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#163741 04-07-2013 05:49 PM
Joined: Jul 2009
Posts: 4
Frankly Offline OP
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Joined: Jul 2009
Posts: 4
Since November 2012, I've had 3 bouts of what seems like a head cold. The roof of my mouth, back behind the uvela gets raw and sore. I get some crud in my sinuses and I have bouts of nasuea. My voice gets hoarse and I might get a little bit of a sore throat, but it doesn't drop down into my lungs like a cold. I had it in November, seemed like it cleared up, but came back in the first week of December and didn't clear up until the 3rd week of January. Everyone else who was sick seemed to have something similar and that hung on for weeks, so I chaulked it up to that. However, now I'm sick again. I usually do not get sick, or not sick enough to make me want to stay home in bed and I've been okay for the first 4 years post treatment, so I'm wondering if this is common?

When I swallow, I fairly regularly have small amounts of liquid go up into my nasal passages, not to the point that it runs out my nose, but just gets wet above whatever it is that's suppose to keep liquids out of my nasal passages. I'm wondering if that breeds bacteria, etc.

Does anyone else have this problem?

Frank


Feb. 09. SCC Left tonsil and lymph nodes Stage IV.
HPV 16+. No Surgery.
Cisplaten 6, Rad. 35
6/24/09 PET-Negative
Finally eating all my food, 2/2010.
PEG tube removed 6/2011
Frankly #163746 04-07-2013 06:26 PM
Joined: Dec 2003
Posts: 2,606
Likes: 2
Patient Advocate (old timer, 2000 posts)
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Patient Advocate (old timer, 2000 posts)

Joined: Dec 2003
Posts: 2,606
Likes: 2
Have you spent any time with a speech therapist? It won't hurt to do all the excercises regularly for swallowing muscles. The voice comes and goes with me each spring for 5 days or so although I lost a good portion the first week in Feb and I am not anticipating it will return. Just collateral damage.


SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023

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