| Joined: Mar 2013 Posts: 40 Contributing Member (25+ posts) | OP Contributing Member (25+ posts) Joined: Mar 2013 Posts: 40 | Do any of you make your own protein shakes? I got my Dad some weight gainer protein powder and it says on the side of the container "do not use if you have a medical condition." Is that written on all of them? You think this is safe for him?
Brandi, daughter of: Jack, age 69, non-smoker, BOT primary, Stage 4, HPV+ 1/28/2013: Surgery. All cancerous masses removed. Dad is CANCER FREE!!! 2/26/2012: Beginning of TX. Weekly chemo: Carboplatin and Taxol. Daily RT (about 40 total) 4/25/2013: Will be last day of TX, both chemo and RT | | | | Joined: Mar 2013 Posts: 40 Contributing Member (25+ posts) | OP Contributing Member (25+ posts) Joined: Mar 2013 Posts: 40 | My friends say it's a disclaimer they put on all those products and since he doesn't have any dietary restrictions it shouldn't be a problem. Agree?
Brandi, daughter of: Jack, age 69, non-smoker, BOT primary, Stage 4, HPV+ 1/28/2013: Surgery. All cancerous masses removed. Dad is CANCER FREE!!! 2/26/2012: Beginning of TX. Weekly chemo: Carboplatin and Taxol. Daily RT (about 40 total) 4/25/2013: Will be last day of TX, both chemo and RT | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 7 | I have used high protein whey powder for several years. Protein is very important when trying to heel and this will help your father get the protein he needs to speed his recovery. ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | Joined: Jul 2012 Posts: 3,267 Likes: 4 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Jul 2012 Posts: 3,267 Likes: 4 | I would see a doctor before adding any supplement. They can do blood tests too to see if his levels are deficient, and if any is needed or would be dangerous. Too much protein puts added stress on the organs, especially the kidney's to rid the ketones in the urine, and this can cause dehydration amongst other problems. Your body can only assimilate 23 grams of protein at a time anyway. Another factor, is some of these bodybuilding proteins, at least in the recent past, had steroids in them, and a bunch of other potential harmful chemicals, herbs, and my doctor had warning signs about creatine, a popular added supplement in many.
10/09 T1N2bM0 Tonsil 11/09 Taxo Cisp 5-FU, 6 Months Hosp 01/11 35 IMRT 70Gy 7 Wks 06/11 30 HBO 08/11 RND PNI 06/12 SND PNI LVI 08/12 RND Pec Flap IORT 12 Gy 10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux 10/13 SND 10/13 TBO/Angiograph 10/13 RND Carotid Remove IORT 10Gy PNI 12/13 25 Protons 50Gy 6 Wks Carbo 11/14 All Teeth Extract 30 HBO 03/15 Sequestromy Buccal Flap ORN 09/16 Mandibulectomy Fib Flap Sternotomy 04/17 Regraft hypergranulation Donor Site 06/17 Heart Attack Stent 02/19 Finally Cancer Free Took 10 yrs
| | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 7 | Paul is correct!
Sorry I should have said that in my previous post. Always ask the doc before making any changes or trying anything new like this. Never know how it could work with something the patient is already using or some medication they take.
Thanks Paul! ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Dec 2003 Posts: 2,606 Likes: 2 | Paul, where is the Like when you need it. Good post. The other caution with protein is pancreatitis. Many people believe in minimum of 1 G protein/ lb of weight. That is good if you have enough activity to use it.
Ed
SCC Stage IV, BOT, T2N2bM0 Cisplatin/5FU x 3, 40 days radiation Diagnosis 07/21/03 tx completed 10/08/03 Post Radiation Lower Motor Neuron Syndrome 3/08. Cervical Spinal Stenosis 01/11 Cervical Myelitis 09/12 Thoracic Paraplegia 10/12 Dysautonomia 11/12 Hospice care 09/12-01/13. COPD 01/14 Intermittent CHF 6/15 Feeding tube NPO 03/16 VFI 12/2016 ORN 12/2017 Cardiac Event 06/2018 Bilateral VFI 01/2021 Thoracotomy Bilobectomy 01/2022 Bilateral VFI 05/2022 Total Laryngectomy 01/2023
| | | | Joined: Dec 2010 Posts: 5,264 Likes: 5 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | "OCF Canuck" Patient Advocate (old timer, 2000 posts) Joined: Dec 2010 Posts: 5,264 Likes: 5 | Definitely check with your dr. Or dietician. A higher amount of protein is usually needed during and after treatment or promote healing. Try to avoid protein powders that have a lot of chemicals and fake sugar substitutes. Best of luck,
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | Joined: Jan 2013 Posts: 1,293 Likes: 1 Patient Advocate (1000+ posts) | Patient Advocate (1000+ posts) Joined: Jan 2013 Posts: 1,293 Likes: 1 | A topic hitting my current bullseye, researching and making my own protein/carb powder mix.
