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ChristineB #164648 05-07-2013 09:32 PM
Joined: Dec 2003
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Thank you Christine.


SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
ChristineB #164695 05-08-2013 02:22 PM
Joined: Oct 2012
Posts: 1,275
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Thank you Bev and Christine. I find it very hard to read all the sad posts without crying. Charm was so very close to all of us and yet, in life, he had only ever met Christine and EricS. I find that an amazing fact.


Gloria
She stood in the storm, and when the wind did not blow her way, she adjusted her sails... Elizabeth Edwards

Wife to John,dx 10/2012, BOT, HPV+, T3N2MO, RAD 70 gy,Cisplatinx2 , PEG in Dec 6, 2012, dx dvt in both legs after second chemo session, Apr 03/13 NED, July 2013 met to lungs, Phase 1 immunotherapy trial Jan 18/14 to July/14. Taxol/carboplatin July/14. Esophagus re-opened Oct 14. PEG out April 8, 2015. Phase 2 trial of Selinexor April to July 2015. At peace Jan 15, 2016.
ChristineB #164709 05-08-2013 10:15 PM
Joined: Feb 2013
Posts: 78
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Joined: Feb 2013
Posts: 78
I'm very sad to read this. Though I did not know him in person, I feel you could get to know him through all of his helpful, colorful, and funny posts. You will be missed. My best wishes and regards to the whole family.


Andrew
age 25

early 10/12 - enlarged lymph node area
01/13 SCC of L tonsil, L BOT, 2 L lymph nodes
stage IVa, T2N2bM0, HPV+

2/13 2 doses cisplatin big bag, 2 doses weekly cisplatin + 35x IMRT
4/13 TX finished
7/13 PET/CT - NED!
ChristineB #164711 05-09-2013 03:27 AM
Joined: Aug 2011
Posts: 78
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Joined: Aug 2011
Posts: 78
This is such sad news. My daughter I had the privilege of meeting Charm and Bev at the Andover walk last year. May you rest in peace & keep watch over Bev and your loved ones as they learn to carry on.
Sally


Sally, 38 years old
T1N0M0 Left Tongue Lesion, Moderately Differentiated
10 + year history Leukoplakia, Mild Dysplasia before cancer diagnosis 8/2011
Scheduled Partial Glossectomy & Neck Dissection 9-17-11
ChristineB #164756 05-10-2013 03:10 AM
Joined: Sep 2012
Posts: 145
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Posts: 145
Geez this news brought a tear to my eye... something that I didn't even do throughout my wife's treatment.

Charm - you will be dearly missed.


6/8/12: Wife 33y/o with no risk dx with Stage IVa SCC L of Tongue(T4aN2bM0)
3/9/12: Induced birth @ 36 weeks - Baby Hunter!
11/9/12: OP - 3/4 Partial Gloss, Radical ND & Tongue Rec.
24/10/12: 33xRad + 7xChemo
7/12/12: Tx complete
21/3/13 & 21/6/13: NED
24/7/13: SCC in Lungs - OP: Lobectomy (VATS)
29/1/14 passed away
ChristineB #164779 05-10-2013 05:35 PM
Joined: Jul 2008
Posts: 507
"Above & Beyond" Member (500+ posts)
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Joined: Jul 2008
Posts: 507
So sorry to hear of Charm's passing.

I tend not to check the forum as frequently as I used to and was bit belatedly taken back by this very sad news.


Don
TXN2bM0 Stage IVa SCC-Occult Primary
FNA 6/6/08-SCC in node<2cm
PET/CT 6/19/08-SCC in 2nd node<1cm
HiRes CT 6/21/08
Exploratory,Tonsillectomy(benign),Right SND 6/23/08
PEG 7/3/08-11/6/08
35 TomoTherapy 7/16/08-9/04/08 No Chemo
Clear PET/CT 11/15/08, 5/15/09, 5/28/10, 7/8/11

ChristineB #164801 05-11-2013 04:02 PM
Joined: Oct 2012
Posts: 143
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I am so sorry to hear about Charm. And I want to say hello to everybody here.



Joyce March 1940 to January 2014
A wife, a mother, grandmother and great grandmother.
She fought oral cancer from late 2009 to Early 2014.
2 Timothy 4:7 I have fought the good fight, I have finished the race, I have kept the faith.
ChristineB #164809 05-11-2013 06:51 PM
Joined: May 2012
Posts: 162
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Unspeakably sad...:( A very valuable voice has been lost.

Prayers for Charm's loved ones.


wife/caregiver to Vince, dx 4/12 Stage IV BOT HPV+ SCC, poorly diff.; T4N2cMo; U of C; Clinical trial, Everolimus; 6 wks ind. chemo (Cetuximab, Cisplatin & Taxol), 50 x IMRT, 75 gy chemorad w/5FU, Hydrea & Taxol; 5 years out, thankfully still NED
ChristineB #168499 07-27-2013 03:28 PM
Joined: Jan 2009
Posts: 1,844
Patient Advocate (1000+ posts)
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I think often of all of the gifts of knowledge Charm gave me over the time I knew him, the hope and laughter...the motivation as only he could deliver it. None of these things I will ever forget, and my heart hurts at his passing.

I miss you bro.


Young Frack, SCC T4N2M0, Cisplatin,35+ rads,ND, RT Mandiblectomy w fibular free flap, facial paralysis, "He who has a "why" to live can bear with almost any "how"." -Nietzche "WARNING" PG-13 due to Sarcasm & WAY too much attitude, interact at your own risk.
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