| Joined: Feb 2013 Posts: 1 Member | OP Member Joined: Feb 2013 Posts: 1 | Hello all! My husband is half-way done with his 6 week radiation treatment for Stage II BOT. He just developed mucositis, cancer center prescribed magic mouthwash and due to excessive pain; a fentenayl patch. Patch hasn't kicked in yet, I was told to augment with hydrocodone until late tomorrow. My question is regarding magic mouthwash; my husband says all it does is burns, he doesn't get the numbing element that was described. Has anyone else had this? Solutions? We're likely heading toward a feeding tube if this isn't solved soon. MuGard arrives Wednesday, but may be a little too late? He has an accelerated last two weeks of treatment; two sessions a day. I believe it's not going to get any better soon.
I'm thrilled to be among such brave and caring people.
Coco
Coco
| | | | Joined: Jul 2012 Posts: 3,267 Likes: 4 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Jul 2012 Posts: 3,267 Likes: 4 | Welcome Coco. There are many types of magic mouthwashes depending on the pharmacy, and mostly include a mixture of compounds, some which can be made with OTC meds, except for the prescriptions, that can include Benadryl, antiseptic, maalox, mylanta, kaopectate, pain reliever, lidocaine. The typical blend of measurements may be posted here, if you search or ask the pharmacist, but some have good results with MuGuard, but I never used it. It's not too late, radiation continue working 6 weeks post treatment, and some ailments persist for several months, and longer like dry mouth.
Mucositus can be exasperated by spicy, acidic and sharp textured foods, dry mouth, dry air. So avoiding these foods, treating dry mouth, and using a humidifier may help relieve symptoms. Opioids may relieve the pain, but some may need to treat the neuropathic pain.
There are a number of measures to treat dry mouth, exorostemia, with rinses, I use biotene dry mouth toothpaste, rinse, gum, gel. There are othet lozenges, salivary substitutes, some stone stone fruit puts, citric fruit, water, milk that help stimulate or replicate saliva.
Some use prescription pilocarpine to stimulate salivary flow, or Amifostine administered 30 minutes prior to radiation to protect the salivary gland during radiation, with mixed results, and have found the injection has lesser toxic side effects than with IV.
Good luck.
10/09 T1N2bM0 Tonsil 11/09 Taxo Cisp 5-FU, 6 Months Hosp 01/11 35 IMRT 70Gy 7 Wks 06/11 30 HBO 08/11 RND PNI 06/12 SND PNI LVI 08/12 RND Pec Flap IORT 12 Gy 10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux 10/13 SND 10/13 TBO/Angiograph 10/13 RND Carotid Remove IORT 10Gy PNI 12/13 25 Protons 50Gy 6 Wks Carbo 11/14 All Teeth Extract 30 HBO 03/15 Sequestromy Buccal Flap ORN 09/16 Mandibulectomy Fib Flap Sternotomy 04/17 Regraft hypergranulation Donor Site 06/17 Heart Attack Stent 02/19 Finally Cancer Free Took 10 yrs
| | | | Joined: Dec 2010 Posts: 5,264 Likes: 5 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | "OCF Canuck" Patient Advocate (old timer, 2000 posts) Joined: Dec 2010 Posts: 5,264 Likes: 5 | Lidcocaine is the numbing agent, make sure it is part of the formula. The numbing only lasts a short time as it is NOT systemic, but topical. So basically numbs on contact, unlike a painkiller like codeine or oxy that works systemically through the bloods stream. So ideally he should use it before he eats or drinks his nutrition, and he should take his pain meds maybe 15 minutes to an hour before (though the patch is usually a continuous does delivery so this isn't an issue) then swish with his mouthwash beforehand and eat or drink. best of luck.
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | Joined: Oct 2012 Posts: 1,275 Likes: 7 Assistant Admin Patient Advocate (1000+ posts) | Assistant Admin Patient Advocate (1000+ posts) Joined: Oct 2012 Posts: 1,275 Likes: 7 | Our RO suggested using the mouthwash in two steps -- take a smallish sip, swish to stop the burning sensation first, then when it starts to numb, then put the rest into the mouth and swish. This time, the swishing is for the sores. Maybe this will work for your husband.
Gloria She stood in the storm, and when the wind did not blow her way, she adjusted her sails... Elizabeth Edwards
Wife to John,dx 10/2012, BOT, HPV+, T3N2MO, RAD 70 gy,Cisplatinx2 , PEG in Dec 6, 2012, dx dvt in both legs after second chemo session, Apr 03/13 NED, July 2013 met to lungs, Phase 1 immunotherapy trial Jan 18/14 to July/14. Taxol/carboplatin July/14. Esophagus re-opened Oct 14. PEG out April 8, 2015. Phase 2 trial of Selinexor April to July 2015. At peace Jan 15, 2016. | | | | Joined: Jul 2009 Posts: 1,409 Patient Advocate (1000+ posts) | Patient Advocate (1000+ posts) Joined: Jul 2009 Posts: 1,409 | Coco, the only thing that worked for me was viscous lidocaine. I would get a good mouthful of the stuff and swish and hold it in there for as long as 10 minutes. Mind you, it doesn't do anything for radiation burns down in the throat, it's only good for mouth sores (since you can't swallow it), but I found it was the only way I could numb my mouth sufficiently to get the nutritional liquid down. It's a prescription medication that I'm sure your doc could phone in so you could get it pronto.
David 2 SCC of occult origin 1/09 (age 55)| Stage III TXN1M0 | HPV 16+, non-smoker, moderate drinker | Modified radical neck dissection 3/09 | 31 days IMRT finished 6/09 | Hit 15 years all clear in 6/24 | Radiation Fibrosis Syndrome kicked in a few years after treatment and has been progressing since | Prostate cancer diagnosis 10/18
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