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#170293 09-01-2013 07:37 PM
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I have had a small knot on the right side of my neck for several years( 4-5 ?)
There are also a few tiny broken capillaries slightly above this knot. I have been concerned with the knot for many years and went to my ENT last year about it and he didn't seem concerned ,so I forgot about it .

About 8 months ago ,I felt the first of many tiny , rough bumps on my soft pallate .
3 weeks ago I looked further down my throat and notice a few tiny white bumps.
Within those weeks ,I watched the white bumps form into patches and begin to spread to the opposite side of my throat. There are also red bumps on the back of my throat and it is bright red where my throat would usually get sore but I have no pain. The bumps are spreading to the inside of my cheeks . My mouth appears more veiny looking and my left tonsil has drawn up and gotten flat.
I got ahead of myself... Before the bumps and everything I just described, I had an unusually large amout of tonsil stones . I gave myself an infection trying to push them out with the end of a make-up brush.
That is when I began to focus on my mouth more and noticed the bumps and patches. I went to my regular doctor first ,and he prescribed antibiotics. This stopped the tonsil stones but that is when I noticed the white and red patches spreading!! Can being on antibiotics spread cancer?( If it is cancer)

I decided to go to another ENt and he wanted to do a scan and to biopsy the neck. I decided to cancel the scan the week before it was scheduled and asked if I could just have a biopsy on the neck and my soft palate and throat. I am wondering if I should get a tonsillectomy ? The ENT thinks I should but I am afraid it will spread if it is cancer ! Them sometimes I think if it is cancer in my tonsils I might be better of getting rid of them! I am so scared . I barely can think of anything else . Except my husband , who has had a difficult time getting air through his nose because of small passages. This is only been a symptom for h for about 4 years. Sometimes he gets headaches but only about 2 a year. He developed staph in his nose earlier this year and needed antibiotics and a salve to clear it up but it came back again several months later. He received message again and it is gone now. Last week he developed and infection in his cuticle and had to go to the ER . The doctor lanced it and gave him more antibiotics. He doesn't seem to be healing from any of his injuries without antibiotics.
Should I get my tonsils out ? And will the doctor biopsy them if I ask him to? Or will the biopsies on my neck node and soft palate be enough for him to tell if I have cancer..??


41yr old female . Looking for answers to my symptoms.
Scheduled for a biopsy on my neck and soft palate and a tonsillectomy on9/4/13
fishmanpa #170294 09-01-2013 07:44 PM
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There's a saying about a can of worms.......

"T"


57
Cardiac bypass 11/07
Cardiac stents 10/2012
Dx'd 11/30/2012 Tx N2b MO Stage IV HPV+
Palatine Tonsillectomy/Biopsies 12-21-12
Selective Neck Dissection/Lingual Tonsillectomy/biopsies TORS 2/7/13
Emergency Surgery/Bleeding 2/18/13
3/13/2013 30rads/6chemo
Finished Tx 4/24/13
NED Since
downrange #170307 09-02-2013 07:12 AM
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A biopsy is the only way to tell for certain what is going on. Seek out an ENT who is experienced with treating oral cancer patients. It could be many different things besides oral cancer.

Hope it turns out to be nothing serious. Best wishes!


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
downrange #170317 09-02-2013 10:45 AM
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Get it checked. My little sore on my tongue grew between visit and surgery, it had to come out just because it would not heal, and sure enough a tumir was lurking beneath. It could have gone either way. The rest of my treatment has been preemptive, so don't let it scare you. This is a great place for information, but only the docs can actually tell you what it is, so let them get yoy checked out and then everyone here will help you get through whatever is needed.


Surgery 5/31/13
Tongue lesion, right side
SCC, HPV+, poorly differentiated
T1N0 based on biopsy and scan
Selective neck dissection 8/27/13, clear nodes
12/2/13 follow-up with concerns
12/3/13 biopsy, surgery, cancer returned
1/8/14 Port installed
PEG installed
Chemo and rads
2/14/14 halfway through carboplatin/taxotere and rads
March '14, Tx done, port out w/ complications, PEG out in June
2017: probable trigeminal neuralgia
Fall 2017: HBOT
Jan 18: oral surgery
downrange #170419 09-04-2013 08:46 AM
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Not sure why you cancelled the scan. It is a good tool for giving a clearer (though not compete idea of what is going on.) Ideally you should do what your ent says - remove the tonsils - see what comes of that. What you have doesn't necessarily sound like cancer since the issues are kind of spread out and all over - though there is likely something going on.
Fear sometimes has the ability to incapacitate us, but doing nothing can be deadly - so do what you can now and get to the bottom of it. ;o) hugs.


Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan

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