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#172461 10-13-2013 12:23 PM
Joined: Nov 2006
Posts: 7
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Joined: Nov 2006
Posts: 7
Hello all,

I am a three-time survivor of SCC: 2005, 2006, 2011. Needless to say, I've been on this roller coaster, like many of you, for quite some time.

I've had a lesion on the floor of my mouth for almost five weeks now (if not longer) that has become a bit ulcerated. My dental oncologist at MDAnderson took a biopsy this past Tuesday morning. Diagnosis: mild hyperkeratotic dysplasia.

I am on an anti-biotic and anti-fungal for two weeks in the hope that this lesion will go away. What is your advice at this point? I'm in so much pain that I'm considering resigning from my high school teaching/coaching job. Do I just stay on pain meds and pray for the best?

Thanks for your help,
Angela


primary left lat SCC in tongue 7/05
age 27 at Dx, non-smoker, casual drinker, HPV negative
partial glossectomy and radical neck dissection 30 lymph nodes 8/05
SCC in lymph node with extracapsular invasion 1/06
partial glossectomy and neck resection, 30x rad, 3x cisplatin 2/06-4/06
recurrent SCC in tongue at primary site 6/11
partial glossectomy 7/11
Joined: Mar 2013
Posts: 421
Likes: 1
Platinum Member (300+ posts)
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Joined: Mar 2013
Posts: 421
Likes: 1
What I see is: It's NOT cancer!

It comes back to one of the OC mantra; "It's not cancer until they say it is".

What you ask is totally a personal choice. Resigning, applying for benefits and such is a decision that would yield results depending on your personal situation. We all have had life changing decisions in our journey and it's truly an intimate and personal choice.

It comes down to how you feel. If your "passion" for your work has faded or you're just tired and need a break. Meditate on the circumstances of your situation and make the appropriate decision.

Good Luck, positive thoughts and prayers on whatever decision you make.

"T"

Last edited by fishmanpa; 10-13-2013 12:40 PM.

57
Cardiac bypass 11/07
Cardiac stents 10/2012
Dx'd 11/30/2012 Tx N2b MO Stage IV HPV+
Palatine Tonsillectomy/Biopsies 12-21-12
Selective Neck Dissection/Lingual Tonsillectomy/biopsies TORS 2/7/13
Emergency Surgery/Bleeding 2/18/13
3/13/2013 30rads/6chemo
Finished Tx 4/24/13
NED Since
Joined: Nov 2006
Posts: 7
Member
OP Offline
Member

Joined: Nov 2006
Posts: 7
Thank you for your encouraging words. You are totally right--this is completely up to me. I needed to hear someone say that.


primary left lat SCC in tongue 7/05
age 27 at Dx, non-smoker, casual drinker, HPV negative
partial glossectomy and radical neck dissection 30 lymph nodes 8/05
SCC in lymph node with extracapsular invasion 1/06
partial glossectomy and neck resection, 30x rad, 3x cisplatin 2/06-4/06
recurrent SCC in tongue at primary site 6/11
partial glossectomy 7/11
Joined: Mar 2013
Posts: 421
Likes: 1
Platinum Member (300+ posts)
Offline
Platinum Member (300+ posts)

Joined: Mar 2013
Posts: 421
Likes: 1
I think about this too.

If I could "retire" so to speak at this point, I would, heal and enjoy the things that bring my heart joy smile Unfortunately, I cannot. However, I do play the lottery wink

"T"


57
Cardiac bypass 11/07
Cardiac stents 10/2012
Dx'd 11/30/2012 Tx N2b MO Stage IV HPV+
Palatine Tonsillectomy/Biopsies 12-21-12
Selective Neck Dissection/Lingual Tonsillectomy/biopsies TORS 2/7/13
Emergency Surgery/Bleeding 2/18/13
3/13/2013 30rads/6chemo
Finished Tx 4/24/13
NED Since
Joined: Jul 2012
Posts: 3,267
Likes: 4
Patient Advocate (old timer, 2000 posts)
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Patient Advocate (old timer, 2000 posts)

Joined: Jul 2012
Posts: 3,267
Likes: 4
Congratulations on being a 3x cancer fighter! I never say survivor, and I'm a 8x cancer fighter myself, and proud to say that. I feel your pain, your uncertainty, fears, even if it was a small bump. It doesn't get any easier each time, and each is like the first, having to go through the same testing, worry, wait, and is probably even worst than the first time knowing what you went through, can go through, and what limited treatments may be left. I'm glad this was not found cancerous, but probably will need to be monitored, and you are at the best place to do so, MD Anderson.

Before you do anything rash, maybe speak to your doctors on their thoughts. Personally, I've been through worst, speaking of myself, and wouldn't give up anything I have or regained now, including work if I did, but I haven't work in 4 years lol, not by choice, being situations are beyond our control sometimes, and wish everyday I could. Your thoughts, and situation may be different, and to each their own, but the main thing is to keep fighting! I say this now, maybe next week my thoughts will change smile All the best.



10/09 T1N2bM0 Tonsil
11/09 Taxo Cisp 5-FU, 6 Months Hosp
01/11 35 IMRT 70Gy 7 Wks
06/11 30 HBO
08/11 RND PNI
06/12 SND PNI LVI
08/12 RND Pec Flap IORT 12 Gy
10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux
10/13 SND
10/13 TBO/Angiograph
10/13 RND Carotid Remove IORT 10Gy PNI
12/13 25 Protons 50Gy 6 Wks Carbo
11/14 All Teeth Extract 30 HBO
03/15 Sequestromy Buccal Flap ORN
09/16 Mandibulectomy Fib Flap Sternotomy
04/17 Regraft hypergranulation Donor Site
06/17 Heart Attack Stent
02/19 Finally Cancer Free Took 10 yrs







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