| | Joined: Sep 2012 Posts: 51 Supporting Member (50+ posts) | OP  Supporting Member (50+ posts)
Joined: Sep 2012 Posts: 51 | Had a bump in the road yesterday. Paul developed a massive blood clot in his upper right thigh. Diagnosed as deep vein thrombosis. Treatment choices were iv with heperin and be admitted or a lovenox injection with an Rx to self administer at home. With only 4 radiation treatments to go, if he was admitted it would have to be postponed. The oncologist recommended the lovenox route which we did.
Has anybody else experienced this? I'm really concerned about some of the clot breaking off and making it's way to the lungs. In my research I'm getting mixed opinions as to what is best. We're now down to 3 radiations to go.
Diane-wife to Paul, age 55
DX 9/17/12
HPV/SCC/BOT Stage 4a
Non-smoker/casual drinker
Otherwise healthy
9/24/12 Cisplatin, Taxotere,5-FU - 3x
12/3/12 Rad x 35/Carboplatin x 3
1/15/13 DVT upper thigh
Passed away 1/23/13
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Sorry to hear Paul has a blood clot. Those are nothing to fool around with. I havent seen this problem come across the forum before so have no experience with this. Hang in there, the end is in sight with only 3 more rads left.
Best wishes!
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | | | | Joined: Oct 2012 Posts: 1,275 Likes: 8 Assistant Admin Patient Advocate (1000+ posts) | | Assistant Admin Patient Advocate (1000+ posts)
Joined: Oct 2012 Posts: 1,275 Likes: 8 | Dear Diane,
My husband developed extensive deep vein thrombosis in his left leg at the beginning of the fourth week of Tx, a couple of days after his second bag of Cisplatin. The MO said it was the chemo that caused the clotting. The third bag of Cisplatin was cancelled. John was doing the heparin injections daily, then he developed another clot in his right leg on the second last day of Rx. At the Thrombosis Clinic, the doctor increased the dose to two shots of Lovenox a day. According to the doctors, both cancer and chemo can contribute to the development of DVT. If your husband complains of shortness of breath or sudden sharp pain in the chest, then you will need to get him to emergency ASAP.
I am sorry this happened to your husband too. The Rx is tough enough without their having to deal with another potentially dangerous condition as well.
Gloria
She stood in the storm, and when the wind did not blow her way, she adjusted her sails... Elizabeth Edwards
Wife to John,dx 10/2012, BOT, HPV+, T3N2MO, RAD 70 gy,Cisplatinx2 , PEG in Dec 6, 2012, dx dvt in both legs after second chemo session, Apr 03/13 NED, July 2013 met to lungs, Phase 1 immunotherapy trial Jan 18/14 to July/14. Taxol/carboplatin July/14. Esophagus re-opened Oct 14. PEG out April 8, 2015. Phase 2 trial of Selinexor April to July 2015. At peace Jan 15, 2016.
| | | | | Joined: Oct 2012 Posts: 1,275 Likes: 8 Assistant Admin Patient Advocate (1000+ posts) | | Assistant Admin Patient Advocate (1000+ posts)
Joined: Oct 2012 Posts: 1,275 Likes: 8 | Diane, I would just like to add that at the Thrombosis Clinic, we were told that as long as John has cancer, he will have to do the injections. He actually was given a prescription for Lovenox with repeats for six months. The nurses at the radiation clinic did say that unfortunately this happens more often than people imagine.
On the positive side, after a few days, John's movements have greatly improved. At one point he was having trouble getting up from the chair and standing. But after five days of two daily injections, he is now moving without needing help.
Last edited by gmcraft; 01-16-2013 07:27 PM. Reason: Typo
Gloria
She stood in the storm, and when the wind did not blow her way, she adjusted her sails... Elizabeth Edwards
Wife to John,dx 10/2012, BOT, HPV+, T3N2MO, RAD 70 gy,Cisplatinx2 , PEG in Dec 6, 2012, dx dvt in both legs after second chemo session, Apr 03/13 NED, July 2013 met to lungs, Phase 1 immunotherapy trial Jan 18/14 to July/14. Taxol/carboplatin July/14. Esophagus re-opened Oct 14. PEG out April 8, 2015. Phase 2 trial of Selinexor April to July 2015. At peace Jan 15, 2016.
| | |
| Forums23 Topics18,264 Posts197,178 Members13,362 | | Most Online1,788
Jan 23rd, 2025 | | |
|
