| Joined: Jul 2013 Posts: 114 Senior Member (100+ posts) | OP Senior Member (100+ posts) Joined: Jul 2013 Posts: 114 | PET SCAN
Images through neck indicate no lymphadenopathy. There is mild asymmetric uptake of right tongue base SUV 4.1. No definite mass lesion is appreciated. The left tongue base has SUV of 3.7. It should be noted that level of uptake in both these regions is within expected levels for reactive process. The asymmetry of the right is minimum and not outside of expected limits. The level of activity is not necessarily indicative of imflammation from biopsy??
No clear evidence of FDG avid malignancy?? What does this mean
Mild uptake in right hilum without evidence of adenopathy, likely due to reactive lymph nodes?
I thought normal Suv was normall below 2. What is FGD? What do you guys think about the report? | | | | Joined: Mar 2013 Posts: 14 Member | Member Joined: Mar 2013 Posts: 14 | In short your report says there is nothing there to make one think you have cancer. It sounds like your lingual tonsils are reacting to something on both sides but one more than the other. Fdg-avid means taking up glucose. This is what cancer does in a pet scan. You show no evidence of malignancy taking up glucose. You also show no enlarged lymph nodes. Sounds like your fighting an upper respiratory infection or allergies. Your pet scan San sounds just like my ct scan I had 6 months ago. Minimum asymmetry in the BOT with no mass and no enlarged nodes.
Sounds like you are in the clear, but I'm not a doctor so best to discuss with them.
I will tell you about an article I just read since I am going through the same exact thing as you right now. I read an article about a woman who had a low grade lymphoma in the base if her tongue that had not spread anywhere else and caused no other symptoms than what you and I are experiencing. Mild BOT swelling. Lymphoma of the lingual tonsil is rare but it does happen. Not saying this to scare you or anything, but you could look it up.
I just read another article where they looked at the mean SUV for areas of the head and neck that weren't cancer and the mean for the lingual tonsils, which is the BOT, was 3.11. That was for non-cancer lingual tonsil uptake.
Last edited by Shane's; 09-28-2013 04:54 PM.
| | | | Joined: Jul 2013 Posts: 114 Senior Member (100+ posts) | OP Senior Member (100+ posts) Joined: Jul 2013 Posts: 114 | What's the difference in FGD uptake and SUV? Is one more significant than the other? | | | | Joined: Mar 2011 Posts: 1,024 "OCF Kiwi Down Under" Patient Advocate (1000+ posts) | "OCF Kiwi Down Under" Patient Advocate (1000+ posts) Joined: Mar 2011 Posts: 1,024 | Your PET scan says there is nothing to indicate cancer. Tammy
Caregiver/advocate to Husband Kris age 59@ diagnosis DX Dec '10 SCC BOT T4aN2bM0 HPV+ve.Cisplatin x3 35 IMRT. PET 6/11 clear. R) level 2-4 neck dissection 8/1/11 to remove residual node - necrotic with NED Feb '12 Ca back.. 3/8/12 total glossectomy/laryngectomy/bilat neck dissection/partial pharyngectomy etc. clear margins. All nodes negative for disease. PEG in. March 2017 - 5 years disease free. Woohoo!
