| | Joined: Aug 2011 Posts: 269 Gold Member (200+ posts) | OP  Gold Member (200+ posts)
Joined: Aug 2011 Posts: 269 | Uptown---yes that's what the RO suspects...and I tested by not taking any formula all day and ...still very nauseous all day. I've taken some food in orally and will take in formula later (just will accept a low calorie day) I'm on the verge of vomiting again and imagine I will after I take more food and formula later. I can't imagine vomiting out everything I take in and losing all that nutrition and calories. I took some zofran this morning that I had from the dr after my surgery and it didn't help. Now what? Maybe I'm stuck with this....  Christine thanks for all that info...I'm still getting the pump regardless what the problem is.
Nancy (53 at dx)
Metastatic SCC. Stage III. HPV positive with occult primary. N1, no ecs
7/1/11 - L-Selective neck dissection. Tonsillectomy. All clean. No rad, no chemo.
5/29/13 - Found primary
7/3/13 - TORS
7/8/13 - Emergency Surgery/Blood vessel burst in throat
8/9/13 - Peg in
9/3/13 - Radiation starts 30 IMRT, 60gy BOT, 56gy both sides of neck
10/14/13 - Radiation ended!
11/12/13 - PEG out!
| | | | | Joined: Feb 2005 Posts: 118 Likes: 1 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Feb 2005 Posts: 118 Likes: 1 | Nancy, I have a PEG and do bolus feeds. I have found the following prescription meds helpful with nausea: Reglan and Phenergan. Zofran was not helpful to me. Do some research and you may want to talk with your doctor about these meds if your nausea persists.
Be well. Zenda
12/04 SCC Tonsil, Stage IV T3N2BM0. Mod RND, resect right oropharynx, free-flap, resect right tongue base. Erbitux,Docetaxel,RT X 33. 6/08 Mets lung, hilar lymph node:Carboplatin, Docetaxel. 2010 2nd clinical trial:lung clear, node stable. ORN,trismus,dysphagia. 8-10/2012 cryoablation,brachytherapy,cyberknife to lymph node. 12/12 NED. 6/13 Mets RLL lung: 8/13 cyberknife. 11/13 NED.
| | | | | Joined: Aug 2011 Posts: 269 Gold Member (200+ posts) | | OP Gold Member (200+ posts)
Joined: Aug 2011 Posts: 269 | Thanks zenda - I picked up an rx for reglan today....crossing my fingers.
Nancy (53 at dx)
Metastatic SCC. Stage III. HPV positive with occult primary. N1, no ecs
7/1/11 - L-Selective neck dissection. Tonsillectomy. All clean. No rad, no chemo.
5/29/13 - Found primary
7/3/13 - TORS
7/8/13 - Emergency Surgery/Blood vessel burst in throat
8/9/13 - Peg in
9/3/13 - Radiation starts 30 IMRT, 60gy BOT, 56gy both sides of neck
10/14/13 - Radiation ended!
11/12/13 - PEG out!
| | | | | Joined: Jun 2013 Posts: 262 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Jun 2013 Posts: 262 | Nancy, I hope the new med does the trick!
53
T3N2aM0 HPV+
5/26/13 discovered painless superball-sized lymph node in neck
6/26/13 DX SCC R palatine tonsil
7/16/13 TORS tonsillectomy & selective ND, mets to 2 nodes
9/3/13 Cisplatin and rads begin, tolerated 1.5 of 3 planned chemo doses
10/16/13 Treatment ends
Dec 13 Ulcer appears at surgery site
Jan 17 Biopsy -- no cancer!
Feb 17 CT/PET Scan lights up tonsil bed & nasal cavity, docs say probably inflammation, don't panic, rescan when ulcer subsides
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Everyone is different and some meds may work for one and not the next person. I always swear by Zofran, I still take it once in a while.
PS...Nice to see you posting Zenda!
