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donfoo #161173 02-01-2013 01:57 PM
Joined: May 2010
Posts: 638
klo Offline
"OCF Down Under"
"Above & Beyond" Member (500+ posts)
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"OCF Down Under"
"Above & Beyond" Member (500+ posts)

Joined: May 2010
Posts: 638
So glad to hear you are coping. Induction chemo can be very hard. Alex used to say that there was no word in the English language that could describe what he felt but fatigue was just so inadequate. If you have got through the first 5 days, then hopefully you are on the improve till the next dose. Alex used to be very very sick half way through the first week, start improving during the second and approached feeling "normal" during the third.

Alex also discovered an added bonus of chemo day in that he was properly hydrated on those days because of the cisplatin which made him feel quite well (albeit short lived). We learned the value of hydration very early as a result. Unfortunately, getting the idea of nutrition through to Alex was a bit more problematic. Alex got very, very sick and I would implore you to keep both hydration and nutrition up as difficult (and some days impossible) as it may feel.

Just a thought re the 5FU pack: Alex refused to have anything to do with the fanny pack (a cute (I thought) little denim number made by the volunteer group). He coped better with fleecy lined track pants (?sweat pants) with side pockets. the cassette sat neatly and snugly in the pocket. Having the cassette to the side made it easier to sit and lie down, Alex said, and didn't get in the way so much.

KLO


Karen
Love of Life to Alex T4N2M0 SCC Tonsil, BOT, R lymph nodes
Dx March 2010 51yrs. Unresectable. HPV+ve
Tx Chemo x 3+1 cycles(cisplatin,docetaxel,5FU)- complete May 31
Chemoradiation (IMRTx35 + weekly cisplatin)
Finish Aug 27
Return to work 2 years on
3 years out Aug 27 2013 NED smile
Still underweight
donfoo #161209 02-02-2013 06:44 PM
Joined: Sep 2012
Posts: 51
Supporting Member (50+ posts)
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Supporting Member (50+ posts)

Joined: Sep 2012
Posts: 51
Don- Paul's motto was one day at a time and if you act happy, eventually you'll FEEL happy. It really worked. Your frame of mind is a powerful tool as to how you feel. Whatever the symptom, there is something to help. It can be medications or other advice from this website. Many things work for some but not others. The secret is to find out what works for YOU. It won't be easy but I honestly think if Paul could make it through the treatments, anyone can. He just had some random, unfortunate luck. Best of luck to you. Please feel free to contact me as you go throughout your treatment.


Diane-wife to Paul, age 55
DX 9/17/12
HPV/SCC/BOT Stage 4a
Non-smoker/casual drinker
Otherwise healthy
9/24/12 Cisplatin, Taxotere,5-FU - 3x
12/3/12 Rad x 35/Carboplatin x 3
1/15/13 DVT upper thigh
Passed away 1/23/13
donfoo #161242 02-04-2013 03:31 PM
Joined: Jan 2013
Posts: 1,294
Likes: 1
donfoo Offline OP
Patient Advocate (1000+ posts)
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Patient Advocate (1000+ posts)

Joined: Jan 2013
Posts: 1,294
Likes: 1
Thanks all for the support and kind words and advise. One week since start of cycle 1 of TPF induction and I am finally feeling bits of goodness among the blah times.

I need to listen to Paul's motto - one day at a time. I let myself get ahead of where I wanted to be and where my body was willing to go so it bummed me out more than just take it as it comes.

I'd like to image it better from here until the next cycle but I guess I need to learn - one day at a time. :-) Don


Don
Male, 1955
Great health except C
Dec '12
DX: BOT SCC T2N2bMx, Stage 4a, HPV+, multiple nodes
1 tooth out
Jan '13
2nd tooth out
Tumor Board -induction TPF (3 cycles), seq CRT
4-6/2013
CRT 70gr 2x35, weekly carbo150
ended 5/29,6/4
donfoo #161245 02-04-2013 04:33 PM
Joined: Mar 2011
Posts: 1,024
"OCF Kiwi Down Under"
Patient Advocate (1000+ posts)
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"OCF Kiwi Down Under"
Patient Advocate (1000+ posts)

Joined: Mar 2011
Posts: 1,024
Exactly Don.
One day at a time.
You can get through this.
Be kind and gentle to yourself.
Tammy


Caregiver/advocate to Husband Kris age 59@ diagnosis
DX Dec '10 SCC BOT T4aN2bM0 HPV+ve.Cisplatin x3 35 IMRT.
PET 6/11 clear.
R) level 2-4 neck dissection 8/1/11 to remove residual node - necrotic with NED
Feb '12 Ca back.. 3/8/12 total glossectomy/laryngectomy/bilat neck dissection/partial pharyngectomy etc. clear margins. All nodes negative for disease. PEG in.
March 2017 - 5 years disease free. Woohoo!
donfoo #161262 02-05-2013 06:13 AM
Joined: Dec 2010
Posts: 5,264
Likes: 5
"OCF Canuck"
Patient Advocate (old timer, 2000 posts)
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"OCF Canuck"
Patient Advocate (old timer, 2000 posts)

Joined: Dec 2010
Posts: 5,264
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Ditto to the above. Hugs!


Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
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