| | | | Joined: Jul 2012 Posts: 3,267 Likes: 4 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Jul 2012 Posts: 3,267 Likes: 4 |
10/09 T1N2bM0 Tonsil 11/09 Taxo Cisp 5-FU, 6 Months Hosp 01/11 35 IMRT 70Gy 7 Wks 06/11 30 HBO 08/11 RND PNI 06/12 SND PNI LVI 08/12 RND Pec Flap IORT 12 Gy 10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux 10/13 SND 10/13 TBO/Angiograph 10/13 RND Carotid Remove IORT 10Gy PNI 12/13 25 Protons 50Gy 6 Wks Carbo 11/14 All Teeth Extract 30 HBO 03/15 Sequestromy Buccal Flap ORN 09/16 Mandibulectomy Fib Flap Sternotomy 04/17 Regraft hypergranulation Donor Site 06/17 Heart Attack Stent 02/19 Finally Cancer Free Took 10 yrs
| | | | Joined: May 2013 Posts: 188 Likes: 4 Senior Member (100+ posts) | Senior Member (100+ posts) Joined: May 2013 Posts: 188 Likes: 4 |
Age 55 HPV 16+ SCC, BOT 050613 Stage IV great team at OSU Tx 6 weeks of rad started June 3 8 weeks of chemo started May 28 RTOG Phase III trial Cetuximab group. Treatment completed 7/16/2013 PET Scan completed 10/08/13 Results discussed 10/11/13 NED - Free but am I Next part of the journey? 1year PET 10/24/14 NED Good reports now 10 years out. | | | | Joined: Mar 2013 Posts: 14 Member | Member Joined: Mar 2013 Posts: 14 | Portland, does your problem bother you when laying down the same as when standing? How about when eating? Any nasal or sinus congestion, particularly on the side that your tongue bothers you? | | | | Joined: Jul 2013 Posts: 114 Senior Member (100+ posts) | OP Senior Member (100+ posts) Joined: Jul 2013 Posts: 114 | Shane, I never hurt during the night and I hurt constantly during the day. This all started 8 months ago with a sinus infection. After the infection was cleared, I developed severe dry mouth, sore throat theneventually tongue pain and a earache. The tongue pain has been the worst of all. I have trouble swallowing also on the right. I have been tested for everything. Sinus clear, no allergies, no dental problems. I have been to over 25 docs. The sore throat and tongue pain is quite worrisome. I have taken over 6 antibiotics, medrol, nystatin, and nothing has helped. I know everything is clear, but I'm very worried because it's very painful and has been a progressive problem.
I'm suppose to have Tors Tuesday to biopsy lingual tonsils but just wondering if I should with the PET scan report. Everything always shows up worse on the right side. I even have uptake on right hila ? Node.
Last edited by portland72; 09-29-2013 11:29 AM.
| | | | Joined: Mar 2013 Posts: 421 Likes: 1 Platinum Member (300+ posts) | Platinum Member (300+ posts) Joined: Mar 2013 Posts: 421 Likes: 1 | [quote=portland72]I have been tested for everything. Sinus clear, no allergies, no dental problems. I have been to over 25 docs. I have taken over 6 antibiotics, medrol, nstatin.... I know everything is clear, but I'm very worried....
I'm suppose to have TORS Tuesday to biopsy lingual tonsils but just wondering if I should with the PET scan report. [/quote]
I think you should go through with the biopsy. What's one more procedure in the big picture? Hopefully, it will come back clear as has everything else and it will be the straw that convinces you you're Ok.
Good Luck!
"T"
57 Cardiac bypass 11/07 Cardiac stents 10/2012 Dx'd 11/30/2012 Tx N2b MO Stage IV HPV+ Palatine Tonsillectomy/Biopsies 12-21-12 Selective Neck Dissection/Lingual Tonsillectomy/biopsies TORS 2/7/13 Emergency Surgery/Bleeding 2/18/13 3/13/2013 30rads/6chemo Finished Tx 4/24/13 NED Since
| | | | Joined: Mar 2013 Posts: 421 Likes: 1 Platinum Member (300+ posts) | Platinum Member (300+ posts) Joined: Mar 2013 Posts: 421 Likes: 1 | Here's how a positive report reads....
FINDINGS:
HEAD & NECK +++ There are multiple enlarged, intensely FDG avid, nearly contiguous with left level II lymph nodes likely representing malignancy. The largest measures 2.7 x 1.9 cm (TP 194.2). There are at least 3 additional nearly contiguous lymph nodes in this region of similar size for example at TP 184.4, measuring approximately 1.6 x 1.8 cm. Correlation with tissue diagnosis is recommended.
+ There are scattered subcentimeter non-FDG avid contralateral right-sided cervical lymph nodes.
+++ There is no definite evidence of additional lesions which may represent primary site of disease. Tonsils demonstrate moderate to intense FDG uptake right greater than left, however recent pathology report of tonsillar biopsies yielded "no evidence of malignant neoplasm".
- There is no evidence of abnormal focal FDG uptake fusing to the visualized cerebral or cerebellar hemispheres.
- The visualized paranasal sinuses are clear.
- The thyroid gland is grossly unremarkable.
Reads a bit different than yours.
"T"
57 Cardiac bypass 11/07 Cardiac stents 10/2012 Dx'd 11/30/2012 Tx N2b MO Stage IV HPV+ Palatine Tonsillectomy/Biopsies 12-21-12 Selective Neck Dissection/Lingual Tonsillectomy/biopsies TORS 2/7/13 Emergency Surgery/Bleeding 2/18/13 3/13/2013 30rads/6chemo Finished Tx 4/24/13 NED Since
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