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#165014 05-15-2013 02:05 PM
Joined: May 2013
Posts: 11
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Joined: May 2013
Posts: 11
1/30/13 began like every other day, then while at work around noon I coughted a blood clot, followed by bleeding. ENT's main concern stop bleeding. Next day CAT scan, tumor in brain, right tonsil, thyroid, lymph node. MRI a week later revealed no mass in brain, thank you God! 2/15 surgery to remove tonsil, ENT felt it would benign. Tonsil crumbled, only 1/2 was removed, biopsy taken. 2/22 told I have Oropharyngeal Cancer. 2/28 PET scan. 3/12 PEG surgery. 3/19 Chemo began, 1 a week for 7weeks. 3/22 Radiation began, everyday for 7 wks. 6/10 last day of treatment!!! I have been fortunate to have had alot of support, loving family, friends, co-workers. My brother encouraged me to join, I have many concerns.

Last edited by PatriciaC; 05-15-2013 02:29 PM. Reason: more staight forward

1/31/13 CAT scan right tonsil, thyroid, lymph node,brain
2/5/13 MRI brain-no tumor smile
2/15/13 surgery,biopsy,removed 1/2 tonsil.
2/28/13 PET, diagnosis Oropharyngeal cancer stage IV
3/12/13 PEG
3/19/13 chemo(7 total)
3/22/13 radiation(35 total)
5/10/13 last treatment
7/29/13 2nd PET scan- CLEAR!!
10/28/13 PEG removed
smoked 20 yrs ago
54


PatriciaC #165017 05-15-2013 03:24 PM
Joined: Jun 2007
Posts: 10,507
Likes: 7
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)
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Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)

Joined: Jun 2007
Posts: 10,507
Likes: 7
Welcome to OCF Patricia! Congrats on completing your treatments. Im sure you probably still feel pretty crappy. In about 3 weeks you will begin to have some better days. Its a long process to recover from what you have been thru. Continue to take in enough nutrition and hydration to help you to heel.

Best wishes with everything!!!


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
PatriciaC #165021 05-15-2013 04:14 PM
Joined: Jan 2009
Posts: 1,844
Patient Advocate (1000+ posts)
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Patient Advocate (1000+ posts)

Joined: Jan 2009
Posts: 1,844
If you didn't have concerns after what you've been through sister, I'd worry laugh

Welcome to the club! Glad you found us, sorry you had to!


Young Frack, SCC T4N2M0, Cisplatin,35+ rads,ND, RT Mandiblectomy w fibular free flap, facial paralysis, "He who has a "why" to live can bear with almost any "how"." -Nietzche "WARNING" PG-13 due to Sarcasm & WAY too much attitude, interact at your own risk.
PatriciaC #165052 05-16-2013 12:37 PM
Joined: Sep 2006
Posts: 8,311
Senior Patient Advocate
Patient Advocate (old timer, 2000 posts)
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Patient Advocate (old timer, 2000 posts)

Joined: Sep 2006
Posts: 8,311
So what are your concerns?


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.

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