Thought I'd give an update. Most important, Vince got another set of CT results yesterday, still completely clear of cancer. The nodes lighting up with sarcoidosis seem to be improving as well. Port was removed the same day, that went well too.

On a side note, he started accupuncture, hopes of getting some dry mouth relief. He's only done one treatment, hasn't noticed a difference on dry mouth, but did say he felt very relaxed afterwards and, the spot that has been persistantly sore stopped hurting. Coincidence, who knows, just glad he feels better.

Lastly, we had some excitement in house. I woke up at 1:30 am the day we were headed to U of C for his results with a ton of chest pressure and nausea. Ended up in the ER, with a normal EKG. Rather than accompanying my husband for his results and port removal, spent the day having cardiac tests while trying to find him a ride home from a hospital that's 2 hours from home. How's this for divine intervention, a fellow oral cancer patient from our small village just happened to be at U of C the same day to see the rad onc, he stepped in helped get my slightly loopy husband home. It's amazing how God puts people in your life just when and where you need them. Talk about a crazy day...could we have one more moving part!?


wife/caregiver to Vince, dx 4/12 Stage IV BOT HPV+ SCC, poorly diff.; T4N2cMo; U of C; Clinical trial, Everolimus; 6 wks ind. chemo (Cetuximab, Cisplatin & Taxol), 50 x IMRT, 75 gy chemorad w/5FU, Hydrea & Taxol; 5 years out, thankfully still NED