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#167763 07-12-2013 10:14 AM
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Hi, everybody,
I recently had a bone density scan, and my primary care physician would like to see me, so I have an appointment next week. I figure that I probably have osteoporosis...not surprising since I am 68 years old. I did some preliminary research and noticed that many of the drugs used to treat this have side effects that include problems with the teeth and jaw. I really don't want to risk that, since the radiation has really done a number on my teeth as it is. Have any of you been diagnosed with this, and if so, how has it been treated? I am hoping that I can get away with increased exercise and more calcium.


Female, nonsmoker, 70, diag. 5/09 after tongue biopsy: stage IV. Left hemi-gloss. and left selec. neck disec. 30 lymph nodes removed May 20. Over 7 weeks daily rads. with three chemo. PEG removed 12/4/09 Am eating mostly soft foods. Back to work 11/09 Retired 4/1/11. 7 clear scans! Port out 9/11. 2/13. It's back: base of tongue, very invasive
surgery involving lifestyle changes. 2/14: Now speaking w/Passey-Muir valve. Considering a swallow study. Grateful to be alive.
zengalib #167784 07-12-2013 03:35 PM
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I haven't really been diagnosed, but did have a back molar that was infected, showed signs of necrosis, that needed to be extracted, and did 30 HBO treatments, 20 before,10 after. They use hyperbaric chamber treatment for osteonecrosis, and hopefully that works, prevents, or delays surgery. Good luck.


10/09 T1N2bM0 Tonsil
11/09 Taxo Cisp 5-FU, 6 Months Hosp
01/11 35 IMRT 70Gy 7 Wks
06/11 30 HBO
08/11 RND PNI
06/12 SND PNI LVI
08/12 RND Pec Flap IORT 12 Gy
10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux
10/13 SND
10/13 TBO/Angiograph
10/13 RND Carotid Remove IORT 10Gy PNI
12/13 25 Protons 50Gy 6 Wks Carbo
11/14 All Teeth Extract 30 HBO
03/15 Sequestromy Buccal Flap ORN
09/16 Mandibulectomy Fib Flap Sternotomy
04/17 Regraft hypergranulation Donor Site
06/17 Heart Attack Stent
02/19 Finally Cancer Free Took 10 yrs






zengalib #167799 07-12-2013 04:44 PM
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Actually, I was talking about osteoporosis, not osteonecrosis. About 50% of women over 65 get this. I just don't want to take any meds that make my teeth worse and cause jaw problems, and many of meds to treat it have side effects that can effect the teeth and the jaw.


Female, nonsmoker, 70, diag. 5/09 after tongue biopsy: stage IV. Left hemi-gloss. and left selec. neck disec. 30 lymph nodes removed May 20. Over 7 weeks daily rads. with three chemo. PEG removed 12/4/09 Am eating mostly soft foods. Back to work 11/09 Retired 4/1/11. 7 clear scans! Port out 9/11. 2/13. It's back: base of tongue, very invasive
surgery involving lifestyle changes. 2/14: Now speaking w/Passey-Muir valve. Considering a swallow study. Grateful to be alive.
zengalib #167803 07-12-2013 05:14 PM
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Lol. I thought it was a typo. Anyway, HBOT may be good for that also. Ask your doctor. Good luck.


10/09 T1N2bM0 Tonsil
11/09 Taxo Cisp 5-FU, 6 Months Hosp
01/11 35 IMRT 70Gy 7 Wks
06/11 30 HBO
08/11 RND PNI
06/12 SND PNI LVI
08/12 RND Pec Flap IORT 12 Gy
10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux
10/13 SND
10/13 TBO/Angiograph
10/13 RND Carotid Remove IORT 10Gy PNI
12/13 25 Protons 50Gy 6 Wks Carbo
11/14 All Teeth Extract 30 HBO
03/15 Sequestromy Buccal Flap ORN
09/16 Mandibulectomy Fib Flap Sternotomy
04/17 Regraft hypergranulation Donor Site
06/17 Heart Attack Stent
02/19 Finally Cancer Free Took 10 yrs






zengalib #167804 07-12-2013 05:30 PM
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I had a bone density scan a few years ago which showed I had osteopenia (a pre-osteoporosis condition). My doctor warned me not to go on any of the medications for osteoporosis because of the risk of more damage to my jaw and teeth. He recommended calcium, vitamin D, diet and exercise. From what I understand there are different types of calcium � he said to use calcium citrate +D such as Citracal.

A number of my female older relatives have had osteoporosis and I guess I can blame osteopenia on heredity and ORN on the radiation. frown

By the way, I also have issues with my jaw because of the radiation (loose teeth that were removed recently and jaw pain). I�ve had HBO twice because of this.

Good luck! Please let me know what your doctor recommends.



