| | Joined: Feb 2013 Posts: 9 Member | OP  Member
Joined: Feb 2013 Posts: 9 | Hi eshwar r u there pls response something urgent 2 discuss i m nearby to your place | | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Vikas, if you want to discuss something privately with another member its easy to send them a private message (PM). Click on the persons name and on the drop down menu, click on Send A PM. Type a subject on the subject line and then write what you want in the box and click submit.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | | | | Joined: May 2011 Posts: 287 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: May 2011 Posts: 287 | Hi Vikas, have emailed you my number. You can give me call if you need to discuss something.
Father; 67 yrs; RIP: 2012/05/26
TX:SCC pT2N1M0G2;Glossectomy+SND+CCRT(59.3Gy+6xCis.)[2009]
TX:Nodal Mets; 3xDCF[2011/05/05]
TX: RND + PMMC Flap[2011/07/11]
DX:SCC PNI+ECE
TX:Re-RT 60Gy[2011/09/21]
TX:Gefitinib 250mg[2011/12/18]
| | | | | Joined: Feb 2013 Posts: 9 Member | | OP Member
Joined: Feb 2013 Posts: 9 | Hi Eshwar/Christine how are you
Eshwar i got ur mail and thanks for the advise on phone also.Eshwar from that day even i quit things completely and d'nt think there is any need to go there.Even for two days i went to my cousion place for a change and now things are going on right track and that swelling on face and irritation in mouth which we discussed also minimise after stopping drink & smoking.
I came back today morning thats why not able to post.i forget to told that my doctor is suggesting a biopsy again after 3 months.
One thing i forgot to discuss with doctor from my last two appointments as i was very nervous that i am feeling that there is swelling on my back upper gums on same portion of mouth where i had white patches on lower gums and one new thing happend today i got some redishness on a small portion my upper gums d'nt know how even i was felling little bit of irritation on it.Is it possible to have both colour patches in mouth
My relatives said you disaappoint your doctor and us last time but i promised myself to not to disappoint anybody.Even my doctor is helping me a lot.
Christine i was not aware of that in future i will take care
Thanks
| | | | | Joined: Feb 2013 Posts: 9 Member | | OP Member
Joined: Feb 2013 Posts: 9 | Hi i was reading about leukoplakia.same symptoms are with me instatly irritation starts in my mouth after smoking and after some times my mouth swells and when i quit smoking it gets normal.But there are some doubts:can leukoplakia(white patches) occurs on gums also and what are the chances of becoming it in cancer.Can you help | | | | | Joined: Mar 2002 Posts: 4,918 Likes: 65 OCF Founder Patient Advocate (old timer, 2000 posts) | | OCF Founder Patient Advocate (old timer, 2000 posts)
Joined: Mar 2002 Posts: 4,918 Likes: 65 | leukoplakia is a pre cancerous condition. Your body is telling you something by producing it, and you should listen. Eventually it progresses to dysplasia, and then on to malignancy. Continuing the use of tobacco will bring multiply bad things to your life. Oral cancer is just one of them. Heart disease and other cancers are all associated with tobacco use. Of course it is highly addictive, so besides understanding what is happening to you biologically, you have to find a way to break the addiction. Reading the stories of people here who have been lost to cancer, the families they leave behind, the pain they endure, and even in those that survive who go on to live with difficulties�. this should be enough to motivate you to change this habit. Vikas this forum is for people who are in the fight. You have a chance to avoid all this. Please find an online support forum to help you quit smoking
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
| | | | | Joined: Oct 2012 Posts: 1,275 Likes: 7 Assistant Admin Patient Advocate (1000+ posts) | | Assistant Admin Patient Advocate (1000+ posts)
Joined: Oct 2012 Posts: 1,275 Likes: 7 |
Gloria
She stood in the storm, and when the wind did not blow her way, she adjusted her sails... Elizabeth Edwards
Wife to John,dx 10/2012, BOT, HPV+, T3N2MO, RAD 70 gy,Cisplatinx2 , PEG in Dec 6, 2012, dx dvt in both legs after second chemo session, Apr 03/13 NED, July 2013 met to lungs, Phase 1 immunotherapy trial Jan 18/14 to July/14. Taxol/carboplatin July/14. Esophagus re-opened Oct 14. PEG out April 8, 2015. Phase 2 trial of Selinexor April to July 2015. At peace Jan 15, 2016.
| | | | | Joined: Feb 2013 Posts: 53 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Feb 2013 Posts: 53 | Although I am a non-smoker (never smoked), my oral cancer began with leukoplakia. I had just one small white spot on my upper gum which my dentist diligently followed for 9 years before it actually progressed to dysplasia and then diagnosed as a squamous cell carcinoma. Vikas, please start with your dentist and he/she can do an oral cancer screening with a brush biopsy which is not invasive. Even if it if that comes back negative, they can follow you closely and order a biopsy if that should ever be necessary.
Teacher Karen
DX: SCC of right maxillary alveolar ridge, 9/2010.
Surgery 11/2010, removal of 4 teeth and gum.
Surgery 11/2012, removal of 3 teeth and gum.
IMRT 1/2013-2/2013
Surgery 1/2015 retromolar trigone resection; removal of 1 tooth and gum.
Surgery 10/2015 left modified radical neck dissection, inferior parotidectomy, external carotid artery resection.
Cetuximab based chemoradiation 64.8 Gy to resection bed.
Surgery 6/19/2018 Right inferior maxillectomy, bilateral low palate resection
| | | | | Joined: May 2011 Posts: 287 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: May 2011 Posts: 287 | Vikas, Self-control is the best way to get rid of any addiction, however, sometimes you need help to learn to self-control. Vipassana will only help you become better!
As mentioned over the phone and also suggested by Brian, you go through the forum to understand how we all are fighting this dreaded disease. If that also does not help, I am ready to take you to RGCI so that you can see the suffering.
Leukoplakia is a early signal that you have got, a warning! QUIT SMOKING AND DRINKING.
Father; 67 yrs; RIP: 2012/05/26
TX:SCC pT2N1M0G2;Glossectomy+SND+CCRT(59.3Gy+6xCis.)[2009]
TX:Nodal Mets; 3xDCF[2011/05/05]
TX: RND + PMMC Flap[2011/07/11]
DX:SCC PNI+ECE
TX:Re-RT 60Gy[2011/09/21]
TX:Gefitinib 250mg[2011/12/18]
| | | | | Joined: Feb 2013 Posts: 9 Member | | OP Member
Joined: Feb 2013 Posts: 9 | Dear Eshwar,i am trying to quit both even i manged to do till yet if i need any help from vipassana definately i will go for that also | | |
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