| Joined: Jan 2011 Posts: 168 Senior Member (100+ posts) | OP Senior Member (100+ posts) Joined: Jan 2011 Posts: 168 | Hi Folks: I have posted a little on recent developments with me: a paralyzed left vocal chord and new lesions. I had my CT scan this morning to rule out cancer recurrence. If the CT scan is clear (I'll know next Wednesday) we will start to talk about treating the paralyzed vocal chord. I have been doing some reading about this condition and wonder if anyone has had any experience with RRP (recurrent respiratory papillomatosis). I am seeing that there is a connection between RRP and HPV and since my tumor was HPV+ I am interesting in knowing more about this condition, how it is diagnosed and treated, and anything else people might know about it. Thanks, as always. -Michelle
SCC left tonsil, stage IV, HPV+, metastatic to one lymph node. Biopsy 12/23/10; tonsillectomy 1/13/11; DX 1/25/11; Peg in 1/28/11. Peg out 6/29. TX 1/31/11-3/21/11: 35 IMRT plus 3 Cisplatin. Pet-Scan 6/20/11 = CLEAR! Three years out, learning to live with the long-term side effects of radiation while reminding myself to feel blessed.
| | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 7 | The percentage of HPV+ lung cancer is very low only 6%. 90% of lung cancers are caused by tobacco use. here is the article you were referring to. Its available on the OCF newsfeed. Everyone should sign up for this free service to get all the latest OC news. At this time HPV is being researched and new info is being learned. While much info has been learned already about HPV, there is much more which is yet to be discovered. This is one of the reasons all the donations to OCF are so important.... OCF funds not just OC but also HPV research. HPV+ and lung cancer ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | Joined: Jul 2012 Posts: 3,267 Likes: 4 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Jul 2012 Posts: 3,267 Likes: 4 | I went for a consultation on Wednesdayfor collagen injection for vocal cord paralysis. The ENT/ Larynvologist, said I didn't need it, due to one vocal flap parlysis, and my voice is functions well. Today it's not so good, chocking all day. Bit I'll manage. I see my ENT/Radiation a oncologist on Monday. My hospital is Beth Israel, I wonder If MA is associated with mine. MA is very good, I hear or come to NYC to NY Eye and Ear Infirmary or others. Good luck.
10/09 T1N2bM0 Tonsil 11/09 Taxo Cisp 5-FU, 6 Months Hosp 01/11 35 IMRT 70Gy 7 Wks 06/11 30 HBO 08/11 RND PNI 06/12 SND PNI LVI 08/12 RND Pec Flap IORT 12 Gy 10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux 10/13 SND 10/13 TBO/Angiograph 10/13 RND Carotid Remove IORT 10Gy PNI 12/13 25 Protons 50Gy 6 Wks Carbo 11/14 All Teeth Extract 30 HBO 03/15 Sequestromy Buccal Flap ORN 09/16 Mandibulectomy Fib Flap Sternotomy 04/17 Regraft hypergranulation Donor Site 06/17 Heart Attack Stent 02/19 Finally Cancer Free Took 10 yrs
| | | | Joined: Jul 2012 Posts: 3,267 Likes: 4 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Jul 2012 Posts: 3,267 Likes: 4 | 'A special population of patients with recurrent respiratory papillomatosis (RRP) may be more suseptible to HPV -related oncogenesis in the larynx and other portions of the respiratory tract. RRP is typically assoctiated with HPV-6 and HPV-11, which are considered to be low risk types, warts, in the anoanogenital tract. However, data fron clinical cases have documented instances in which low risk HPV(typically HPV-11) RRP related can undergo malignamy transformation. seems to be uncommon. Adult 3 to 5% with adult onset.' http://www.hu.ufsc.br/projeto_hpv/T...rrent%20Respiratory%20Papillomatosis.pdfhttp://www.ncbi.nlm.nih.gov/pubmed/20015762
Last edited by PaulB; 06-10-2013 06:02 AM. Reason: Link
10/09 T1N2bM0 Tonsil 11/09 Taxo Cisp 5-FU, 6 Months Hosp 01/11 35 IMRT 70Gy 7 Wks 06/11 30 HBO 08/11 RND PNI 06/12 SND PNI LVI 08/12 RND Pec Flap IORT 12 Gy 10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux 10/13 SND 10/13 TBO/Angiograph 10/13 RND Carotid Remove IORT 10Gy PNI 12/13 25 Protons 50Gy 6 Wks Carbo 11/14 All Teeth Extract 30 HBO 03/15 Sequestromy Buccal Flap ORN 09/16 Mandibulectomy Fib Flap Sternotomy 04/17 Regraft hypergranulation Donor Site 06/17 Heart Attack Stent 02/19 Finally Cancer Free Took 10 yrs
| | | | Joined: Jan 2011 Posts: 168 Senior Member (100+ posts) | OP Senior Member (100+ posts) Joined: Jan 2011 Posts: 168 | Thanks for these responses. My CT scan came back clear - phew. So now the ENT wants me to make an appt with a speech therapist and one with him to talk abut injections. One day at a time. At least the CT scan was clear. That's a huge relief. -Michelle
SCC left tonsil, stage IV, HPV+, metastatic to one lymph node. Biopsy 12/23/10; tonsillectomy 1/13/11; DX 1/25/11; Peg in 1/28/11. Peg out 6/29. TX 1/31/11-3/21/11: 35 IMRT plus 3 Cisplatin. Pet-Scan 6/20/11 = CLEAR! Three years out, learning to live with the long-term side effects of radiation while reminding myself to feel blessed.
| | | | Joined: Jul 2012 Posts: 3,267 Likes: 4 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Jul 2012 Posts: 3,267 Likes: 4 | That's a relief! I go for my 6th month PET/CT scan in August.
10/09 T1N2bM0 Tonsil 11/09 Taxo Cisp 5-FU, 6 Months Hosp 01/11 35 IMRT 70Gy 7 Wks 06/11 30 HBO 08/11 RND PNI 06/12 SND PNI LVI 08/12 RND Pec Flap IORT 12 Gy 10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux 10/13 SND 10/13 TBO/Angiograph 10/13 RND Carotid Remove IORT 10Gy PNI 12/13 25 Protons 50Gy 6 Wks Carbo 11/14 All Teeth Extract 30 HBO 03/15 Sequestromy Buccal Flap ORN 09/16 Mandibulectomy Fib Flap Sternotomy 04/17 Regraft hypergranulation Donor Site 06/17 Heart Attack Stent 02/19 Finally Cancer Free Took 10 yrs
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