Susan

SCC R-Lateral tongue, T1N0M0
Age 47 at Dx, non-smoker, casual drinker, HPV-
Surgery: June 2005
RT: Feb-Apr 2006
HBOT: 45 in 2008; 30 in 2013; 30 in 2022 -> Total 105!
Recurrence/Surgeries: Jan & Apr 2010
Biopsy 2/2011: Moderate dysplasia
Surgery 4/2011: Mild dysplasia
Dental issues: 2013-2022 (ORN)
zengalib #167807 07-12-2013 06:04 PM
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Thanks, Susan,
I am hoping that I can get away with taking calcium and exercising. When I researched osteoporosis, the side effects of the meds were really a red flag with me. Paul, that's OK, hopefully extra calcium and exercise will help. My teeth have held up so far, even though I seem to get a lot of fillings, and I haven't lost any. I use the fluoride gel every night, religiously, and I brush my teeth each time I eat or drink something that isn't water.


Female, nonsmoker, 70, diag. 5/09 after tongue biopsy: stage IV. Left hemi-gloss. and left selec. neck disec. 30 lymph nodes removed May 20. Over 7 weeks daily rads. with three chemo. PEG removed 12/4/09 Am eating mostly soft foods. Back to work 11/09 Retired 4/1/11. 7 clear scans! Port out 9/11. 2/13. It's back: base of tongue, very invasive
surgery involving lifestyle changes. 2/14: Now speaking w/Passey-Muir valve. Considering a swallow study. Grateful to be alive.
zengalib #167842 07-13-2013 11:47 AM
Joined: Feb 2005
Posts: 118
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I had osteoporosis prior to my 2005 SCC dx and was on Fosamax for five years from 2002 until 2007. My condition improved to a dx of osteopenia. I discontinued Fosamax after some research into the side effects. At that time I was getting plenty of weight-bearing exercise and calcium through my diet. However, in 2011 I developed osteoradionecrosis in my right mandible. I increased my calcium and vitamin D3 through supplements. Several doctors have told me that Fosamax may have been a factor in developing osteoradionecrosis. The XRT in 2005 was the primary factor in ORN. I do have a family history of osteoporosis. I too have had a number of fillings in the past seven years and use fluoride nightly.

All the best to you in managing after effects of radiation.


Be well. Zenda
12/04 SCC Tonsil, Stage IV T3N2BM0. Mod RND, resect right oropharynx, free-flap, resect right tongue base. Erbitux,Docetaxel,RT X 33. 6/08 Mets lung, hilar lymph node:Carboplatin, Docetaxel. 2010 2nd clinical trial:lung clear, node stable. ORN,trismus,dysphagia. 8-10/2012 cryoablation,brachytherapy,cyberknife to lymph node. 12/12 NED. 6/13 Mets RLL lung: 8/13 cyberknife. 11/13 NED.
zengalib #167847 07-13-2013 01:20 PM
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Sorry to hear you are having a different type of health issue. Im glad you brought it up on the forum. Many members may not have known to watch closely for side effects like what you mentioned. Anything that has the capability to affect teeth and the jaw need to be avoided for OC survivors. Good eye!!!


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
zengalib #167851 07-13-2013 05:00 PM
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Posts: 493
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Thanks, Christine. I didn't think that I had ever seen the subject on the forum. It is a pretty common condition for women my age, but I plan to really emphasize to my doctor that I cannot take the meds that are frequently prescribed for it. My teeth have held up so far, even though I have had a number of cavities, and I don't want to risk damaging them further. I don't know for sure that is what I have, but the fact that the doctor wants to see me after reading the results of my bone density scan, makes me fairly certain that's what it is. Hopefully I will be able to control it with diet and exercise.


Female, nonsmoker, 70, diag. 5/09 after tongue biopsy: stage IV. Left hemi-gloss. and left selec. neck disec. 30 lymph nodes removed May 20. Over 7 weeks daily rads. with three chemo. PEG removed 12/4/09 Am eating mostly soft foods. Back to work 11/09 Retired 4/1/11. 7 clear scans! Port out 9/11. 2/13. It's back: base of tongue, very invasive
surgery involving lifestyle changes. 2/14: Now speaking w/Passey-Muir valve. Considering a swallow study. Grateful to be alive.
zengalib #167881 07-14-2013 01:19 PM
Joined: Nov 2006
Posts: 2,671
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Great information here. Just goes to show that whatever meds are prescribed for other conditions, if you've had oral cancer, it is a good idea to always check with your oncologist to make sure there are no contraindications to taking them. Several years ago I was diagnosed with osteopenia and my family doctor gave me some free samples of Fosomax to try, but after researching the side effects, I never took them and I've been doing great with exercise, Osteo Bi-Flex and swimming. At a later bone density test, it showed improvement.


Anne-Marie
CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)



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