| Joined: Dec 2010 Posts: 5,264 Likes: 5 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | "OCF Canuck" Patient Advocate (old timer, 2000 posts) Joined: Dec 2010 Posts: 5,264 Likes: 5 | Precisely... ;o) If your terminal, or like my dad - have lost the will to live and in pain - it makes sense (he was bed ridden, with no chance of going home ever as my stepmom couldn't handle him alone or even with a nurse's help). He had had a severe stroke followed by a broken hip - courtesy of the rehab center he was at - The stroke was first and he was recovering enough to go home with a wheel chair and very independent - but he fell two weeks before he was due to be released and from that point on it was downhill. His speech, ability to eat, outlook, all of that was severely compromised as they had to change his anticoagulants to operate and he had another small stroke. Then they sent him to a complex care facility to try and get him up to rehabilitation standards - and they were brutal there. He ended up malnourished and dehydrated, and wasting. Up to that point he had no dnr so when he came down with pneumonia they first checked ( content to let him die if he had a DNR rather than provide basic medical care ) if he had a DNR then sent him to emerge - he improved remarkably at a regular hospital. After he was released and sent back to the facility they asked us to sign a dnr, we did - not a good idea. I had told them repeatedly when he returned from emerge, that he still had pneumonia - I heard the distinctive rattle and I was only with him one hour a day - they were with him all the time and were content to do nothing - they finally called the dr. at MINE and my stepmom's request - but I was told NO he didn't have pneumonia. Less that a week later we insisted he have a chest xray. and sure enough the day he died - literally 15 minutes after - they came to us with the results - he'd had severe pneumonia. They were idiots, and the care pathetic. They chose to let him die rather than treat a basic illness. A DNR means no extreme life saving measures. basic medication is NOT an extreme measure, just basic care. It's like saying ooops - he cut himself shaving but he has a DNR so we'll just let him bleed out...
urg... sorry still pissed I guess, it was only a few months ago. hugs all
Last edited by Cheryld; 06-06-2013 07:28 AM.
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | Joined: Jul 2012 Posts: 3,267 Likes: 4 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Jul 2012 Posts: 3,267 Likes: 4 | Nursing homes can be brutal! I was in a critical care unit for three months, nearly died from dehydration, c-diff, kidney failure. My brother had to call 911 to get me to the hospital when the facility doctor said there was no need, and tried to convince me I was ok. Staff could not even put in an IV. I was in the hosp for 20 days as a result, and was then was supposed to go back lol. I went home instead. Some doctors said I would probably die otherwise. I did better at home.
Sorry for your loss.
10/09 T1N2bM0 Tonsil 11/09 Taxo Cisp 5-FU, 6 Months Hosp 01/11 35 IMRT 70Gy 7 Wks 06/11 30 HBO 08/11 RND PNI 06/12 SND PNI LVI 08/12 RND Pec Flap IORT 12 Gy 10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux 10/13 SND 10/13 TBO/Angiograph 10/13 RND Carotid Remove IORT 10Gy PNI 12/13 25 Protons 50Gy 6 Wks Carbo 11/14 All Teeth Extract 30 HBO 03/15 Sequestromy Buccal Flap ORN 09/16 Mandibulectomy Fib Flap Sternotomy 04/17 Regraft hypergranulation Donor Site 06/17 Heart Attack Stent 02/19 Finally Cancer Free Took 10 yrs
| | | | Joined: Dec 2010 Posts: 5,264 Likes: 5 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | "OCF Canuck" Patient Advocate (old timer, 2000 posts) Joined: Dec 2010 Posts: 5,264 Likes: 5 |
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | Joined: Sep 2008 Posts: 711 "Above & Beyond" Member (500+ posts) | OP "Above & Beyond" Member (500+ posts) Joined: Sep 2008 Posts: 711 | Well, Linda is improving every day. The ventilator is gone and she's just getting oxygen from a blow by tube. She's scheduled to get a peg on Saturday so the feeding tube can come out of her nose. So gratifying to see her progress, from critical 2 weeks ago to where she is now is huge. She's one strong woman is my Linda.
David R. 65 yr old male non-smoker, light drinker, stage 3 or 4, depending on which doc you ask, scc rt. tonsil, 2 nodes, 7 weeks radiation and chemo. No surgery. Teatment ended 3/20/08. PET scan 8/08 showed no cancer. And now, as of oct, 2010, caregiver to wife, Linda, with breast cancer. May, 2013, Linda diagnosed with stage 3 ovarian cancer. Enuf already.
| | | | Joined: Sep 2006 Posts: 1,357 Likes: 5 "OCF Canuck" Patient Advocate (1000+ posts) | "OCF Canuck" Patient Advocate (1000+ posts) Joined: Sep 2006 Posts: 1,357 Likes: 5 | So very happy to hear of Linda's progress David. I agree - she is a strong woman and going forward as she learns of the cancer recurrance she will need to use every bit of that strength. You remain in my prayers. Hugs to you both.
Donna
Donna,69, SCC L Tongue T2N1MO Stg IV 4/04 w/partial gloss;32 radtx; T2N2M0 Stg IV; R tongue-2nd partial gloss w/graft 10/07; 30 radtx/2 cispl 2/08. 3rd Oral Cancer surgery 1/22 - Stage 1. 2022 surgery eliminated swallowing and bottom left jaw. Now a “Tubie for Life”.no food envy - Thank God! Surviving isn't easy!!!! .Proudly Canadian - YES, UNIVERSAL HEALTH CARE IS WONDERFUL! (Not perfect but definitely WONDERFUL)
| | | | Joined: Oct 2012 Posts: 1,275 Likes: 8 Assistant Admin Patient Advocate (1000+ posts) | Assistant Admin Patient Advocate (1000+ posts) Joined: Oct 2012 Posts: 1,275 Likes: 8 | That's a step forward for Linda. Sending you positive thoughts.
