| | Joined: May 2012 Posts: 162 Likes: 1 Senior Member (100+ posts) | OP  Senior Member (100+ posts)
Joined: May 2012 Posts: 162 Likes: 1 | Thought I'd give an update. Most important, Vince got another set of CT results yesterday, still completely clear of cancer. The nodes lighting up with sarcoidosis seem to be improving as well. Port was removed the same day, that went well too.
On a side note, he started accupuncture, hopes of getting some dry mouth relief. He's only done one treatment, hasn't noticed a difference on dry mouth, but did say he felt very relaxed afterwards and, the spot that has been persistantly sore stopped hurting. Coincidence, who knows, just glad he feels better.
Lastly, we had some excitement in house. I woke up at 1:30 am the day we were headed to U of C for his results with a ton of chest pressure and nausea. Ended up in the ER, with a normal EKG. Rather than accompanying my husband for his results and port removal, spent the day having cardiac tests while trying to find him a ride home from a hospital that's 2 hours from home. How's this for divine intervention, a fellow oral cancer patient from our small village just happened to be at U of C the same day to see the rad onc, he stepped in helped get my slightly loopy husband home. It's amazing how God puts people in your life just when and where you need them. Talk about a crazy day...could we have one more moving part!?
wife/caregiver to Vince, dx 4/12 Stage IV BOT HPV+ SCC, poorly diff.; T4N2cMo; U of C; Clinical trial, Everolimus; 6 wks ind. chemo (Cetuximab, Cisplatin & Taxol), 50 x IMRT, 75 gy chemorad w/5FU, Hydrea & Taxol; 5 years out, thankfully still NED
| | | | | Joined: Jan 2013 Posts: 1,293 Likes: 1 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jan 2013 Posts: 1,293 Likes: 1 | Glad it all worked out. Sometimes a ray of sun streaking from a cloud filled day does wonders when it strikes you in the head.
Don Male, 57 - Great health except C Dec '12 DX: BOT SCC T2N2bMx, Stage 4a, HPV+, multiple nodes 1 tooth out Jan '13 2nd tooth out Tumor Board -induction TPF (3 cycles), seq CRT 4-6/2013 CRT 70gr 2x35, weekly carbo150 ended 5/29,6/4 All the details, join at http://beatdown.cognacom.com | | | | | Joined: Dec 2010 Posts: 5,264 Likes: 5 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | | "OCF Canuck" Patient Advocate (old timer, 2000 posts)
Joined: Dec 2010 Posts: 5,264 Likes: 5 | Acupuncture was great for me by poking needles into the scar tissue blood is being drawn into the area and the scar tissue broken up it worked wonders on my neck. Hugs!
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | | Joined: Mar 2011 Posts: 1,024 "OCF Kiwi Down Under" Patient Advocate (1000+ posts) | | "OCF Kiwi Down Under" Patient Advocate (1000+ posts)
Joined: Mar 2011 Posts: 1,024 | Hi Ana, great news on Vince.
How about you. Did they do an Exercise Tolerance Test on you?
This is important if your ECGs and blood tests came back normal.
Take care,
Tammy
Caregiver/advocate to Husband Kris age 59@ diagnosis
DX Dec '10 SCC BOT T4aN2bM0 HPV+ve.Cisplatin x3 35 IMRT.
PET 6/11 clear.
R) level 2-4 neck dissection 8/1/11 to remove residual node - necrotic with NED
Feb '12 Ca back.. 3/8/12 total glossectomy/laryngectomy/bilat neck dissection/partial pharyngectomy etc. clear margins. All nodes negative for disease. PEG in.
March 2017 - 5 years disease free. Woohoo!
| | | | | Joined: May 2012 Posts: 162 Likes: 1 Senior Member (100+ posts) | | OP Senior Member (100+ posts)
Joined: May 2012 Posts: 162 Likes: 1 | Thanks folks..:) Tammy, they did did do an exercise tolerance test as well....did a scan of some sort, did the stress test with contrast, then back for another scan. Also an echocardiogram. Thoroughly poked a prodded, still trying to get all of the sticky spots from the leads scrubbed off. Now here's the kicker, was sitting in a meeting on Tuesday, calendar reminder goes off on my phone, reminder for my mamogram. Literally had to go back 12 hours after getting discharged to the same hospital for mamo, which was normal, thank goodness. Would have skipped it, but I know better than to do than to let something like that slide. Done, done and done with docs and hospitals...until hubby's next round of scan/visit in June.
wife/caregiver to Vince, dx 4/12 Stage IV BOT HPV+ SCC, poorly diff.; T4N2cMo; U of C; Clinical trial, Everolimus; 6 wks ind. chemo (Cetuximab, Cisplatin & Taxol), 50 x IMRT, 75 gy chemorad w/5FU, Hydrea & Taxol; 5 years out, thankfully still NED
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