Many comments here are familiar and generally what I am following to create my mix. What lead me down this path was all these added things added to commercial protein powders and sent me off sourcing the raw materials as much as possible.
Where i am right now is whey protein isolate is about as pure a protein powder you can obtain in the marketplace, in consumable quantities to us; that is, less than 50 pound bags. It is 80%-90% pure. One ounce (28.4g) then equates to about 23-26 grams protein and about 100 calories.
Carbo content is coming from starch based maltodextrin with a DE in the 20s so not much sweetness either. The powder is 100% so 28 grams of carb.
Now, last part to make get a bit more sweetness into the mix and that is where I am presently exploring various sweetening ingredients, from sucrose/glucose, to fructose and HFCS, as well as natural fruits and juices.
My current situation is I am week 5 of rads and still able to swallow, drink water, eat puree foods, smoothies, milkshakes, etc. There is definitely pain associated during swallowing when zero medications but quite acceptable with a low dose of hydrocodone.
The goal is to create something that has high caloric density yet still can be swallowed without being an overly thick mass and hopefully have some decent taste as well.
Second option is to allow less caloric density and less viscous and use the concoction as my regular sipping liquid all day, just keep a few ice cubes in there to keep things cool but not frozen. Or I guess I can use it for smoothies to if I need/want a frozen texture but that gets a bit harder to consume for me, cool is fine.
Don Male, 57 - Great health except C Dec '12 DX: BOT SCC T2N2bMx, Stage 4a, HPV+, multiple nodes 1 tooth out Jan '13 2nd tooth out Tumor Board -induction TPF (3 cycles), seq CRT 4-6/2013 CRT 70gr 2x35, weekly carbo150 ended 5/29,6/4 All the details, join at http://beatdown.cognacom.com | | | | Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Dec 2003 Posts: 2,606 Likes: 2 | Wow, you've been busy! Why the maltodextrin? I could see it after a workout in some amount but rarely see the levels you are talking about. It has twice the glycemic index of sugar and runs through the system very fast. It could have benefit as a complex carb but unlike the whole grains, it is absorbed quicker. As a drink to sip on through the day I am not clear why you want it. Just basing that on my experience in the food industry. It is mostly used for a favorable texture or smoothness to the mouth.
Thanks for doing the work. I am trying to get 90 g or more protein beyond foods a day and looking for some weight gain without packing on visceral fat. I usually consume 2-3 shakes a day and try to bike an hr 3 x a week, walk 1-3 miles a day and try to hit the gym 2-3 hrs 2-3 x a week. If I don't pack on calories I can lose 1-3 lbs a day pretty easily. If I work in some complex carbs I can keep it in check.
Ed
Ed
SCC Stage IV, BOT, T2N2bM0 Cisplatin/5FU x 3, 40 days radiation Diagnosis 07/21/03 tx completed 10/08/03 Post Radiation Lower Motor Neuron Syndrome 3/08. Cervical Spinal Stenosis 01/11 Cervical Myelitis 09/12 Thoracic Paraplegia 10/12 Dysautonomia 11/12 Hospice care 09/12-01/13. COPD 01/14 Intermittent CHF 6/15 Feeding tube NPO 03/16 VFI 12/2016 ORN 12/2017 Cardiac Event 06/2018 Bilateral VFI 01/2021 Thoracotomy Bilobectomy 01/2022 Bilateral VFI 05/2022 Total Laryngectomy 01/2023
| | | | Joined: Jan 2009 Posts: 1,844 Patient Advocate (1000+ posts) | Patient Advocate (1000+ posts) Joined: Jan 2009 Posts: 1,844 | Brandi,
I'm not a fan of the "weight gainer" protein mixes that have whey in them. They tend to have a crap ton of sugar in them and that's not conducive to keeping or maintaining lean muscle mass during treatment due to the effects on blood sugar and how high your father's cortisol levels must be.
I'd recommend an organic whey protein powder as whey has the fastest uptake and highest leucine content of the other forms of protein. As far as doseage I'd be looking at 1.15-1.5grams of protein per pound of bodyweight daily as his body is in massive demand of amino acids during and recovering from treatment/surgery
Young Frack, SCC T4N2M0, Cisplatin,35+ rads,ND, RT Mandiblectomy w fibular free flap, facial paralysis, "He who has a "why" to live can bear with almost any "how"." -Nietzche "WARNING" PG-13 due to Sarcasm & WAY too much attitude, interact at your own risk.
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