#16218 08-10-2004 02:45 AM | Joined: Aug 2004 Posts: 8 Member | OP  Member
Joined: Aug 2004 Posts: 8 | minniea:
Thank you for that terrific post. My wife and I were relieved to read those encouraging words!
SCC,Left Mandible, Stage IVa, Diagnosed 2/28/04, Cisplatin/5FU, Radiation 40 days. Lower left mandible removed and replaced with bone from hip Septemeber 29th, 2004.
Happy Camper ever since!
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#16219 08-11-2004 06:04 PM | Joined: Mar 2002 Posts: 4,918 Likes: 67 OCF Founder Patient Advocate (old timer, 2000 posts) | | OCF Founder Patient Advocate (old timer, 2000 posts)
Joined: Mar 2002 Posts: 4,918 Likes: 67 | Charles, Since we are both here in the OC, I wanted to contact you about some local docs and resources. I don't post names and contacts like that on the board, but I noticed that you have the email function on your profile turned off, so I am unable to send them to you. If you would like the info, either email me, or turn the email function on in the "my profile link" at the top of the forum page. Welcome to OCF, we're all here for you.
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
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#16220 08-12-2004 02:48 PM | Joined: Nov 2002 Posts: 274 Platinum Member (200+ posts) | | Platinum Member (200+ posts)
Joined: Nov 2002 Posts: 274 | "THE" OC! Come on Brian, everyone knows the only "THE" is NYC! | | |
#16221 08-12-2004 04:13 PM | Joined: Mar 2002 Posts: 4,918 Likes: 67 OCF Founder Patient Advocate (old timer, 2000 posts) | | OCF Founder Patient Advocate (old timer, 2000 posts)
Joined: Mar 2002 Posts: 4,918 Likes: 67 | Actually no one here calls it THE....it's that dumb TV show that is causing this ridiculous addition to the words Orange County to be used. It's even rubbing off on me, stupid as it is. By the by, the folks in San Franciso and LA would have a word with you, since they are so fond of saying "I live in THE city"..... Truth is, there are wall to wall cities in So Cal with nothing in between them. No place where one stops and another begins that is decernable. It is one F----n parking lot covered with concrete. You can drive from southern OC to northern LA county and never leave a city. No matter what you call it, in my book (except for at the beach) it all just sucks. I miss my life in the mountains of Tahoe, but the dry air and my xerostomia would never tolerate each other. And as if THE has some exclusivity to NYC, those from that area are proud of saying that they just live at THE lake!!!! But we are hijacking an importnat thread.......so I'll quit here.
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
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#16222 08-13-2004 05:10 AM | Joined: Jul 2003 Posts: 382 Likes: 3 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Jul 2003 Posts: 382 Likes: 3 | Wow Brian- I haven't heard you ramble on that long for a long time! Guess I'll have to watch to show to figure out what you are talking about :p I always thought THE City was Seattle!! - Kris
SCC Stage IV left tonsil neck disection 3/02 radiation finished 6/02 chemo finished 9/02
Stage 2A left breast cancer 3/09, chemo and radiation, finished treatment 2/7/10 -Stage 2 right beast cancer 10/14 chemo and radiation
Every day is still a gift :-)
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#16223 08-13-2004 06:13 AM | Joined: Aug 2003 Posts: 1,627 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Aug 2003 Posts: 1,627 | Are we talking Orange County Choppers? My husband loves that show, lol. Spent a week at Christmas time finding him a Tshirt and hat with their logo. Sorry Brian.
SCC Left Mandible. Jaw replaced with bone from leg. Neck disection, 37 radiation treatments. Recurrence 8-28-07, stage 2, tongue. One third of tongue removed 10-4-07. 5-23-08 chemo started for tumor behind swallowing passage, Our good friend and much loved OCF member Minnie has been lost to the disease (RIP 10-29-08). We will all miss her greatly.
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#16224 08-13-2004 10:04 AM | Joined: Apr 2004 Posts: 482 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: Apr 2004 Posts: 482 | Actually, the only "THE" is "THE" Florida Marlins. Or doesn't nyc remember the World Series?
Regards, Kirk Georgia
Stage IV, T1N2aM0, right tonsil primary, Tonsilectomy 11/03, 35 rad/3cisplatin chemo, right neck dissection 1/04 - 5/04.
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#16225 08-13-2004 11:41 AM | Joined: Aug 2004 Posts: 217 Platinum Member (200+ posts) | | Platinum Member (200+ posts)
Joined: Aug 2004 Posts: 217 | Hello, Charles.
I'm new to this site, too, and am here to help my husband deal with this nastiness. I've been so heartened by all of you who are in treatment, or who are in recovery and who take the time to post notes here. He's just had one Cisplatin infusion (8/4), and he's taking 1650mgx2 of Xeloda daily until next Wednesday, and while he's finally beginning to feel better, he's just amazed at all of you who have the energy to sit at a computer and write. He's a high-energy guy, but boy, until this past Wednesday, he was, what he would call, a "wuss!" He is anxious to hear about your PETscan and we both wish you the very best. You will be included in our daily prayers.
Nicki
Nicki, wife of Thomas
dx July 2004, SCC, Stage 4 Tonsil. Tx begun 8/4/04. Cisplatin/Xeloda x 4; IMRT 7 wks, 8/7 - 10/25/04 Modified Radical Dissection (right), Selective Dissection (Left) 12/10/04.
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