Before you do anything rash, maybe speak to your doctors on their thoughts. Personally, I've been through worst, speaking of myself, and wouldn't give up anything I have or regained now, including work if I did, but I haven't work in 4 years lol, not by choice, being situations are beyond our control sometimes, and wish everyday I could. Your thoughts, and situation may be different, and to each their own, but the main thing is to keep fighting! I say this now, maybe next week my thoughts will change  All the best.
10/09 T1N2bM0 Tonsil 11/09 Taxo Cisp 5-FU, 6 Months Hosp 01/11 35 IMRT 70Gy 7 Wks 06/11 30 HBO 08/11 RND PNI 06/12 SND PNI LVI 08/12 RND Pec Flap IORT 12 Gy 10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux 10/13 SND 10/13 TBO/Angiograph 10/13 RND Carotid Remove IORT 10Gy PNI 12/13 25 Protons 50Gy 6 Wks Carbo 11/14 All Teeth Extract 30 HBO 03/15 Sequestromy Buccal Flap ORN 09/16 Mandibulectomy Fib Flap Sternotomy 04/17 Regraft hypergranulation Donor Site 06/17 Heart Attack Stent 02/19 Finally Cancer Free Took 10 yrs
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