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | | | | Joined: Aug 2011 Posts: 269 Gold Member (200+ posts) | | OP Gold Member (200+ posts)
Joined: Aug 2011 Posts: 269 | Reglan works a little. Zofran didn't seem to help. Waiting for insurance to approve pump. Feel worse after I have a bolous feeding. I'm so nauseous I can barley think straight.
Nancy (53 at dx)
Metastatic SCC. Stage III. HPV positive with occult primary. N1, no ecs
7/1/11 - L-Selective neck dissection. Tonsillectomy. All clean. No rad, no chemo.
5/29/13 - Found primary
7/3/13 - TORS
7/8/13 - Emergency Surgery/Blood vessel burst in throat
8/9/13 - Peg in
9/3/13 - Radiation starts 30 IMRT, 60gy BOT, 56gy both sides of neck
10/14/13 - Radiation ended!
11/12/13 - PEG out!
| | | | | Joined: Jul 2013 Posts: 33 Contributing Member (25+ posts) | | Contributing Member (25+ posts)
Joined: Jul 2013 Posts: 33 | Nancy,
I suffered some degree of vomiting when I started on the PEG as well. I could correlate it back to adding a higher calorie formula, too fast through the syringe and too much activity shortly after feeding. Also seemed to occur right after getting up (after lying down or being sedentary for awhile). Zofran worked for me as long as I took it at regular intervals, prior to onset of any nausea.
Keep working to figure it out, but don't stop swallowing if you are not eating orally. I always sipped on mineral water and kept the swallowing going and it has paid off post treatment.
Best of luck.
Jasper
Male age 50 SCC BOT Stage IV HPV+ Tx 35xrad 3xchemo (cisplatin).
Tx completed 7/2013
MND 10/2013 (Pathology Negative)
Debridement for minor ORN 7/2014
| | | | | Joined: Aug 2011 Posts: 269 Gold Member (200+ posts) | | OP Gold Member (200+ posts)
Joined: Aug 2011 Posts: 269 | Thanks Jasper. I'm hoping the pump the doctor ordered will come in quickly, and solve this problem. Yesterday I heaved my guts out and by the looks of it, lost everything I had taken in all day. My dietician seems to think the formula should not be changed since I've been tolerating it up until now. I started using the PEG at the beginning of August. Never felt great after using it, but never threw up. This morning ....all I am doing is sipping water. I've been faithful with the reglan, but still can barely function. Brushes my teeth, making soda rinse and got online here...and I'm barely holding on til I the dry heaves start.
Longing for the days when I can write something positive. I'm like a broken record....
Nancy (53 at dx)
Metastatic SCC. Stage III. HPV positive with occult primary. N1, no ecs
7/1/11 - L-Selective neck dissection. Tonsillectomy. All clean. No rad, no chemo.
5/29/13 - Found primary
7/3/13 - TORS
7/8/13 - Emergency Surgery/Blood vessel burst in throat
8/9/13 - Peg in
9/3/13 - Radiation starts 30 IMRT, 60gy BOT, 56gy both sides of neck
10/14/13 - Radiation ended!
11/12/13 - PEG out!
| | | | | Joined: Apr 2013 Posts: 92 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Apr 2013 Posts: 92 | Hi ngk, how is the N&V going, I wish I had some advice to give you but this is one thing I didn't suffer from much and if I did it was short lived. I do know that when I was sick often for me it was nerves, if I could lay in bed and listen to some calming music and get my mind off it it was better.
Pretty much all I can do in this instance is listen and remind you its not going to last forever, your gonna get through this.
I look forward to reading your updates and keep sending positive thoughts your way. Take care of yourself.
AGE 38 10-2012 thru 3-2012 swollen lymph node,painful jaw and ear,2 antibiotics,X-ray,CAT scan,needle biopsy,scope, no answers
3-4-13 tonsillectomy and selective neck dissection, DX R tonsil SCC,METS to 1 lymph node,BOT,HPV+, stage IV
TX 35 RAD,3 chemo cisplatin/Taxol started 4-8-13
rad end 5-29-13
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