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Caco Offline OP
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Mets, then spot radiation to Pop's humerous (arm) to relieve bone pain resulted in an inevitable fracture, which given some time did not heal, which after a pin was inserted resulted in a post op near death reaction. He's still in hospital/rehab care, and struggling, as right before surgery he had (3) fine needle biopsies to rule out a new cancer in the same arm. Now his shoulder and arm have skin-level painful nodules multiplying like rabbits starting at the biopsy point of entry (lymph nodes near the clavicle/shoulder) and springing up and down the lymphatic path in his fractured arm.

I've convinced his rehab team that we need to get him transported to a local cancer center as he can't travel to his CCC for a radiation consult. Has ANYONE here dealt with tumor/cancer "tracking" where a biopsy has brought cells up to skin level causing pain, etc? Any help or referrals appreciated, and I'll be sure to keep you posted.

Last edited by Caco; 06-25-2013 01:22 PM.

Caco
CG to Dad. Biopsy 5/11 non-op, SCC stage IV poorly dif at base of tongue with nodes, quit smoking in '85, ChemoRad began 8/2/11 ended 9/22/11 with NED. Distant mets 11/11, clinical trials. War raging on!
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Im very sorry, I have never seen this discussed on the forum before.


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
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Posts: 5,260
"OCF Canuck"
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Liza had a similar situation they treated with chemo then did reads. Hugs to you girl - he should be at a CCC. Push and make noise.


Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
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Who mentioned the condition, cause it's not common. I have no personal experience, but it seems to have occurred with some cases in the lungs with large bore needle biopsies, not fine needle, to what extent you describe, I don't know. Your father should be seen at the CCC. Don't wait for rehab. Call an ambulate or make other arrangements to be seen by a more specialized doctor, if stabilized enough for transportation. Most think your confined to the nursing home, and just under their care. You can go see any doctor, and go back later in the day. It could be another type bodily response too, but I don't know.

Good luck.


10/09 T1N2bM0 Tonsil
11/09 Taxo Cisp 5-FU, 6 Months Hosp
01/11 35 IMRT 70Gy 7 Wks
06/11 30 HBO
08/11 RND PNI
06/12 SND PNI LVI
08/12 RND Pec Flap IORT 12 Gy
10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux
10/13 SND
10/13 TBO/Angiograph
10/13 RND Carotid Remove IORT 10Gy PNI
12/13 25 Protons 50Gy 6 Wks Carbo
11/14 All Teeth Extract 30 HBO
03/15 Sequestromy Buccal Flap ORN
09/16 Mandibulectomy Fib Flap Sternotomy
04/17 Regraft hypergranulation Donor Site
06/17 Heart Attack Stent
02/19 Finally Cancer Free Took 10 yrs






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Caco Offline OP
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Yes, it is rare Paul, less than 2% from what I'm reading, and like everything associated with our ole friend OC I'm learning more about it. He's been at a CCC all along, but had a post surgical reaction after discharge for an orthopedic pin to secure a fracture--before he even made it into his house he almost died. He's still recovering a week later from that at his current hospital (1.5 hrs from our CCC) as it was yet another rare reaction that no one--hosp, CDC, CCC can identify. So he has 3x setbacks at this point.

He's too weak to commute to his CCC and needs daily PT. His pre surgery biopsy escalated metastasis to skin level on the same arm he fractured, causing more pain and impeding PT progress. Imagine what that arm looks like about now :l The "good" in this is that our CCC team IS working with the CC team at this local hospital, both MOs and ROs know each other and come from the same CCC Harvard pedigree, and his palliative radiation plan is the same whether here or there.

If we were still in curative stage, I'd be carrying him on my back to CCC treatment. Quality of life trumps travel option at this point. What amazes me is the fast progression of these mets. For whatever reason they let me watch his biopsy in May so I know exactly where those needles went in, and within a month that area is now a pool of raised nodes.

FWIW, the CCC MO told us "he's not surprised" re the new nodes and I'm still trying to circle back with him at what he meant...the more I learn the more I'll share. I can confirm that before that biopsy, he had only lytic lesions, not defined tumors per his PET this May.

Last edited by Caco; 06-26-2013 04:51 PM.

Caco
CG to Dad. Biopsy 5/11 non-op, SCC stage IV poorly dif at base of tongue with nodes, quit smoking in '85, ChemoRad began 8/2/11 ended 9/22/11 with NED. Distant mets 11/11, clinical trials. War raging on!
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Caco Offline OP
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And thanks Chris and Cheryl--he'll get through this, getting a little better and stronger each day. Chris, he was hitting on his nurse before I left today and has most of the LVH (female) staff enchanted, so he's coming back to us.


Caco
CG to Dad. Biopsy 5/11 non-op, SCC stage IV poorly dif at base of tongue with nodes, quit smoking in '85, ChemoRad began 8/2/11 ended 9/22/11 with NED. Distant mets 11/11, clinical trials. War raging on!
Joined: Jun 2011
Posts: 188
Caco Offline OP
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heartbroken to let you know that pop begins hospice on Monday. the past 8 weeks have been a roller coaster but now it's steady decline.


Caco
CG to Dad. Biopsy 5/11 non-op, SCC stage IV poorly dif at base of tongue with nodes, quit smoking in '85, ChemoRad began 8/2/11 ended 9/22/11 with NED. Distant mets 11/11, clinical trials. War raging on!
Joined: Jun 2007
Posts: 10,507
Likes: 2
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Im very sorry to hear your father has not gotten any better and will be starting hospice. He has been thru so much already. Im very sorry!!!


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
Joined: Mar 2011
Posts: 1,024
"OCF Kiwi Down Under"
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So sorry to hear this Caco. Just enjoy every moment you have with him.
Tammy


Caregiver/advocate to Husband Kris age 59@ diagnosis
DX Dec '10 SCC BOT T4aN2bM0 HPV+ve.Cisplatin x3 35 IMRT.
PET 6/11 clear.
R) level 2-4 neck dissection 8/1/11 to remove residual node - necrotic with NED
Feb '12 Ca back.. 3/8/12 total glossectomy/laryngectomy/bilat neck dissection/partial pharyngectomy etc. clear margins. All nodes negative for disease. PEG in.
March 2017 - 5 years disease free. Woohoo!
Joined: Sep 2006
Posts: 8,311
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So so sorry.


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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