Gloria She stood in the storm, and when the wind did not blow her way, she adjusted her sails... Elizabeth Edwards
Wife to John,dx 10/2012, BOT, HPV+, T3N2MO, RAD 70 gy,Cisplatinx2 , PEG in Dec 6, 2012, dx dvt in both legs after second chemo session, Apr 03/13 NED, July 2013 met to lungs, Phase 1 immunotherapy trial Jan 18/14 to July/14. Taxol/carboplatin July/14. Esophagus re-opened Oct 14. PEG out April 8, 2015. Phase 2 trial of Selinexor April to July 2015. At peace Jan 15, 2016. | | | | Joined: Jun 2009 Posts: 875 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Jun 2009 Posts: 875 | Prayers are with you and Linda, David, and hope that things keep improving every day. Julieann
Julieann Nov 2007 SCC on right tonsil following tonsillectomy. Was smoker, QUIT. (Stage IV T2 N2b) 7 weeks radiation one day/wk chemo (carboplatin and 5-FU). Allergic to Taxol; PEG in, lost 30 lbs. TX completed January 2008. PEG out mid- 2008. PET/CT 1/17/2011;2/3/12 NEGATIVE for cancer | | | | Joined: Apr 2013 Posts: 319 Likes: 1 Platinum Member (300+ posts) | Platinum Member (300+ posts) Joined: Apr 2013 Posts: 319 Likes: 1 | Sorry to be late to the gathering, but please accept my best wishes for a positive outcome for your courageous bride, David2!
Bart
My intro: http://oralcancersupport.org/forums/ubbt...3644#Post16364409/09 - Dx OC Stg IV 10/09 - Chemo/3 Cisplatin, 40 rad 11/09 - PET CLEAN 07/11 - Dx Stage IV C. (Liver) 06/12 - PET CLEAN 09/12 - PET Dist Met (Liver) 04/13 - PET CLEAN 06/13 - PET Dist Met (Liver + 1 lymph node) 10/13 - PET - Xeloda ineffective 11/13 - Liver packed w/ SIRI-Spheres 02/14 - PET - Siri-Spheres effective, 4cm tumor in lymph-node 03/15 - Begin 15 Rads 03/24 - Final Rad! Woot! 7/27/14 Bart passed away. RIP!
| | | | Joined: Apr 2013 Posts: 319 Likes: 1 Platinum Member (300+ posts) | Platinum Member (300+ posts) Joined: Apr 2013 Posts: 319 Likes: 1 | Paul, Cheryld and anyone else experiencing this kind of treatment, my advice is based upon the fact that facilities run like the ones you've described should not continue to be in business. They do more harm than good.
The minute you encounter such obstructionism/incompetence, raise hell. Not with the miscreants who are the problem, but with the licensing bodies, the local politicians and the local Press!
Put these people out of business, and do it ruthlessly. You'll be doing humanity a big favor.
Last edited by Bart; 06-10-2013 05:12 PM.
My intro: http://oralcancersupport.org/forums/ubbt...3644#Post16364409/09 - Dx OC Stg IV 10/09 - Chemo/3 Cisplatin, 40 rad 11/09 - PET CLEAN 07/11 - Dx Stage IV C. (Liver) 06/12 - PET CLEAN 09/12 - PET Dist Met (Liver) 04/13 - PET CLEAN 06/13 - PET Dist Met (Liver + 1 lymph node) 10/13 - PET - Xeloda ineffective 11/13 - Liver packed w/ SIRI-Spheres 02/14 - PET - Siri-Spheres effective, 4cm tumor in lymph-node 03/15 - Begin 15 Rads 03/24 - Final Rad! Woot! 7/27/14 Bart passed away. RIP!
| | | | Joined: Jul 2012 Posts: 3,267 Likes: 4 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Jul 2012 Posts: 3,267 Likes: 4 | Thanks Bart, but when you are near death, it's not a top priority, and only thought is death, it's true, not mentioning not even able to lift a phone, write, walk, communicate properly. I sold say the patients frame of mind is the same. I doubt none would do it now, definitely not in my past, nor would I stand for it, but took my lumps, and could have gone after legally if I wanted, winning is another story. I'm choosing my battles, and energy to fight cancer. I would say the same to someone what you're saying now, but not at that time.
10/09 T1N2bM0 Tonsil 11/09 Taxo Cisp 5-FU, 6 Months Hosp 01/11 35 IMRT 70Gy 7 Wks 06/11 30 HBO 08/11 RND PNI 06/12 SND PNI LVI 08/12 RND Pec Flap IORT 12 Gy 10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux 10/13 SND 10/13 TBO/Angiograph 10/13 RND Carotid Remove IORT 10Gy PNI 12/13 25 Protons 50Gy 6 Wks Carbo 11/14 All Teeth Extract 30 HBO 03/15 Sequestromy Buccal Flap ORN 09/16 Mandibulectomy Fib Flap Sternotomy 04/17 Regraft hypergranulation Donor Site 06/17 Heart Attack Stent 02/19 Finally Cancer Free Took 10 yrs
| | |
Forums23 Topics18,267 Posts197,182 Members13,364 | Most Online1,788 Jan 23rd, 2025 | | | |