| Joined: Jan 2009 Posts: 1,844 Patient Advocate (1000+ posts) | OP Patient Advocate (1000+ posts) Joined: Jan 2009 Posts: 1,844 | Blythe Danner Paltrow was on the Katie Couric show raising awareness about Oral Cancer! So proud of Blythe and Brian R. Hill for all that they do with the Bruce Paltrow Foundation and the Oral Cancer Foundation to raise awareness about this disease. Saving lives and making a difference, they did for me.
Let's show Blythe and the entire Paltrow family how much their efforts mean to us and our cause by writing a few words of appreciation. Brian is going to compile them and send them to her personally.
For myself, I wouldn't have made it without the help of these forums and the people involved in these organizations like Blythe and Brian. My family and I thank you from the bottom of our hearts.
Eric
Young Frack, SCC T4N2M0, Cisplatin,35+ rads,ND, RT Mandiblectomy w fibular free flap, facial paralysis, "He who has a "why" to live can bear with almost any "how"." -Nietzche "WARNING" PG-13 due to Sarcasm & WAY too much attitude, interact at your own risk.
| | | | Joined: May 2006 Posts: 720 Likes: 1 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: May 2006 Posts: 720 Likes: 1 | Blythe, you were terrific on Katic Couric! My husband fortunately was diagnosed at the earliest stage possible, and I am acutely aware how critical early detection is in saving lives. Thank you for raising awareness of the importance of screenings, and for raising your voice in support of OCF.
Leslie
April 2006: Husband dx by dentist with leukoplakia on tongue. Oral surgeon's biopsy 4/28/06: Moderate dysplasia; pathology report warned of possible "skip effect." ENT's excisional biopsy (got it all) 5/31/06: SCC in situ/small bit superficially invasive. Early detection saves lives.
| | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 7 | Ms Danner, thank you very much for everything you have done for The Oral Cancer Foundation. Your generosity and assistance with The Brude Paltrow Oral Cancer Fund have helped countless individuals. Your interview today was phenomenal!!! You touched my heart as you spoke of being a caregiver for your husband. Im very sorry for your loss. It takes a caregiver or fellow survivor to truly understand the horrors of battling oral cancer. Its a terrible disease which causes debilitating side effects and misery to the afflicted. By your speaking out and helping to educate the public about oral cancer, the importance of oral cancer screenings and vaccinations you are saving lives. Your interview with Katie Couric hit every important point that the average person isnt aware of. People dont understand how deadly oral cancer is and the need for screenings. Thank you for being so brave as to get out there and talk about what Im sure is a very difficult subject for you. Ive seen other interviews you have done where you have managed to squeeze in a few things about oral cancer. You make the perfect spokesperson and advocate for an unknown disease. Thank you very much for bringing light to this deadly disease!!!! As a 3 time oral cancer survivor I am very well aware of all the horrors an oral cancer patient goes thru. I am now disfigured after losing half my lower jaw. Even though I am disfigured, I consider myself one of the lucky ones. I am a volunteer board administrator for OCF. Brian also has me speak at some of the OCF awareness walks. This small non profit is my favorite charity and very dear to my heart. Without OCF, I probably wouldnt be here right now. Brian and some other members convinced me to not give up before I at least tried to beat my illness for the third time. I could never forget their kindness and generosity and I will always support my fellow oral cancer patients and caregivers. It takes someone affected by oral cancer either as a patient or caregiver to truly understand just how brutal a disease this can be. We all bond and are like family, we all 'get it'. Having you as a part of this is an honor. While Im very sorry you are part of this family, it is an honor to have you among us. With your help, oral cancer may finally get the attention it deserves. Im sure your interview today helped to encourage parents to vaccinate their children against the cancer causing strains of HPV. Just think, you have helped save others from ever having to go thru oral cancer treatments and all the struggles that go along with it. Thank you, you are a true heroine  ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | Joined: Sep 2012 Posts: 381 "OCF Canuck" Platinum Member (300+ posts) | "OCF Canuck" Platinum Member (300+ posts) Joined: Sep 2012 Posts: 381 | It is amazing how little is known of oral cancer, including general practioners, as mine missed my diagnosis for months.
I know I didn't know, well, anything, and I was in complete shock to be diagnosed. The awareness brought by Bruce's fight, and Blythe's support can ony help people to seek the right help at an early stage.
Funds raised not only help with medical research, but also for forums like this one. I am one of many people who were lost, scared an confused, and found a home here with amazing support, and an outlet for the myriad of emotions that can't always be expressed to friends and family, regardless of how much they want to help.
So thank you. While inadequate to express all that we want to say, it is often all we have.
Tina Diag: Aug. 13/12 T3N0M0 50% + glossectomy and bilateral radical neck dissection, removal of nodes zones I - V Surgery October 11/12 Chemo/rad on hold due to clear margins and nodes Sept 21/13 clear CT with anomaly thought to be the artery, being watched closely. Dec 16/13 - anomaly confirmed artery, all clear nickname: "get 'r done" Plans: kick cancer's butt
| | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 5,260 | I made sure my TV was on Katie and somehow still missed this. I'm waiting now for the Rachael show and hope I see that..
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April. --- Passed away 5/14/14, will be greatly missed by everyone here
| | | | Joined: Nov 2006 Posts: 2,671 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Nov 2006 Posts: 2,671 | A big thank you to Blythe and Bryan and Katie for airing the show on Cancer - especially for bringing attention to Oral Cancer and the effects it has on its victims and their families. You shed light on information that is little known to so many people, and I'm sure will bring much needed awareness that will save many lives. As a caregiver, I was very touched by the heartfelt caring that came through for all caregivers and their families. I found the Oral Cancer Foundation after my son's surgery and when he had just started Radiation Tx. I was a basket case of emotions and worry but the care, the compassion and accurate information we received from this forum like no other, is what helped my son (and me) to survive. I am grateful more than words can say for the generous support that The Bruce Paltrow Fund has provided for The Oral Cancer Foundation and for all who come here.
Anne-Marie CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)
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